Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance?


KikiB

Recommended Posts

KikiB Explorer

Good to

Good to know, thanks Dave!

Being a cheapskate, I generally go for the canned mackeral myself. But once in a while I try some tuna. I just have to fight the cat off to eat it tho. :)

LOL! Starkist gold can is soy free. Costco Kirkland tuna is soy free and cheaper.

I had no idea I was eating so many things with soy in them. It's shocking to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Yep, they put soy, dairy, and gluten in a whole lot of processed foods. It is very common to find one of those 3 or all of them in processed food-like products. Along of course with food preservatives, (anti-bacterials) food colorings, emulsifiers, stabilizers, fillers, and spitballs. Ok, kidding on the last one. :)

gatita Enthusiast

Well, thanks to this thread and after feeling pretty darn lousy following my tofu dinner the other night, I've decided to try a week soy-free. Since my gut reactions are immediate and quite, um, obvious, I figure I should know right away if that is an issue. I have lactose intolerance and have tested corn, eggs and grains in general but never thought about soy being a problem.

ButterflyChaser Enthusiast

Has anyone with soy intolerance experienced heart palpitations, and mood changes? I have been off soy for about three months, and after eating some chocolates my students gave me, thinking that a bit of soy lechitin would be a problem, I had racing heartbeat, tremors, and a kind of panic attack (my mother, who was talking to me, said that I sounded and seemed on drugs), followed by the onset of a headache that lasted for about half a day. I tried the experiment again a couple of times, with a smaller quantity, and the same happened heart palpitations, tremors, confusion, and then severe headache and sluggishness. But I never think of tachycardia as a symptom of intolerance, or am I wrong?

GottaSki Mentor

I get severe mood changes with all legumes - peanuts are the worst as far as anger, anxiety, sadness. Peas and beans are like sleeping pills and soy is major abdominal bloating along with melancholy.

Haven't noted tachycardia per se, put I do know that certain foods do cause palpitations and anxiety.

cahill Collaborator

Has anyone with soy intolerance experienced heart palpitations, and mood changes? I have been off soy for about three months, and after eating some chocolates my students gave me, thinking that a bit of soy lechitin would be a problem, I had racing heartbeat, tremors, and a kind of panic attack (my mother, who was talking to me, said that I sounded and seemed on drugs), followed by the onset of a headache that lasted for about half a day. I tried the experiment again a couple of times, with a smaller quantity, and the same happened heart palpitations, tremors, confusion, and then severe headache and sluggishness. But I never think of tachycardia as a symptom of intolerance, or am I wrong?

For me ,,ingesting soy causes palpitations and anxiety amoung other symptoms ( such as confusion, headache,dizziness ,brain fog,ringing in my ears,constipation, ect......)I feel like my heart is racing ( and my normal heart rate is low )
mushroom Proficient

Many of my food intolerances have an effect on my heart. Racing heart, arrhythmia, dizzziness, fainting... eventually led to atrial fibrillation because I didn't know what was causing it and it occurred so frequently. Interestingly enough, I can now manage a little soy lecithin as in chocolate :D:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

soy lecithin as in chocolate :D:D

there's my goal and the trial will be much more fun than edamame was :D

ButterflyChaser Enthusiast

Wow, thanks... I am afraid I will have to stay away from even that for a while, because my heart beats too weird. My grandmother also died of the complications of an atrial fibrillation (rhyme not intended!) which occurred when she was in her 80s, I think. I am not sure I want to try the experience, even if I am not that old! :P

I was "shipped" straight to a cardiologist with a heart scare and tremors this summer, which happened over a period in which I was living off tofu and soy-based bars (I know, 50 shades of wrong, never gonna do as badly as that ever again), so I wonder if that was a cause. My heartrate now seems back in place, provided that I steer clear of the above, and sugar.

KikiB Explorer

Well, thanks to this thread and after feeling pretty darn lousy following my tofu dinner the other night, I've decided to try a week soy-free. Since my gut reactions are immediate and quite, um, obvious, I figure I should know right away if that is an issue. I have lactose intolerance and have tested corn, eggs and grains in general but never thought about soy being a problem.

