Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Age Did Everyone Begin To Have Symptoms?


jwblue

Recommended Posts

jwblue Apprentice

....................


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

jwblue Apprentice

Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

Any symptoms for Celiac.

GottaSki Mentor

12 months.

JDThornton Newbie

Mostly all my childhood. More severe at 18. Sustained since 26. I am now 29.

GF Lover Rising Star

Alot of my depression and anxiety developed early when I still lived with my family. Around 20 the mental health issues ramped up. Did some heavy drinking during those years. First miscarriage in 1990, first child born in 1993 (also when hypo hit). Second child in 1995. I always had a problem with constipation since teens. After pregnancies all the digestion issues came on strong. Then year after year more stuff. Monster migraines, Arthritis, periformis syndrome, sacroilitis, degenerative disk, hemorrhoids out of control, Sicca symptoms, fibromyalgia (mine is skin surface pain), stiffness in all joints, carpel tunnel (I believe from all over inflammation) and now cancer. I was only diagnosed celiac 5 months before the cancer.

Resolved issues. Had hemorrhoids operated on, all digestive issues resolved, migraine only when cc'd, whole body inflammation is less. Fibro surface pain is less often. Have an appetite now. Carpel tunnel resolved, I believe, as a decrease in inflammation.

I still have a lot of fatigue and weakness issues but I believe that is related to a different condition.

Best of luck,

Colleen

1desperateladysaved Proficient

I had mononucleousis when I was 19 and in college. After that I noticed, unending fatigue, bloating on occassion, and sensitivities to perfume and cigarette smoke. My appetite had unusual swings from famished constantly, to a severe lack of appetite. The symptoms gradually got more and more noticeble, but I think I was numbed either by extreme fatigue or lack of vitamin B. Gradually, the bloating and fatigue overcame me and did not go away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



megsybeth Enthusiast

From the time I was born I was pale, skinny and had dark circles under my eyes. I guess around age four or five I had to have all my teeth capped because of "milk rot". At six I was ill for about a year: mono, tonsillitis, chicken pox. Just seemed to catch everything. After that, migraines, stomach isssues here and there, in early twenties abdominal pain. I didn't get diagnosed until 35 years old, two months ago.

Cara in Boston Enthusiast

No problems at all until I got pregnant with my second child (age 38). I went from going to the doctor once a year (just for annual physical) to going in every few months with really random symptoms. (cardiac, neuro, GI, etc.) It got to the point where my doctor just thought I was making stuff up because nothing ever showed up on the many, many expensive tests they ran. When my son was diagnosed (2nd child - coincidence?) at age 5 I got tested and was positive. I had a negative biopsy, but once I started the diet, my health returned. It was amazing. I wish someone had thought to suggest it much, much sooner. I realize 5 years is not bad compared to others, so I really can't complain.

luvs2eat Collaborator

I was 49... no other celiacs in my immediate or extended family. I had symptoms for about 2 months and was diagnosed by blood tests. Middle daughter was diagnosed at about age 26. Then youngest daughter was diagnosed a few years later at about age 27. And finally, oldest daughter was diagnosed at age 32. Still none of my siblings or extended family has it.

Darkfire Ann Newbie

According to my baby records I was born on Sept 21. I was given oats and barely in formula on Oct 25th and Oct 26th I developed a severe allergic rash. That was 39 years ago so the connection was sketchy. That is the first reported reaction I had to Gluten. So it's safe to say I was drawn this way.

  • 3 weeks later...
Jcrosk Newbie

Looking back I've had symptoms for 20 years but I could always attribute them to something else. In January 2012 my colon had enough and shut down. I lost muscle control of my colon and needed laxatives to get any movement at all. It took about a month to diagnose it properly as celiac. I had 2 bloodiest, both negative. My doctor wasn't getting it. I decided to go gluten free, did it for a week and got back control of my colon and I felt so much better. Then I ate a hamburger and onion rings and all my symptoms came back. I consumed gluten for almost 42 years till my body said enough.

nvsmom Community Regular

I had "C" as soon as pablum was introduced and was into the doctor in my early childhood because of my chronic stomach aches. I can't remember as many stomach pains when i was a teen (migraines started instead) but they came back as an adult. I developed other autoimmune diseases, and other symptoms until I figured it out and got myself diagnosed this past year at age 38.

... 38 years I guess.

love2travel Mentor

No clue as I have never felt ill from eating gluten. But I started suspecting something (not celiac at the time) when I had miscarriages. Then three years ago I got bronchitis then pneumonia. After that my celiac fog started - I believe my illness may have triggered it, as did an accident that left me in constant chronic pain. I have been diagnosed with fibromyalgia but believe that it is related to/caused from celiac. Not getting a bit better, even 1.5 years off gluten but there is always hope! :)

designerstubble Enthusiast

I wish I knew! I keep trying to remember when things first started... Bread has bothered me for a long time... I always felt tired after eating it but that was it? Is that a celiac symptom?

Apart from that I would say my symptoms have come on really slowly. So slowly that I struggle to pinpoint it exactly. Apart from bread 'bothering' me, I guess I first started not feeling right about 5 or 6 years ago. So that would've made me 33/34 years of age.

I'm still struggling with the fact that I may have had this for a very long time... Or if not, something triggering it. It's a horrible idea to think that something I did (stress) might have started this horrible disease.

L.O.C.T. Rookie

I remember the very day it seemed to all begin. Around age 10 or 11, I was eating out with my family and, while we were all waiting for food, I was struck with these horrendous stomach pains that I had never experienced in my life. I was really scared ; it was like my insides were going to explode...I just wanted to poke a hole in my side and deflate/remove whatever little mythical horse was kicking the inside of my torso from multiple directions :P I later found out that this was what gas cramps felt like, and little did I know that these were going to become a regular part of my life (as in, 2-3 nights per week, without fail) for the next few years. They disappeared, as if magically, when I stopped eating gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.