Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Could Punch Myself Right Now!

AshBil

By AshBil
in Coping with Celiac Disease

Recommended Posts

AshBil Rookie
AshBil
Posted

Okay so I've been being really good with this gluten free diet for the last almost month now since I've been diagnosed. I'm doing research and reading labels and being really good with just doing whole foods as much as possible so I can reassure myself I'm not being secretly glutened. Well...it happened anyway. And a lot of it. Literally about 10 minutes ago now. I was in a rush this afternoon and had some stuff to do so I rushed out of the house and told my mom to make me something to eat because I was starved and hadn't eaten all day. So when I got home, I don't even think about it and ate what she cooked. I can't believe I didn't even think about it. All I've been doing is thinking about gluten and making sure it does not get into my body and here I was, chomping away on 4 peices of heavely breaded chicken and not even stopping to realize it. UGH! I feel so dumb right about now. I think my mom wasn't thinking about it either because she wouldn't have made them for me. I don't know what was hanging over our heads today that made us both completely forget about it. It's really weird. Maybe it's because it's only been such a short time...I'm not sure. But anyways, I'm now getting a little nervous about what I'm going to experience. The past 3 1/2 weeks, I still haven't felt much better to begin with but now that I've actually eaten a lot of obvious gluten, I'm worried. Before I was diagnosed, I didn't get D like I know some people get but I was having these terrible sharp stabbing pains all over my stomach and a lot of gurgling in my stomach as well as extreme nausea. Should I be expecting that or something much worse considering I've been gluten free for a while? I'm just in shock over how absent minded I was today. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

No punching yourself allowed (flipping thru Ceiac Handbook) - yep there it is - Rule #2 - accidents happen - especially in the early days.

It will happen again, not in the same way, but an ingredient will change in a product you have purchased before or you'll go out to eat and think you took all possible precautions or a million other scenarios. These accidents will become infrequent as you transition - you'll still get a bit angry with yourself each time it happens, but try not to.

You may not have a severe reaction, but if you do - hang in there and drink lots of water!

Adalaide Mentor
Adalaide
Posted

These things happen. After 10 months I ate soup that got me because I am apparently incompetent at reading labels. Everyone reacts differently. I take every time as a lesson learned, muddle through because that is all I can do with a gluten head and move forward. Accidents happen to all of us, the best we can do is learn from our mistakes, smile through it and carry on.

Lots of water. Foods that are easy on your stomach if anything is troubling you. Take it easy if you need to and if you feel like you need to sleep your weekend away, do it. Let your body take the time it needs to recover.

AshBil Rookie
AshBil
Posted
  • Author

I just feel so dumb about it. It took a couple hours but I feel disguting now. All it mostly is is really bad nausea. I feel like I want to throw up everything I've ever ate in my whole life! And my mouth feels really dry. Thanks for the support guys! Now I get to go through the best part...waiting it out. I can see this will be a fun weekend!

GottaSki Mentor
GottaSki
Posted

Oh...I am sorry it hit you hard. Lots of water. Ginger tea helps me as well - usually not until the next day.

Do you have digestive enzymes? They are a good thing to take daily while healing and do help a bit with accidental glutenings.

Hoping you feel better very soon :(

gatita Enthusiast
gatita
Posted

Ohhhh this was so painful to read... I have no idea why I haven't done that yet, because I am sooo capable of popping something into my mouth without thinking about it. It's been a miracle I haven't done it (yet). Done plenty of other dumb stuff though, like seeing "berries" on the label of a drink and not realizing until it was way too late that it said "wheat berries." Doh.

I sure hope you get through it quickly!

moonablaze Newbie
moonablaze
Posted

happens to all of us. I actually have nightmares about it sometimes. I'll dream that I'm halfway through a donut or a cookie or something when I realize and then I am just so SCARED when I wake up.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

You can try some Pepto Bismol for the stomach nausea. Nettle tea may help if you are sore. Peppermint tea can help get gas out of the stomach. Lots of water is good too and some aspirin if there is lots of pain.

CeliacShack Rookie
CeliacShack
Posted

I spent the first two months after my diagnosis using black pepper and baking soda that "could contain traces of wheat". I felt like a complete idiot when I discovered it, after thinking I was being so careful reading lables... and wondering why I was still having setbacks. I already had those in my cabinet, and never thought to look at them.

MitziG Enthusiast
MitziG
Posted

Don't be too hard on yourself. After nearly two years of always thinking about what I eat, I absent mindedly grabbed a Nestle Crunch bar a few weeks ago and started to put it in my mouth before it dawned on me that DUH, I should probably look at the label! And of course it has Barley mAlt in it! Sometimes our brains just aren't on the ball, it happens. Hope you feel better soon!

SMDBill Apprentice
SMDBill
Posted

I was at Olive Garden the other night with my daughter to celebrate the end of their soccer season. I wasn't sure if they even had a gluten free menu, but I'm not a fan of their regular food so I chose to just have a soda. I didn't even touch a breadstick or crumbs, but at the end the waitress brought me my bill for the sodas and handed us mints. I avoided food all evening and even spoke with a man about his health problem and he asked about mine. But there at the very end, what did I do? I opened the mint and had it almost to my mouth when I realized I had no way of knowing what was in it. It was chocolate and mint, but there was no way of identifying the ingredients. I was about 6 inches from the same thing you did when I caught myself. I gave it to my daughter to enjoy since she likes them and I made my way to the restroom to wash my hands.

I'm 2 months gluten-free and, although it was likely safe, I almost bit into it without even thinking. It happens. We've thrown out pots of noodles because we've cooked gluten-free and non-gluten-free on the same stovetop, carefully using only clean metal utensils in mine...and then making the mistake of using one utensil to quickly stir both. It's that easy to forget. If we're ever unsure we'll throw food out. What a waste and frustration. Since everyone is not gluten-free we do our best to make gluten-free dinners but sometimes they want non-gluten-free and they deserve to have it. But...our guard can't come down.

I feel your pain. I got glutened only once and it was rough. I know it will happen again but I pray and work hard to avoid it. We're human and prone to mistakes for sure. I hope you heal quickly and if you have any capsule probiotics, those may help. They don't break down until in the intestine so high doses of probiotics could also assist, along with the other great suggestions already mentioned. I take 20 billion cell probiotics (10 strains) but there are some much stronger. I doubled up when glutened for a week. Anything to help grow those healthy bacteria back, especially if you also have heavy D. Good luck!

gatita Enthusiast
gatita
Posted

happens to all of us. I actually have nightmares about it sometimes. I'll dream that I'm halfway through a donut or a cookie or something when I realize and then I am just so SCARED when I wake up.

I have those dreams too!!! Weird...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what...
    2. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    3. trents
      - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy...
    4. Dizzyma
      - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her on a full gluten free diet. my concerns are that she wasn’t actually physically s...
    5. Scott Adams
      0

      Better-Than-Takeout Gluten-Free Chicken Fried Rice

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,927
    • Most Online (within 30 mins)
      7,748
    drw80whz
    Newest Member
    drw80whz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • TheDHhurts
      Prana Organics no longer GFCO-certified

      By TheDHhurts · Posted

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.