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Hi I'm New :)

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come dance with me Enthusiast
come dance with me
Posted

Hello! I'm new here :)

My 7yo was diagnosed earlier this year so I'm still learning about it all.

Thought I'd introduce myself here first.

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Darn210 Enthusiast
Darn210
Posted

Welcome c.d.w.m.

Lots of friendly people and helpful advice reside here.

Make yourself at home.

come dance with me Enthusiast
come dance with me
Posted
  • Author

Thanks! I'm getting used to posting but not seeing it come up haha. Take a bit to get used to hey. I've had a read and it seems like a very informative place :)

Hawthorn Rookie
Hawthorn
Posted

Hello and welcome :)

Mummyto3 Contributor
Mummyto3
Posted

Hi, I'm another newbie. Been on here a month I think. My 9yr old daughter was diagnosed on 7th June, biopsy is on Tues but as her levels were very high, they're sure she'll test pos on biopsy. She has all the symptoms.

come dance with me Enthusiast
come dance with me
Posted
  • Author

Thank you for the welcome!

Mummyto3 I hope it all goes well for you on Tuesday. I also hope that the new diet is ok and she copes with the change well. Mine had trouble with that part of it but she's ok with it now for the most part. The bread is a bit of an issue for her still after she was used to the regular bread for so long!

Mummyto3 Contributor
Mummyto3
Posted

Thank you for the welcome!

Mummyto3 I hope it all goes well for you on Tuesday. I also hope that the new diet is ok and she copes with the change well. Mine had trouble with that part of it but she's ok with it now for the most part. The bread is a bit of an issue for her still after she was used to the regular bread for so long!

Yes, the bread! lol That's probably going to be the hardest change. I'm constantly looking at labels and foods, I'm surprised I'm not dreaming of it! thanks for the good luck on Tues, not long now eek!

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come dance with me Enthusiast
come dance with me
Posted
  • Author

You can get a mix from Coles called Easy Baker which is gluten free and dairy free and you can get it in white or grain then make it yourself at home. I bought a bread maker but also make bread roll from it in the oven and now getting creative and make things with it like once I put olives through it and once I put stewed apples through it with cinnamon!

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      Is "Shield" skincare products gluten-free?

      By trents · Posted

      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
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      By Ginger38 · Posted

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    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      Is "Shield" skincare products gluten-free?

      By Scott Adams · Posted

      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
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