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kristenloeh

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kristenloeh Community Regular
kristenloeh
Posted

So I had an MRI the other week and they finally called me with the results. Looks like a I have a rather large brain tumor that is more than likely what has been causing my chronic migraines. Needless to say, I'm pretty flipping scared....

I go in to the docs tomorrow for more blood tests and I see my neurologist on the 26th to figure out the plan of how we are going to go about getting it removed and what not.

So just send positive thoughts my way please? I need them pretty bad right now.....

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  • Replies 87
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mushroom Proficient
mushroom
Posted

Oh honeybun, what a trauma for you. Of course you're flipping scared, but it is probably benign. I know you can't help worrying, but oftentimes they are. Will definitely keep my fingers crossed for you. Sending oodles of positive thoughts, and some warm {{{{{HUGS}}}} and {{{{cuddlesl}}}} your way.

Hang in there and do continue to let us know what is happening with you.

IrishHeart Veteran
IrishHeart
Posted

Sweetie.

Like Shroomie, I am sending all good vibes, encouraging thoughts, prayers and positive energy to you.

I am sure you are scared, hon and I do not blame you one bit, but try to think positive thoughts about your

prognosis and recovery.

I send ((big warm hugs)) to you.

Keep us posted.

My best to you, IH

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Hi

I will certainly be sending positive thoughts and hugs your way.

Of course it is scary, but I'll have fingers crossed for you and the neuro to make the BEST plan to get you healthy again.

Let us know how you are getting on

Many many good wishes

Mw x

kareng Grand Master
kareng
Posted

On No! Sending some postive thoughts your way. Keep us posted if you feel up to it?

GFinDC Veteran
GFinDC
Posted

Prayers and hugs sent. But a few more hugs are not bad right? (((((((hugs))))))). My sister had a I think they called it gamma knife or some such thing. And a co-worker at my old job had some kind of brain surgery. People do recover from such things.

Jestgar Rising Star
Jestgar
Posted

Very scary honey. :( Hugs and strong thoughts heading your way.

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GottaSki Mentor
GottaSki
Posted

Oh Sweetie :(

HUGE Hugs heading there right now!

Prayers today and in the coming days for strength and healing.

kristenloeh Community Regular
kristenloeh
Posted
  • Author

Thank you all, it's always nice to know there are people out there who care. Once I know more after the 26th I will let you all know <3

shadowicewolf Proficient
shadowicewolf
Posted

That has to be hard.

On one hand, you know whats been causing it, yet on the other hand.... :(

Hope ya get better :)

kristenloeh Community Regular
kristenloeh
Posted
  • Author

Thanks all, I've been trying to rest a lot because it's been making me rather sick lately.

kristenloeh Community Regular
kristenloeh
Posted
  • Author

We have a bit more information. The tumor is NOT cancerous. It's about the size of my pituitary gland and it is in the back of the gland, so it's not messing with my optic or my sinuses, which is a good thing, but in a way, a bit bitter sweet, since now instead of the surgery option being easy and through my nose, they will have to go in through my skull more than likely. We do not know my treatment methods yet, but it's more than likely going to be brain surgery.

So, at least that's a bit of good news before Xmas :)

IrishHeart Veteran
IrishHeart
Posted

This is good news! "Not cancer" is always good news.

I am sorry you have to be operated on( as the other option is less invasive), but if it gives you any encouragement at all, my (then) 82 year old Mom had brain surgery for a dangerous subdural hematoma. She had a few weeks of a b%$@#in shaved head hairdo that we threatened to dye

purple ( we were this close to getting her to go for it, too!)

and she did have to do some required post-op therapy to make sure her coordination was not affected (it wasn't)

but she recovered rather quickly.

You're young and strong and I bet your doctors think your prognosis is excellent, yes?

I am sure this makes you still nervous, of course (all surgeries are scary. I've had 8 in my lifetime, so I understand this apprehension) but you're probably feeling relieved and optimistic, too.

I send you all good wishes and prayers for a quick and total recovery.

Please keep us posted! Merry Christmas, hon.

GottaSki Mentor
GottaSki
Posted

Ditto - I'd say that is excellent news - not dismissing a very serious surgery - just very good to hear it is not cancer.

Merry Chrristmas to you - thank you for updating us :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Really pleased to hear your good news, not having cancer must be a relief.

The surgery you described and location of the tumor sounds manageable. All the very best for Christmas and for the start of your healing.

Mw x

bartfull Rising Star
bartfull
Posted

I'm late to this thread, but I can offer some encouragement. Your tumor sounds exactly like the one a friend of mine had. It was benign, but it was fast growing. She had to have surgery too. She was 50 years old at the time and came through the surgery with flying colors. Just a few days after she got home I was visiting her and freaking out when she got on a ladder to pull down some stuff in the rafters of her garage. But she was absolutely fine. And now, ten years later she is still fine.

My wish for you is that it will be as easy and successful as hers was. ((((HUGS))))

mushroom Proficient
mushroom
Posted

Most excellent news. Celebrate a benign tumor this Christmas, and you will have plenty of time to prepare for the surgery in the New Year. I am so glad for you!.

JNBunnie1 Community Regular
JNBunnie1
Posted

Woohoo!!!!

GottaSki Mentor
GottaSki
Posted

Hi Kristin!

Any news from Neuro? Hoping to hear you have received more positive news :)

You remain in my thoughts and prayers for healing.

kristenloeh Community Regular
kristenloeh
Posted
  • Author

Since the tumor seems to be in the back of my pituitary, the neurologist can't do much since "technically" it's not IN my brain. So I talk to an endocrinologist about what other tests she wants me to do, to see if it's "active" or not, (messing with my hormones and/or secreting them), and then from there, we will hopefully start having a treatment plan in place. Been in and out of the ER from migraines and sever nausea over the holidays and these last few days. Trying to hang in there. Thanks to you all for the well wishes :)

mushroom Proficient
mushroom
Posted

We are all keeping you in our thoughts, hon. :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Have been thinking of you this week. Hope those docs come through good for you, sounds like they are being thorough and getting you the right specialists. Hugs x

IrishHeart Veteran
IrishHeart
Posted

Sending all good wishes and hopes that they come up with a resolution quickly so you can stop feeling so bad.

I suffered migraines most of my adult life and they (well, I'll just say it...) absolutely suck.

((hugs)) to you.

GottaSki Mentor
GottaSki
Posted

And another big HUG :)

Thanks for the update.

  • 4 weeks later...
Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Just spotted you back - how's it all going now?

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This topic is now archived and is closed to further replies.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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