Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If Looks Could Kill


Adalaide

Recommended Posts

Adalaide Mentor

I'd be dead. My husband had an appointment today with his endocrinologist today and I always tag along so I know firsthand what I need to know. Over the last few years he has been having increasing trouble controlling his blood sugar. During this time he has also had increasing bowel issues. Last fall he was told he has IBS. His mother is constantly weak, tired and has been battling lymphoma for many years.

So, unable to keep my mouth shut as the doctor offered suggestions I asked if it was possible that celiac could contribute to his increasing troubles with his spikes and lows. The doctor filled out the paperwork for blood work while my husband glared at me. Now I wouldn't wish celiac on anyone, but I also don't want to spend a decade watching my husband die of cancer while losing his feet a toe at a time and counting the days til he ends up on dialysis. (Okay, morbid but I this sort of thing just pops in my head.)

As an extremely picky eater, he would have significantly more trouble adjusting to a gluten free diet than I did. The doctor did suggest that even if the blood tests are negative that it wouldn't hurt to go gluten free and see if symptoms improve and if they do to try a little gluten again and if he gets sick again that it's obviously celiac. He mentioned that it's far easier today than it would have been a decade ago, although I doubt my husband finds that encouraging. (I could have kissed him, I didn't imagine I'd ever talk to a doctor who knows half as much as my limited knowledge of celiac.) All that's left for me to do is convince my husband, regardless of the test results, to go through with at least trying a gluten free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I would have done the same in your shoes. Those symptoms are just too closely related to gluten intolerance/celiac.

Kisses to that endo!! :lol:

However, since you are already gluten-free, converting the two of them will not be more work for you, in fact it will be less. (As I recall, MIL lives with you guys?)

Ask him to give it a go (no cheating!) for one month. That's it.

Make some special treats and he'll be hooked on gluten-free foods.

Bet him his blood sugars and bowel issues start to resolve.

and I bet....You will win this bet. :)

Adalaide Mentor

I wish she lived with us, but no, it's her house. She wouldn't entertain the idea of making these changes in her life and frankly we don't have the kind of relationship where I would be even remotely comfortable talking to her about it. She's still convinced that all of my health problems are because of my bunny.

Right now I'm just hoping the test results come back positive. If they don't my husband will probably spout off about how I'm wrong (even though I'm not) and that will be the end of that. I did make Rice Krispie treats tonight which are one of his favorite snacks, hopefully I'll convert him one way or another. The logistics will be much easier but it'll be like trying to feed a picky toddler. :lol:

AVR1962 Collaborator

Good for you Adalaide, I don't know why some people wnat to close their ears but you are opening to options, options which are all good to investigate. My husband's health is not as good as it could be, has had a life-long issue with allergies and just keeps taking meds. I have repeated aske him if her thought about actually finding out what is causing hime issues and he repeatedly drgas his feet.

If the results don't come back positive and he starts with the "I told you so," at least you now know and there is no longer the guessing game.

Juliebove Rising Star

Have they looked at possible gastroparesis? I have it. It can make blood sugar very hard to control. Mine started out with bowel troubles and then progressed to throwing up.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,106
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.