Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Toddler Had Gluten By Accident Help


Kellyrassy

Recommended Posts

Kellyrassy Newbie

Wednesday my son who has been gluten-free for 7 months was served meatballs at school. Since he has been so gassy, big bloated belly and diarrhea not interested in eating much. Today he seems very lethargic and had the worst rash on his bottom area. He keeps moaning and his eyes look tired. Is this all from the meatballs? How long can i expect this to be going on, the lethargic mood is freaking me out. Help please!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

We are all different. The symptoms you describe can all be related to the accidental gluten exposure. It is possible that he also has a bug.

Personally, I remain very lethargic for several days. Try to get him to drink a good amount of water.

Kellyrassy Newbie

Thanks so much for the feedback!

tarnalberry Community Regular

I would expect it to be gluten from the meatballs - they almost always have breadcrumbs in them.

Kellyrassy Newbie

Thank you, how long does this reaction last typically? A couple days? Weeks? Month??

LFitts Apprentice

I wish I could help but I am nearly in tears tonight because my 9 year old is suffering again tonight and I am so sick of this. We have read every label and prepared everything so carefully. I have no idea what got her this time, no clue. Either a label was wrong or she is just super-sensitive to cross-contamination in our house. I have had it. I am ready to just put the whole family on raw veggies. The first few weeks seemed easy and she was feeling so much better, now she's having a mysterious accidental exposure of some sort every couple of days! When will this get easier???

Kellyrassy Newbie

I am so sorry to hear about your 9 year old, it's so awful to see them suffer especially when you working so hard at a gluten-free lifestyle. How long have you been gluten-free? Could it be at school or something? What are her symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Good Morning Kelly!

Unfortunately there is no set time - for some it passes in hours and others days -- worst case and not common is weeks. It really depends on so many factors -- the meatballs may have tasted yummy so he may have ingested quite a few? As time gluten-free increases - the reactions often become worse to smaller and smaller amounts of gluten -- hence the very real problem of cross contamination that is the bane of our existence.

Welcome LFitts!

So sorry to hear your family is having such a rough time. It really does get better -- as a family you will learn the level of care needed to keep your child healthy and I assure you there are many, many wonderful and tasty gluten-free options -- most of start with whole ingredients. If you haven't had oportunity - take a look at the Newbie 101 thread -- this is filled with great information that will help ease the transition -- I won't lie - the transition is very tough, but as time passes it does get much easier.

First thing to look at in a shared kitchen is cookware, cooking utensils, toaster, cutting board, collender, etc. If these items are being shared for both gluten-free and regular cooking you have a problem. A great way to start is have a second set of cookware/utensils in a bright color so that everyone knows to only use them for gluten-free items.

Hang in there - both of you -- I promise - it does get easier :)

kareng Grand Master

First thing to look at in a shared kitchen is cookware, cooking utensils, toaster, cutting board, collender, etc. If these items are being shared for both gluten-free and regular cooking you have a problem. A great way to start is have a second set of cookware/utensils in a bright color so that everyone knows to only use them for gluten-free items.

Hang in there - both of you -- I promise - it does get easier :)

Also - no sharing PB, butter, Mayo, etc between gluten eaters and non-gluten eaters. Get some colored duct tape and put a big piece on every gluten-free only thing like peanut butter, etc. You can use it on the handles of a colander if you can't find different colored ones. My hub looked al over for a red one for gluten-free as most were white plastic. Before that, I put my red tape on the handles of a white one.

bartfull Rising Star

LFitts, it isn't uncommon for us to show great improvement at first, and then to slide back into being sick. Some of it could be due to other (most likely temporary) intolerances, and some of it could just be the body is still healing. Definitely check for cross contamination, but if you find that there is no chance of it, just give it time. And DO keep a food diary. That way if there are other things that are bothering her such as dairy, corn, or soy (common culprits), you can try eliminating them and see if she improves.

