Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accutane?


kareng

Recommended Posts

kareng Grand Master

My teenage son has tried the standard antibiotic and gel treatments for his acne and it isn't working well. Understandably, they don't want to continue the antibiotics. They want him to try Accutane. Does anyone know any studies about it being linked to the expressing of the Celiac gene ( causing Celiac disease)?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Among the many nasty side effects of Accutane (liver disease, depression, headaches, etc) , it has been linked to AI bowel diseases such as Crohn's, ulcerative colitis and IBD (inflammatory bowel disease).

This is one article suggesting a link to it causing problems for people with celiac and possibly activating it.

Open Original Shared Link

Don't they have any other alternatives for him. K? :(

kareng Grand Master

No. Accutane is the only real " cure". He has had the range of antibiotics they give and that can cause issues, too.

Gemini Experienced

My teenage son has tried the standard antibiotic and gel treatments for his acne and it isn't working well. Understandably, they don't want to continue the antibiotics. They want him to try Accutane. Does anyone know any studies about it being linked to the expressing of the Celiac gene ( causing Celiac disease)?

Please, please do not let him take Accutane! It can and does cause severe GI problems. There have been numerous lawsuits from patients who suffered severe illnesses caused by this drug. It should be yanked from the market.

Other problems with it, it completely dries up your oil glands, which is not always the cause of acne. It can affect tear production so your eyes get dry and that is permanent. You have problems with dry skin for the rest of your life. This is bad stuff and the medical profession lies about side effects.

Kareng.....I had acne before my celiac diagnosis and they pressured me into taking it. I refused after doing some homework on it. Good thing, because I have Sjogren's so the Accutane would have added to my dry eye problems and made them a lot worse. What really ticked me off was after being gluten-free for 2 months, my face cleared up completely and never have had a problem since. It was the wheat that caused my problems so are you sure your son doesn't have a wheat issue?

kareng Grand Master

Please, please do not let him take Accutane! It can and does cause severe GI problems. There have been numerous lawsuits from patients who suffered severe illnesses caused by this drug. It should be yanked from the market.

Other problems with it, it completely dries up your oil glands, which is not always the cause of acne. It can affect tear production so your eyes get dry and that is permanent. You have problems with dry skin for the rest of your life. This is bad stuff and the medical profession lies about side effects.

Kareng.....I had acne before my celiac diagnosis and they pressured me into taking it. I refused after doing some homework on it. Good thing, because I have Sjogren's so the Accutane would have added to my dry eye problems and made them a lot worse. What really ticked me off was after being gluten-free for 2 months, my face cleared up completely and never have had a problem since. It was the wheat that caused my problems so are you sure your son doesn't have a wheat issue?

We are thinking about trying the blue light treatments. They are not covered by insurance and will be at least $1000. But hub pointed out that he didn't need braces so we owe him at least $5000 in cosmetic procedures. :)

He eats a lot gluten-free. The time his skin cleared up without meds was when he was camping and never used his sunscreen. This makes us think the light treatment might be beneficial. He would continue his face gel that kills germs with it, I think.

allergyprone Contributor

I would stay away from accutane I have 2 friends that took it and after finishing treatment they both became allergic to fragrances. one of my friends gets hives when she goes near/uses fragrances like lotions or candles, and the other gets a migrain and her skin itches even though she doesn't get hives. they also say that their skin is a lot more sensitive now as well.

I hope you find something that helps, my acne cleared up when I went completely gluten free.

Good luck

AP

frieze Community Regular

he may need a much more limited diet, Vit D. probiotics, digestive enzymes. Just acne, or perhaps 'acne inversa'?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ynot Newbie

I took accutane in my late teens. All I can say is my health started going downhill after the treatment. I'm not sure if there is any connection, but I do regret my decision to take it.

Knowing what I know now, the first thing I would do is get all my vitamin levels checked and supplement where necessary. Don't take the doctor's word that everything is fine. Look at the numbers, do the research, and make your decisions. This, along with a diet changes, has a good chance of improving the situation ( maybe even curing it ) and carries none of the risks of an Accutane treatment. Things that seem to improve acne in some people are Vitamin A ( the animal form ), zinc, Vitamin D, some of the B vitamins....

Your son can always take Accutane later, but I would suggest seeking out less risky solutions first.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,047
    • Most Online (within 30 mins)
      7,748

    terri migut
    Newest Member
    terri migut
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.