Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Aspects Cause What Symptoms?


Em314

Recommended Posts

Em314 Explorer

I have tried to find info on this and have somehow failed in my endeavor, so I'm hoping someone can link me to something.

My question is this: Which of the symptoms of celiac are caused directly by reaction to gluten, vs. which are caused by secondary factors resulting from long-term gluten damage (ex. having a damaged digestive system, malabsorption/vit deficiencies/etc.).

It seems like some of this is known but some is not, and like there's also overlap (quite a bit, actually), and there are certainly outside factors which are commonly associated that end up confounding the question further, so I know this isn't as simple a question as it seems. I am curious about what the current understanding is, though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

My current (and personal) understanding is that reactions to gluten tend to be suddenly acute (D or C, aching bones and joints, migraines, dizziness, foggy thinking, swelling of the eye tissues, stuffy nose, etc., flu-like symptoms), whereas symptoms caused by malabsorption/nutritional deficiencies are more chronic: iron anemia, B12 deficiency (neuropathy, breathing difficulties, fatigue, etc.), night blindness, infertility, muscle and tendon issues, etc. There can also be further problems caused by auto-immune diseases that have been spawned by celiac, such as diabetes or thyroid problems. You should be tested often for these conditions and for nutritional deficiencies. I take Country Life Natural Vitamin D (which is easily absorbed because it contains Vitamin A and medium-chain triglycerides), a Vitamin B Complex plus a sublingual B12 supplement, chelated manganese, and a magnesium/calcium complex. Each person has individual needs, though, and you should establish what those are in your particular case.

Some symptoms may never resolve. In my case, I still have difficulty clotting due to my inability to absorb Vitamin K and I've been nightblind since the age of 11 due to malabsorption of Vitamin A.

IrishHeart Veteran

In addition to Rosetapper's excellent thoughts, may I suggest reading a copy of

Recognizing Celiac Disease by Cleo J. Libonati.

I think she really wrote it for health practitioners, but it is in layman's terms and I found it incredibly informative.

It helped me understand what had gone so horribly wrong in my own body from long unDXed celiac disease.

(all of the 65+ symptoms/conditions I suffered are in there)

It is a detailed explanation of what happens in the GI tract, the rest of the body and the resulting symptoms that occur from malabsorption. She explains vitamin/mineral deficiencies in plain English and how they can resolve.

Associated AI diseases and other complications are also discussed.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,477
    • Most Online (within 30 mins)
      7,748

    bwhntr1953
    Newest Member
    bwhntr1953
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.