LFitts Apprentice

Also - no sharing PB, butter, Mayo, etc between gluten eaters and non-gluten eaters. Get some colored duct tape and put a big piece on every gluten-free only thing like peanut butter, etc. You can use it on the handles of a colander if you can't find different colored ones. My hub looked al over for a red one for gluten-free as most were white plastic. Before that, I put my red tape on the handles of a white one.

Thanks everyone for the encouraging words. Our daughter was diagnosed in November with celiac, so we're about 5 weeks into her being gluten free. At first it was great, but now she's having severe stomach cramping and other pre-gluten-free problems (itchy rash, feeling blah) about once every 3 days and her symptoms last about half a day. I think that maybe several things in our house are / were contaminated - peanut butter, butter, even yogurt. I don't know -- I am sensing gluten molecules everywhere - making me crazy. I keep wiping down everything. What makes it worse is that I make cakes for people. I'm trying to wrap that up and just finish the ones that I am obligated to do because I feel like every time I turn on the mixer I am filling our house with poison. Certainly all of the joy/fun has left my once lucrative side job.

She is feeling great today and we are eating simply today and being careful, fingers crossed.

GottaSki Mentor

Thanks everyone for the encouraging words. Our daughter was diagnosed in November with celiac, so we're about 5 weeks into her being gluten free. At first it was great, but now she's having severe stomach cramping and other pre-gluten-free problems (itchy rash, feeling blah) about once every 3 days and her symptoms last about half a day. I think that maybe several things in our house are / were contaminated - peanut butter, butter, even yogurt. I don't know -- I am sensing gluten molecules everywhere - making me crazy. I keep wiping down everything. What makes it worse is that I make cakes for people. I'm trying to wrap that up and just finish the ones that I am obligated to do because I feel like every time I turn on the mixer I am filling our house with poison. Certainly all of the joy/fun has left my once lucrative side job.

She is feeling great today and we are eating simply today and being careful, fingers crossed.

Might want to try replacing your All Purpose Flour with a gluten-free version -- I use all my old cake recipes with Bob's Red Mill -- others don't care for BRM, but like Pamela's or others. Gluten eaters eat my cakes all the time and have no idea it is gluten-free until I tell them.

kareng Grand Master

Can you mix with the flour in an enclosed small space away from the kitchen? If not , just remember that it can take at least 24 for the flour floating in the air to settle. That means, anything sitting on the counters, like a water cup or a bowl of fruit, could have a layer of flour.

Takala Enthusiast

Hey, LFitts, hang in there. Paper towels, paper towels, paper towels ! You may, in the near future, be making yummy gluten free cakes, with your new, dedicated gluten free mixer and baking pans. There is this demand, you know, especially for "mixed" families and special occasions. Plus your daughter might just be reacting to something like soy flour - OMG, the first time I had a major hit of that stuff, I had eaten a bunch of cookies after a long, cookieless drought, and it nearly knocked me out flat. Talk about classic conditioning and motivation, I still shudder when I see that brand in the stores and think "No Cookie" and head over to the gelato in the frozen case aisle. :P

Celiac Mindwarp Community Regular

It looks like you may get to be your neighborhood gluten-free baker then! It takes some practice but many people actually prefer it. My husband even made eclairs recently ( we are in the UK and just substitute Doves Farm gluten-free flours).

I hope you track down what is affecting your daughter. I did well for a couple of months, then got hit 5.times in 6 weeks. We are a mixed house, but only bake gluten-free now. We got better at cleaning up, use lots of kitchen paper now. I am also eating more completely whole food and so nothing processed.

It takes time to work it out, but you will get there.

Good luck

GretaJane Newbie

You need to stop baking with the gluten containing flours. The dust gets everywhere. Kids touch everything and put their fingers in their mouths or eat something without washing their hands. i'm sorry for your loss of baking as you know it. Good luck!!! Its long learning process that your child inevitably will have to suffer through. I've made so many mistakes that leave me crying to have hurt my child.

GFinDC Veteran

Making gluten-free cakes is easy. You can get Betty Crocker gluten-free cake mixes at some grocery stores. The yellow cake mix was little gritty to me so I used to add a banana to it. It does have potato starch in it so it you are avoiding nightshades they don't work.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.