Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am Not Getting Better

jamesM11

Recommended Posts

jamesM11 Newbie
jamesM11
Posted

i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

I'm sorry you are still sick. Have you read the "newbie 101" thread? It will help you find the places gluten hides so you don't get cross-contaminated. Do you live with gluten eaters? If so, you need a dedicated toaster, your own colander, your own jars of condiments, and to keep your food away from theirs. I know it sounds crazy, but a few weeks ago I got glutened from touching a cookie crumb and not washing my hands before I ate. Mind you, I didn't EAT the cookie crumb, just touched it.

Another thing that unfortunately happens to a lot of us is additional intolerances. Lots of folks have trouble with dairy and soy. Some of us have trouble with corn or nightshade vegetables. Then there are salicylates, oxylates, lectins, and other natural chemicals in foods.

But I would start simple. Make sure you aren't getting cross-contamination. Then, if you are still sick, try doing away with dairy. If you are STILL sick, do away with soy. After that, if you are still getting sick, an elimination diet sounds in order.

Read as much as you can here. Ask lots of questions. We will help you figure this out! (((HUGS)))

kareng Grand Master
kareng
Posted

Did you try or look into any of the answers you were given a few weeks ago?

https://www.celiac.com/forums/topic/98258-not-getting-better-please-help/#entry838335

jamesM11 Newbie
jamesM11
Posted
  • Author

yes i live with my mom and she eats gluten , and we wipe down everything that gluten touches , and everything wooden that we use in the kitchen we bought new ones

jamesM11 Newbie
jamesM11
Posted
  • Author

i am also very gasy

dilettantesteph Collaborator
dilettantesteph
Posted

To help you better, give us an idea of what is going on? What are you eating, what precautions are you taking etc. It is hard to offer help without more information.

The little information that you gave said that you wipe down everything that gluten touches. Can you give more details on that? You may need to do it more carefully. Do you use soap?

You might need to have a separate counter. It would depend on how sensitive you are. I am very sensitive and didn't get better until we made our household gluten free. The gluten eaters were still able to eat gluten out of the house. Many celiacs are able to prepare gluten containing food without problems. It depends on your level of sensitivity.

LDJofDenver Apprentice
LDJofDenver
Posted

I'd like to suggest that (even though you wipe everything down that comes into contact with gluten) you get in the habit of NEVER putting any of your food down on a counter -- instead grab a plate, or paper plate, or piece of wax paper, etc. It's a good habit to get into and adds a pretty foolproof layer of protection in your food handling.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jamesM11 Newbie
jamesM11
Posted
  • Author

is it comen to take this long to get better ??

GFinDC Veteran
GFinDC
Posted

is it common to take this long to get better ??

87

Hi James,

It is not super unusual for people to have continuing symptoms for quite a while. The trick to stopping them is to make sure you are 100% gluten-free. That means everything including vitamin pills, medicines, pet food, kisses from girlfriends etc. If that doesn't help then you may need to look at other food intolerances. The immune response doesn't stop in a few hours after a glutening, it can continue for weeks. So if you get just a little bit of gluten but only once a week it still keeps the immune system response going, possibly for months or years.

jamesM11 Newbie
jamesM11
Posted
  • Author

can anyone recomened a good probiotic and gas medication ty for all ur help

1desperateladysaved Proficient
1desperateladysaved
Posted

i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

Don't lose hope until you have tried to solve it from all angles. If gluten free alone doesn't solve it, you can try looking for other intolerances and nutrient defieciencies. After that, you can supplement and cater to intolerances. If you are doing all of these and still are having trouble perhaps more time will solve, or allow you to find the next step for you.

Diana

GFinDC Veteran
GFinDC
Posted

Hi James,

One thing you can do for gas is avoid sugars and starchy foods. Those make lots of food for bacteria which then make gas. Peppermint tea or Altoids peppermints are good for getting gas out of the stomach,.. But don't get in the habit of taking them every day, think of them as a medicine.

Solgar and Country Life or Nature Made brands are good for pro-biotics and enzymes. Or Vitamin Shoppe brands.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.