Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Unreasonable?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

My family is planning a long car trip. On the forum, people were discouraged that my family would choose to eat at a restaurant that I would not eat at. Traditionally, we have eaten out atleast 1 time a day on our family trips often twice. We have 7 people in the car, and a car oven that can perhaps accomodate food for 2 people at the most. At our destination, we have booked a hotel that includes a kitchen, so we will eat there. What else can my family do?

At home we got all of the gluten out of the areas I use in the kitchen. My family no longer makes gluten containing foods in my house. My family tried to find eating places that could cook for me. Jason's Deli has gluten free, but when I was there once, they actually told me they couldn't guarantee it was gluten free! I have seen places with "gluten free noodles or chips." I can't eat those either since I am not tolerating grain.

I saw a post on the Five Guys burgers and was so impressed, I was ready to go. Five Guys Burgers was also mentioned by my chiropractor, who is gluten intolerant, and had a safe experience there. Then someone on the forum reacted to going to Five Guys burgers and I didn't want to try going there either. Basically, I am refusing to go to any restaurant.

I am 6 months into grain free. I have feelings like I am just beginning to really heal. I am on a rotational diet besides. I was 30 years with symptoms. I have been feeling good. I am going to be away from home and needing energy.

Does anyone blame me for being so careful?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

When I travel, I always pack my food and get a hotel with a kitchen. My family might get sandwiches and I just go in and get iced tea and eat my stuff. Sometimes we go to Wendy's and I get a Frosty and don't feel left out at all. I make sure I have something I really like, like Fritos, in case I feel left out. Often we just pack picnic stuff. I will get packs of cold cuts, chips, fruit, carrot sticks, make gluten-free cookies, fruit snacks, drinks, etc. they have gluten bread, so I pass out the cold cuts and cheese & fruit, etc to paper plates and they handle the bread. It's cheaper than eating at McDonalds and healthier as my family will eat fruit or carrot sticks in a picnic but not at McDonalds. It's not relaxing as I have to keep passing out more grapes, etc but it keeps everything gluten-free.

Sometimes I put a few carrots or grapes in little baggies and label them with a big K. Then I have my safe carrot sticks and they can gluten up the bigger bag. This might work best with so many people.

You could get a little camp stove. Mine is big enough to make 4-6 burgers at once or many hot dogs. You could grill out lunches or at the hotel along the way.

Got interrupted by 16 yr old boy seeking food!

If it doesn't bother you to either watch the others eat at a restaurant or stay behind in the hotel or car, then do it. With that many people traveling, it might be nice to have a half hour of quiet! I know when I travel with 40 teens for Robotics, I enjoy staying back from dinner in my room and eating a snack dinner ( nuts, crackers, fruit, etc)

kareng Grand Master

Diana,

I just posted about this little food warmer. About $20 and I have seen them at Target in the last week or so. You might be able to get a car adapter and plug it in in the car to heat some soup or casserole for your trip. Freeze portions before you go so they will last a few days in a cooler.

bartfull Rising Star

Protecting your health is NEVER unreasonable. Do whatever you have to do, and if others don't understand that is their problem.

Takala Enthusiast

No, you're fine. Everyone has different levels of carefulness they need to practice, so they don't get sick. :)

tarnalberry Community Regular

It's your choice. A pain, maybe, but your choice. I do think, however, that means you have to figure out how to pack/travel so that you can have enough food, even if they choose to eat out too. For starters, I would suggest a roof rack!

dilettantesteph Collaborator

I am very sensitive and I can travel now. I have a small microwave and a cooler that plugs into the car that I can also plug in at a hotel. I am pretty much healed and have my diet figured out.

I can see how during the healing and figuring out process it would be difficult to travel. You need to give your health the importance that it deserves. Others need to appreciate the importance of that. The next trip might be better for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,940
    • Most Online (within 30 mins)
      7,748

