Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Non-glutenfree Medicine


domineske

Recommended Posts

Canadian Karen Community Regular

The Gax-X Chewable Tablets contain gluten. The Gax-X Gelcaps do not contain any gluten.

I learned this out the hard way!!!! <_<

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aaascr Apprentice

Just a note on the above published list:

Tom's of Maine has a new line of products

that does contain gluten.....

lovegrov Collaborator

This is interesting - I was looking around on the web to find out about the ingredients in zofran odt and found this, that describes all forms of the drug. Wonder why they say the tablet form is gluten free in both strengths but don't make a distinction with the orally discintegrating version?

Open Original Shared Link

I'm guessing here, but the ones that specifically say gluten free have starch in them. The ones that do not say gluten free do not have starch or any other ingredient that would make you think it wouldn't be gluten-free.

richard

circeannc Newbie

In terms of over the counter histamine blockers, does any one have any suggestions. In my conversation today with Pfizer, I was told that there were no gluten in the product, but that they wouldn't guarantee it because of cross-contamination possibilites and that they do not test the product after it is made. So, I am opting not to try it at this point. It is for my 2 1/2 year old daughter who has only been gluten-free for almost three months. This covers Benadryl, Sudafed, and the behind the counter Atarax. I tried Perrigo Corp., which makes the market generic, but got the same answer. So, does anyone have any options or suggestions?

Thanks!

lovegrov Collaborator

Does Robitussin have a blocker or is that just cough medicine?

Please note that I am not telling you to try this medicine on your child. I am not a doctor and not a medical person. I cannot personally "guarantee" anything about these medications.

I will tell you, however, as I've said before, that very few pharmaceutical companies will GUARANTEE their products will never have gluten. Most of these companies are so paranoid of lawsuits that they simply will not use the word "guarantee" and they want you to understand there is no guarantee. In every single processed product made in the world, there's always a chance gluten can slip in. It's just a fact of life.

When you take their medication you don't demand that they guarantee that it will cure you or even make you feel better (at least I don't). And if you did demand it they wouldn't do it. But most of us would still take the medicine. You also don't demand that your child won't have an allergic reaction -- our daughter did once.

Despite their lack of a guarantee, I know a number of people with celiac who use Benadryl and Sudafed.

richard

Guest BERNESES

I've used Sudafed, Robitussin and Benadryl previously with no problems. But with a 2 1/2 year old, I would talk to your pediatrician first.

I also had a conversation today with my OB/GYN and she informed me that it IS the pharmacist's job to know whether or not products have gluten in them. Go figure....I've been using CVS for years and they NEVER know. I'm personally going to look into custom compounding at a Medicine Shoppe near me.

lovegrov Collaborator

I'd agree with you on the pharmacies -- in four years I've never been to a pharmacy that knew about whether a product was gluten-free. Most have been very helpful with showing me ingredients, calling the manufacturer or giving me the manufacturer's number, but I've never seen it as their job to know if it has gluten.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

i haven't had a knowledge pharmacist either. i did ask one about it and she asked me where she could get the info to have for others on gluten-free drugs. at least she was interested!

domineske Apprentice

I understand the issue of cross-contamination. It's very frustrating trying to get compaines to assert that there is no gluten in their product. They always want to put that little disclaimer in about their suppliers, cross contamination, etc.

But I'd still like to know whether there are any medications that we know are made with gluten. I still can't find one example!

jmj0803 Apprentice
In terms of over the counter histamine blockers, does any one have any suggestions.  In my conversation today with Pfizer, I was told that there were no gluten in the product, but that they wouldn't guarantee it because of cross-contamination possibilites and that they do not test the product after it is made.  So, I am opting not to try it at this point.  It is for my 2 1/2 year old daughter who has only been gluten-free for almost three months.  This covers Benadryl, Sudafed, and the behind the counter Atarax.  I tried Perrigo Corp., which makes the market generic, but got the same answer.  So, does anyone have any options or suggestions?

Thanks!

<{POST_SNAPBACK}>

Circeannc- I know Children's Loratadine Syrup (fruit flavored) is gluten free. I called the company Taro pharm in Israel. They were very knowledgable about celiac and gluten! If your pharmacy does not carry it I'm sure they will order it for you.

  • 4 months later...
floridanative Community Regular

I need an rx for folic acid and I can't take OTC right now as the GI said I'm not going to get enough that way due to damaged villi. So I have now been waiting a whole week for my pcp to call in an rx for me. My ex-GI was extremely unhelpful and told me ask my pcp for the rx. Two companies (at least) make a rx folic acid but BC/BS always makes me take a generic when available. I'm sure there is a generic form available should I assume even if the brand name the doc calls in is gluten free, it's generic counterpart is not?

CSA states that the info on www.glutenfreedrugs.com is correct. There are a ton of gluten free rx and OTC drugs on the list. I realize we still need to check as ingredients change but at least this list is a guide.

VydorScope Proficient
In terms of over the counter histamine blockers, does any one have any suggestions. In my conversation today with Pfizer, I was told that there were no gluten in the product, but that they wouldn't guarantee it because of cross-contamination possibilites and that they do not test the product after it is made. So, I am opting not to try it at this point. It is for my 2 1/2 year old daughter who has only been gluten-free for almost three months. This covers Benadryl, Sudafed, and the behind the counter Atarax. I tried Perrigo Corp., which makes the market generic, but got the same answer. So, does anyone have any options or suggestions?

Thanks!

I have given my 2 1/2 yr old son benedryl with no indication of a reaction.

tiredofdoctors Enthusiast

I haven't had a whole lot of trouble with meds, but a little bit: my generic synthroid contained gluten according to its manufacturer (can't remember which), so my endocrinologist changed it to Name Brand Only because it's gluten-free. The generic Klonopin I was taking for the spasticity I have contained gluten, so I had to change to Name Brand Only on that, as well. Kind of funny that the medicine that I was taking to help the symptoms of what gluten has done to me CONTAINED gluten. :blink: I had been given Nexium in the past and according to its manufacturer, it contains gluten. I think those are the only ones . . . my memory is kind of foggy today, so I could have forgotten some . . . .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.