Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I've Been Glutened

Eliza13

By Eliza13
in Coping with Celiac Disease

Recommended Posts

Eliza13 Contributor
Eliza13
Posted

I've been gluten-free for a couple of weeks now, but I'm pretty sure I've been glutened tonight. Seems like the longer I go without the junk/poison, the worse I feel when I have it.

I feel like throwing up and I can feel the acid burning. When I throw up now since going gluten-free, the acid is really strong...burns my nose and mouth really bad. Is it possible that I have something else happening (gallbladder, pancreas), or is throwing up part of having celiac.

Skar.

:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

I get that burning vomiting when I've been glutened...no fun... especially when it comes out my nose!

sorry you are feeling badly

Eliza13 Contributor
Eliza13
Posted
  • Author

I swear I'm gonna stick to fruits and veggies. Went to the store to buy kale and spinach. I won't get glutened this way, and I'll finally lose that 35 lbs. Not sure what caused it, but I did buy some pork tenderloin and am wondering if it was hidden in it somehow....there was a weird ingredient...will have to retrieve the label.

You know it really sucks when we even have to worry about meat.

Skar.

Guest nini
Guest nini
Posted

we do have to be so freakin careful!!!

happygirl Collaborator
happygirl
Posted

Take care!

KaitiUSA Enthusiast
KaitiUSA
Posted

Yea, the longer I was gluten free the more sensitive I became. Now when I am glutened I get nausea along with some other symptoms but I do not get vomiting so I do not know exactly what you are going through but I know how it is to feel bad.

Feel better and just be careful with reading labels and so forth. You should get the lists available...the 79 page list of foods and products gluten free status, and the mainstreams brands that will not hide anything and clearly put wheat,rye,barley,oats on the label or be safe...they will be extra helpful. You need the safe/forbidden list too if you have not got that yet.

Eliza13 Contributor
Eliza13
Posted
  • Author

Thanks guys for the kink words. This is not something to take lightly. I swear to never have gluten knowingly again, and I am going to be extra vigilant so that this doesn't re-occur. This is scary stuff....

My aunt just had surgery for barrett's ring....two of my aunt's have major hair loss...another one has fibromyalgia and bi-polar, my bro has schizophrenia, my mom and aunt have hypothyroidism....and the list goes on and on. They are all on my mother's side of the family. My mom says she was told 30 years ago that she has an "allergy" to wheat, but I am wondering if she even understood what she was told (she immigrated to Canada at that time, and did not and does not speak the best English). Then there is me with all of my health problems. I don't intend on being like my mom and aunt's at their age...I'm stopping this now. I've tried to tell them that they need to get tested, to no avail. At least I know that I can help myself.

B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

skar-

hope you feel better soon!

cornbread Explorer
cornbread
Posted

Feel better skar! :( I got glutened SO many times when I was just starting out gluten-free. For me it was cross-contamination every single time - I'd pick something that was safe but because I was eating out every day I got sick about once a week. The solution I've found is to stock up on good healthful fresh food (veg, meat, fish, eggs, fruit) and cook at home. Nothing but basics get into the house, nothing that's been basted or marinated, just plain meat and fish. Then I spice things up (safely) using ingredients I know are safe. A good side-effect to this new necessity of life has been becoming a decent cook!

It's a shame your relatvies won't get tested. It's incredibly frustrating when you *know* this is what someone has (esp. a relative because gene-wise they most probably do have the same thing as you...) Why don't people at least want to try to feel better?

nettiebeads Apprentice
nettiebeads
Posted
Thanks guys for the kink words.  This is not something to take lightly.  I swear to never have gluten knowingly again, and I am going to be extra vigilant so that this doesn't re-occur.  This is scary stuff....

My aunt just had surgery for barrett's ring....two of my aunt's have major hair loss...another one has fibromyalgia and bi-polar, my bro has schizophrenia, my mom and aunt have hypothyroidism....and the list goes on and on.  They are all on my mother's side of the family.  My mom says she was told 30 years ago that she has an "allergy" to wheat, but I am wondering if she even understood what she was told (she immigrated to Canada at that time, and did not and does not speak the best English).  Then there is me with all of my health problems.  I don't intend on being like my mom and aunt's at their age...I'm stopping this now.  I've tried to tell them that they need to get tested, to no avail.  At least I know that I can help myself.

B)

<{POST_SNAPBACK}>

what's barrett's ring?

I'm glad you are trying to mend your body. Maybe when they see the new improved you with your new improved health they might consider it. You can't force them, but try to gently, continuously persuade them. Here's to health! :)

Eliza13 Contributor
Eliza13
Posted
  • Author

Long-term GERD can sometimes lead to Barrett's esophagus, a condition in which the color and composition of the cells lining your lower esophagus change because of repeated exposure to stomach acid.

Barrett's esophagus is uncommon. Only a small percentage of people with GERD develop Barrett's esophagus. But once Barrett's esophagus is diagnosed, there's a greater risk of developing esophageal cancer, which often spreads from the esophagus to lymph nodes and to other organs.

As far as healing goes, my stomach is as big as a house today and full of gas. Hope I feel better tomorrow.

SKAR

nogluten- Newbie
nogluten-
Posted

Skarlet,

I hope you feel better. Do you have any zantac, prevacid or anything like that? That heartburn/reflux pain is miserable.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,140
    • Most Online (within 30 mins)
      7,748
    Staticgypsy
    Newest Member
    Staticgypsy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.