Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Certified Gluten Free Foods Safe?


Rubyrue

Recommended Posts

Rubyrue Newbie

I was recently dx with celiac and have great family support. Between my positive blood test and my endoscopy I spent a lot of time learning about celiac and what is safe. I read somewhere that certified gluten free foods were safe and have not read bag/box as long as I see the certified gluten free symbol. (I make my meals but like to have snacks available for busy days or just as a treat.) Over the holiday a family member bought me some flavored popcorn that was certified gluten free. I enjoyed two bowls of said popcorn and within hours I had a reaction. After I reviewed what I ate, the popcorn was the only new food item I had introduced so I knew that was it. After getting sick I read the bag, a lesson I have now learned and will always do from now on even if it is certified gluten free, it states that it is manufactured in a facility that also processes wheat. Groan.

Anyone else had a similar experience? Feeling overwhelmed again, after thinking I had a handle on this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

If something is " certified gluten free" it is probably tested for gluten. There are various tests but under 20 parts per million is considered safe for most Celiacs. Many companies use tests for less than 10 or even 5 ppm.

When I first went gluten-free, popcorn was very hard on my stomach. Corn seems to be hard to digest for me, especially in the beginning.

No company has to tell you if they also process wheat on the same machinery or in the same facility. That is voluntary. If you allow gluten in your kitchen or eat at another person's house or in a restaurant, you are eating food produced in a " shared facility".

psawyer Proficient

If you are recently diagnosed, your body has sustained damage caused by celiac disease. It will take time to heal--several months as a minimum. While you are healing, you may experience reactions that have nothing to do with gluten in your food, just that your intestines are still having trouble with everything.

dilettantesteph Collaborator

I have had a similar experience. Though 20 ppm is considered safe for most celiacs, that doesn't mean all celiacs. I had to find that out the hard way. Just because another can eat something won't necessarily mean that you can. There are also different standards for what certified gluten free means. It could be just that you are new to all this as mentioned above. You need to be patient. It takes time to figure this all out. Meanwhile, you health is improving every day. Even if you make a little mistake, it is much better than when you were eating a full gluten diet.

GFreeMO Proficient

Costco has some Lets Eat Pastry organic chocolate chip cookie dough that is certified gluten free. When you turn it over to read the ingredients in tiny tiny letters it says made on shared equipment with wheat.....I returned it. Its not worth it to me.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.