Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance Post Partum, Now Concerned With Getting Pregnant


chexpaints

Recommended Posts

chexpaints Newbie

I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jebby Enthusiast

I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?

Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

chexpaints Newbie

Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

Awe, thanks! That does make me feel better. I want to believe that my post partum reactions were due to gluten intolerance onset. But this nagging feeling of what if it was a hormone imbalance keeps me hesitant. I sure don't want to be sick like that again! I was practically helpless with 3 kids and an infant.

jebby Enthusiast

Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

chexpaints Newbie

Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

Yes, I was thoroughly tested by two different doctors. Both said my thyroid is just fine.

  • 2 months later...
wheatsucksbigd Newbie

Celiac runs in my family and I didn't have symptoms like yours till the second tri with my first baby. What I have found out is that along with the new wheat issue that even though my thyroid is fine that I had high levels of thyroid peroxidase antibodies. From what I can tell this is related to food intolerances and could be what compounded your symptoms. I think if you continue to avoid the trigger foods you should minimize most all of those problems.. in theory :). I would recommend doing a Google search for 'food allergies and autoimmune thyroid disease' for some further insight. May even recommend doing a blood test. I am researching places but read that metamatrix laboratories will do tests on IgGE (true allergies) and IgG4 (delayed allergies). We are planning on trying for our second child and since I am only 2 months into cutting out gluten I will be waiting. I think if you have a good grasp on your health that you are ahead of the game. I would recommend checking out raspberry leaf for warding off a miscarriage. And make sure your vitamins are gluten free.

Celiac Mindwarp Community Regular

Just to note, some sources say to avoid raspberry leaf tea for the first or first and second trimester if you have a history of miscarriage.

There seem to be some contradictions on the quick internet scan I did, so you would want to be sure of sound medical advice which you are happy using if you want to try it.

There are some contraindications for the third trimester, so you need to know if it suits your particular circumstances.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
Rowena Rising Star

I am gluten intolerant myself, and I went undiagnosed for a long time.  (Not for lack of trying either.)  Shortly after I got married, I got pregnant, but miscarried, and it gave me hell, and my gluten intolerance also got worse.  Until I was diagnosed a year and a half later, I didn't even have regular cycles.  Hell, I didn't even HAVE a cycle.  We thought I had actually gone infertile.   But then when I was diagnosed, I got my cycle back, and a year and a half later I was pregnant again.  (Though I didn't realize it because I thought I had just eaten gluten too close to when I should have gotten my period.  I missed TWO periods before I found out.)

So, it may be different for everyone, but I do think you shouldn't worry about the gluten.  It really is the age that is more the concern for you I would think.

Gluten on my pregnancy actually in the last few months didn't affect me so much, in fact I HAD to eat it despite knowing I really shouldn't because my baby seemed to be unsatisfied unless I did.  Though I did absolutely refuse to eat it most of my pregnancy because of my miscarry.  But I think the gluten didn't bother me as much because of the fact I didn't keep anything down anyway, and your stomach gets so squished by the end and you pee everything out so fast anyway that I don't think it had time to affect me.

  • 1 month later...
chexpaints Newbie

Any others with this experience?  I'm very interested.  I'm just scared of being super sick should I get pregnant again...  So I'd love to hear other's experiences of those that had gluten intolerance onset postpartum and how it went with being gluten free on any subsequent pregnancies.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,672
    • Most Online (within 30 mins)
      7,748

    Doskocilr
    Newest Member
    Doskocilr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      @Joe R Thanks for clarifying! That's what I've heard, too, about Italy, but I've never been, sad face. Almost no one on these boards would recommend the approach of your GI doc, and would instead stick with yours. (Maybe if a "glutening" causes so many discomforts and inconveniences that it just overwhelms your life, and you have nothing else to do...maybe.) But, generally in the clinical setting, coming off prednisone requires a taper, as suddenly quitting can cause problems. Anyway, good for you!
    • Joe R
      I am 58 years old and was diagnosed two years ago with Celiac Disease based on an EGD showing lymphocytic infiltrates and blunted villi in my duodenum. Lab work shows a severe IgA deficiency. Is it worthwhile to consult with an immunologist regarding the IgA deficiency?  I don’t seem to have any chronic sinus issues or infections but feel like I should get more information regarding the consequences of not having IgA from an expert. I live in Atlanta and surprisingly I have yet to find an immunologist that specializes in this area. Does anyone have a suggestion as to who I con consult with?  I’m sure that telemedicine consults can easily be accomplished these days if I can’t find a local expert. 
    • Jmartes71
      I was diagnosed in 1994 with celiac disease by Kaiser with biopsy and was told to stay away from wheat and I'll be just fine.I have and Im not.Had my first baby in 94 and my tolerance level was horrible.Having a celiac episode we all know how its horrible with the vomiting and digestive issues. Never googled because internet wasn't around.Still pushing through that's my normal.In 2001 was busy with my sick baby that went through the ringer with severe chronic Neutropenia it was horrible times he out grew it now almost 24 years old this month. In 2007 still digestive issues had blood drawn and have many food allergies.  told my primary im celiac ( i had primary Dr 25 YEARS up til May 2025.My savior was tramadel thats what my doctor gave me and thats what ive been on up til 2023 stopped when i got covid for the 3rd time to give my body a break. Been through  every test.Gi Dr as well who said I wasn't. celiac in 2024 Ive been glutenfree for 30 years at the time now 31 years. Im going to Standford this year and had breath test and sibo which is positive. I have ulcers on my body and I asked how when it was diagnosed as staph 4 years ago, not wanting to admit its from my dismissed celiac condition. Currently dealing with that.My last job was a bus driver last day of work was in March 2023. I was released from my job because of being out so long dealing with health issues. Disability is not helping at all, no income stressed.Currently doing more test and will be going under again next month with new GI doctor at Standford. Depressed because Im literally falling apart and it seems as if menopause is activating it more.Not eating what im not supposed too,always feeling full, tired, eye sensitivity to sunlight, constant bumps in back of my throat, pain down my left leg. Going through more test.Why is it so hard to get help or is it because I was dismissed all these decades?Should I take legal action?Im Currently not doing well which is keeping me from holding a job and im getting older.I can't push through anymore.Im very much into natural supplements that help but im still declining with one thing after another. What miracle will help so I can get back in the production line to make money.
    • Joe R
      That was the suggestion from my GI doc but I never book the medicine and maintained a strict gluten free diet. Actually, Italy is much more sensitive to gluten free diets than the US, I found. 
    • plumbago
      @Joe R are you saying that while traveling in Italy as a person with Celiac disease, you are eating gluten-containing foods and taking prednisone to dampen down the flares? Plumbago
×
×
  • Create New...