    Madventures
    Newest Member
    Madventures
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      This is not a weakness.  It is a serious threat to your health.  I once read an interview with a representitive of a large company.  He proudly stated that his wheat based product is more addictive than potato chips.  The other issue is cultural.   Perhaps this book will help Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together.  It is published here on Celiac.com free to read.  Chapter 1 starts here Gluten-Centric Culture: The Commensality Conundrum - Chapter 1 - Are You Kidding? At first I ate anything, regardless of nutritional value. Fritos, M&M Peanuts, potato chips, fruit, steak; anything else. Like most habits, it takes about thirty days create the gluten free habit. Pretend you've moved to another country where the food is entirely different.  Don't try to recreate your old diet based from commercial gluten free foods.  Gluten free foods are not fortified, so be aware of vitamins and mineral intake, especially vitamin D.  Vitamin D deficiency is practically a given.  You probably already have deficits from the malabsorption caused by villi damage. Some symptoms respond immediately, others take time to heal.  I counted 19 different symptoms that got better.  Some, like permanent stuffed nose, I was told was normal for some people. Welcome aboard @Crossaint !  
    • cristiana
      Great advice from @trents.  A couple of other tips. Firstly, always try to have a good stock of gluten-free alternatives in the house so you aren't tempted to give in when there is nothing else available. Secondly,  as you will have noticed, gluten-free bread does taste quite different from regular bread.  But I think it was my GP who said making toast with it makes it taste much more like the usual stuff - and I would agree there. If you haven't already I suggest you give it a try. But remember, you will either need to toast it under a clean grill, or your Mom will need to buy you your own dedicated gluten-free toaster.
    • trents
      Welcome to the forum, @Crossaint! Are you living in the same home with your mother? Your experience with the cravings is very common in the celiac community, especially among the recently diagnosed. It might surprise you to hear this but gluten has addictive qualities much like opiates. It plugs into the same pleasure sensors as gluten in the brain and so for some people, there can be a significant withdrawal experience. It usually begins to subside in a matter of weeks but is perpetuated with inconsistency.  I think three major things need to happen for your to get on top of this: 1. You need to understand that more is at stake here than the number of bathroom trips you make if you can't stick to your gluten free diet. There can be some serious long-term health consequences such as osteoporosis, neurological damage, a host of medical conditions related to poor vitamin and mineral absorption and even small bowel lymphoma.  2. You need to help your mom understand how serious this is and how important it is to your long term health to be consistent in eating gluten free. Both you and she need to understand that celiac disease is not just a matter of inconvenience or discomfort from a little GI distress. It is an autoimmune disease that causes inflammation and damage to the lining of the small bowel that can have serious health consequences over time. 3. You need to redirect your mom's baking skills toward creating delicious gluten-free creations. Challenger her with it. Gluten-free does not have to mean "it tastes awful!" One good place to start is with a good gluten-free carrot cake recipe. Another is gluten-free zucchini bread. These are two things that taste just as good made with gluten-free flour as they do with wheat flour. There are a ton of good gluten-free recipes on the Internet. Not everything can be made to taste as good with gluten free ingredients as it does with wheat flour but many things are pretty close. And you know what? After a while, you adjust and many gluten-free foods become the new norm for you. You don't miss the wheat ones so bad anymore. Yes, you may still have flashbacks of "I remember what this or that wheat thing used to taste like and I really miss it" but not so often as time goes on. Check out the relevant sections on this forum for some good recipes and get your mom going on it for the sake of her kid.
    • Crossaint
      Was recently diagnosed with Celiac after almost 16 years of suffering. The first week gluten free was amazing, my brain was working, i wasnt as bloated, i even started to not have to use the toilet 12 times in an hour. Excellent! But i keep having uncontrollable cravings for gluten. My mom is an amazing baker, woth no sympathy for my weakness and live for food, so of cohrse i ended up eating a bunch of gluten today. i dont know how to stop, i know its poison but at the end of the day i just feel like i need it. Will be re attempting gluten free tomorrow, but im scared that i wont be able to stop myself from eating the deliciously poisonous devil that gluten is. 😞
    • Awol cast iron stomach
      I wanted to say hello, and add that  early in eating gluten free I had  to avoid processed foods due to too many ingredients. I also had additional intolerances that needed time to subside. My team suggested I limit gluten free processed foods, as I was having issues with items with too many ingredients. I see Trents explained some of the culprits when he responded.  I found it helpful to go whole foods  diet. When I need inspiration I found Paleo and AIP (Autoimmune Protocol) recipes helpful to offer variety to my palate.  Often our bodies in the early stages prefer we go whole foods/ minimal processed foods. In turn, I realized I prefer freshly made salad dressing which I still make to this day. My pocketbook also finds making my own has its benefits.    Best wishes.  
×
×
  • Create New...