Good luck. Let me know how it goes.

KikiB Explorer

Wow, thanks... I am afraid I will have to stay away from even that for a while, because my heart beats too weird. My grandmother also died of the complications of an atrial fibrillation (rhyme not intended!) which occurred when she was in her 80s, I think. I am not sure I want to try the experience, even if I am not that old! :P

I was "shipped" straight to a cardiologist with a heart scare and tremors this summer, which happened over a period in which I was living off tofu and soy-based bars (I know, 50 shades of wrong, never gonna do as badly as that ever again), so I wonder if that was a cause. My heartrate now seems back in place, provided that I steer clear of the above, and sugar.

Scary! I'll be curious to know how you feel off of soy.

ButterflyChaser Enthusiast

My heart rate dropped dramatically. Was it the absence of soy? Was it the resumed cardio? I could barely walk at 4 mph without feeling pain when I was eating that much soy. I am also less "crazy" in general. Was it the absence of soy? Was it the breathing exercises? I am not sure. But when I feel that awful, to be honest, I'm not really that curious. I sort of just want to find the combination of diet/therapy/lifestyle that will make me feel able to live life again. As of now, all my tests came back negative (no endoscopy performed), so I don't have celiac disease. But there is no doubt that my gut is messed up, and since starting the gluten-free diet, I am able to leave the house without having to choose between either fasting or needing a ladies' room at hand. Sorry, TMI!

Eating two truffles made with soy lechitin means pounding palpitations (I can feel them in my stomach) and chest pain; then, if I have consumed more than that, comes GI distress: bloating, and running for the bathroom. Not even coffee does that to me.

  • 2 weeks later...
ButterflyChaser Enthusiast

Sorry to bump this up, but I am kind of worried at this point. I have accidentally soyed myself (WHO on earth thinks it's a great idea to put soy in herbal tea???) this morning. I have had palpitations all day, and people talking to me said I was irritable and confused, and at a certain point I felt that my heart was going very fast and then kind of "stopped" (I don't know how to describe it) with two very string thuds. It happened three or four times in the afternoon. And it was almost painful. And I was lying on a sofa, not going around. I could not do much more beside, because the whole room was spinning around me for an hour or so.

Do I need to call my doctor about the heart thing?

GottaSki Mentor

Sorry to bump this up, but I am kind of worried at this point. I have accidentally soyed myself (WHO on earth thinks it's a great idea to put soy in herbal tea???) this morning. I have had palpitations all day, and people talking to me said I was irritable and confused, and at a certain point I felt that my heart was going very fast and then kind of "stopped" (I don't know how to describe it) with two very string thuds. It happened three or four times in the afternoon. And it was almost painful. And I was lying on a sofa, not going around. I could not do much more beside, because the whole room was spinning around me for an hour or so.

Do I need to call my doctor about the heart thing?

YES! When in doubt == Emergency Room - better to error on the side of caution.

We are not doctors on this board...simply other folks with Celiac Disease, NCGI or other food intolerances -- if you are experiencing new serious symptoms, please consult a physician.

cahill Collaborator

I agree,, when in doubt check it out.

chances are is it "just " the soy but making sure is a good thing.

ButterflyChaser Enthusiast

Thank you for helping me in my freak out.

I called my doc - apparently it was a case of extrasystole somehow related to the exposure to foods/substances I am reacting to. I have been keeping a diary, and it looks like each accidental exposure makes me react worse and worse.

I am feeling slowly better.

GottaSki Mentor

I am feeling slowly better.

Glad to hear -- hope you are feeling even better now :)

ButterflyChaser Enthusiast

Yes, tachicardia mostly gone, or gone enough to zumba. Tummy still so so.

GottaSki Mentor

Yes, tachicardia mostly gone, or gone enough to zumba. Tummy still so so.

Good to hear your heart has settled - scary stuff.

Tummy may have ups and downs for a while.

Hang in there :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748

    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.