Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Is This Dh?

bigkane

By bigkane
in Dermatitis Herpetiformis

Recommended Posts

bigkane Newbie
bigkane
Posted

My wife has been telling me for a couple years now, that she suspects I have celiac disease. Now I have developed a really aggravating rash, it's very itchy, and even though I haven't been scratching it, it's raw. My question is, does anyone think this is DH?? Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Yes, I think it's QUITE possible that you have DH. Have you considered going on a gluten-free diet? If so, please eliminate iodine for a while, too, since it exacerbates DH. (P.S. Give your wife a kiss! She's a smart lady!)

squirmingitch Veteran
squirmingitch
Posted

Yes, I think it's QUITE possible that you have DH. Have you considered going on a gluten-free diet? If so, please eliminate iodine for a while, too, since it exacerbates DH. (P.S. Give your wife a kiss! She's a smart lady!)

Ditto!

JaneWhoLovesRain Enthusiast
JaneWhoLovesRain
Posted

Well, it's sure in the right spot for DH. Do you have it anywhere else? It looks similar to my rash. I'd say the only way to know for sure is to have it biopsied but unfortunately that isn't always accurate.

Jane

bigkane Newbie
bigkane
Posted
  • Author

Well, it's sure in the right spot for DH. Do you have it anywhere else? It looks similar to my rash. I'd say the only way to know for sure is to have it biopsied but unfortunately that isn't always accurate.

Jane

Thanks for the replies. I currently have it also on my inner thighs on both legs midway down to my knee, and it's starting in my underarm area as well. I went to the Doc today and he's sending me to allergist. So we'll see what's going on hopefully. He did prescribe a steroid dose pack, but I'm not sure if that'll help.

rosetapper23 Explorer
rosetapper23
Posted

If they end up doing a biopsy, INSIST that they biopsy the clear skin NEXT to the lesions. If they biopsy the lesions themselves for DH, they will come up as false-negatives. Very few dermatologist know how to correctly biopsy for DH. Good luck there!

JaneWhoLovesRain Enthusiast
JaneWhoLovesRain
Posted

Thanks for the replies. I currently have it also on my inner thighs on both legs midway down to my knee, and it's starting in my underarm area as well. I went to the Doc today and he's sending me to allergist. So we'll see what's going on hopefully. He did prescribe a steroid dose pack, but I'm not sure if that'll help.

Someone correct me if I am wrong, but I believe should it come to you having a biopsy the steroids will affect those resuls (false negative). Just something to keep in mind.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

I think you're right--steroids might skew the biopsy results. The poster should have been referred to dermatologist and not an allergist.

squirmingitch Veteran
squirmingitch
Posted

Steroids, topical or oral will make a biopsy of the rash, or a celiac blood panel or an endoscopic biopsy NEGATIVE. No steroids should be used for 2 months prior to any testing.

Yes, the op should have been referred to a dermatologist.

And to top things off; generally celiacs with dh test neg. on the blood panel & endoscopic biopsy.

AND for the skin biopsy you MUST be actively consuming gluten or else you get a false negative.

Some links:

Interesting Reading on DH:

Descriptions of DH Types:

Help for the Itching, Stinging, Burning, Pain of DH:

DH Photobank:

Newbie 101 for celiacs

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,752
    • Most Online (within 30 mins)
      7,748
    Sue Gaertig
    Newest Member
    Sue Gaertig
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Beverage
      Tea Bags and Gluten

      By Beverage · Posted

      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.