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Are Celiacs Really Slowly Dying?

Scouts

By Scouts
in Super Sensitive People

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Scouts Newbie
Scouts
Posted

Has anyone read this article?

Open Original Shared Link

Disturbing. I am following the gluten-free diet but am still having stomach problems all the time. I am wondering if I am sensitive to other things as well. Has anyone else dealt with issues even after going gluten-free? My stomach is always upset and I am worried about my overall health. Why isn't gluten-free working?

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Opa3 Apprentice
Opa3
Posted

Has anyone read this article?

Open Original Shared Link

Disturbing. I am following the gluten-free diet but am still having stomach problems all the time. I am wondering if I am sensitive to other things as well. Has anyone else dealt with issues even after going gluten-free? My stomach is always upset and I am worried about my overall health. Why isn't gluten-free working?

Dear Scouts,

Yes, it's true but don't let it disturb you. I've been a Celiac for 30 years (since 1983). I'm still alive! Still strugle with GI issues( IBS, Gerd, Divertilosis?). I struggle with spelling too. :rolleyes: I relapsed in 2007(cheated). Again, in 2012(cross contamination suspected) If you could tell the forum more about your situation, that would be helpful. Afterall, that's what this forum is all about. Lots of members willing to help you.

My best wishes for a long and happy life. A healthy one is up to you.

GottaSki Mentor
GottaSki
Posted

Sure feels that way when I'm at my worst -- thannkfully I've experience miraculous improvement as well. I try to focus on the latter :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Anyone can make any disease sound horrific if they string together enough negative research. I am not saying it is not very very tough sometimes, and many people on the board have had massive health problems. But, many people go on and lead good long and happy lives too.

We sure do need more research, but I am unsure of the motivation of this particular author.

There is a broad spectrum across celiac disease. I would hate newbies to think they are not going to make it to tomorrow.

kareng Grand Master
kareng
Posted

I would question where they are getting these healing " statistics"? Many Celiacs have had repeat biopsies after 2 years and been found to be healed. Some don't bother to do that because they feel good and their blood work is good.

This link is to a site that wants to sell things, not a medical research site, so I take that into account. Not sure of the credentials of those two guys pictured, either.

Marilyn R Community Regular
Marilyn R
Posted

My dear mother lived until 87 years old with diagnosed celiac disease.

My suggestion is to be compliant and enjoy life to it's fullest.
mushroom Proficient
mushroom
Posted

Besides, we all start slowly dying from the day we are born :)

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dilettantesteph Collaborator
dilettantesteph
Posted

This blog talks about a study of people who experience symptoms while on a gluten free diet. Open Original Shared Link

You aren't alone there. I had that problem as well, and I have gotten rid of the symptoms by switching to a diet of mainly unprocessed foods, and by checking everything I eat with elimination/challenge diets. I put myself in the super sensitive celiac category.

Marilyn R Community Regular
Marilyn R
Posted

Besides, we all start slowly dying from the day we are born :)

Snort! Luv ya 'shroom! Happy New Year!

(Sorry, off topic.)

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      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
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