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  1. trents

    trents

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Showing content with the highest reputation on 01/20/2025 in all areas

  1. trents
    Another factor revealed in your test results is that you are IGA deficient. Look at the line: Immunoglobulin A, Qn, Serum 35 (L) Reference range: 87 - 352 We also call that "total IGA". IGA deficiency results on in artificially low scores in the individual IGA celiac antibody test scores. In other words, the test score for the tTG-IGA would...
    2 points
  2. trents
    You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but...
    1 point
  3. Rogol72
    Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...
    1 point
  4. trents
    https://www.healthline.com/health/at-home-celiac-test#_noHeaderPrefixedContent
    1 point
  5. Scott Adams
    This article has some detailed information on how to be 100% gluten-free, so it may be helpful:
    1 point
  6. Philly224
    Thank you! Kind of starting to accept that, sucks but id rather switch to a gluten-free diet now than regret it later. I'll probably just listen to this Dr for now and go on a gluten-free diet, I have an appointment in May with a Dr that specializes in celiac so im hoping I will have a better experience there.
    1 point
  7. Philly224
    Thank you so much for the detailed reply! I was just eating my normal diet so wasn't going out of my way to eat gluten. The week before my blood test I actually had a stomach virus so I wasn't eating much of anything so I do wonder if that contributed at all. Before the biopsy I was just eating my normal amount of gluten, I would say two slices of bread per...
    1 point
  8. DebJ14
    My iron was not low, but my B-12 levels were extremely low. I had zero energy. I had micronutrient testing and I was put on a boatload of supplements. Everything recovered pretty quickly except for my D, B12 and antioxidant levels. The doctor ordered genetic testing and found that I have a genetic inability to process all three. Thus, my dosages were...
    1 point
  9. trents
    Welcome to the forum, @Morgan Tiernan! I find it outrageous that your physicians refused to test you for celiac disease despite what were obviously outbreaks of dermatitis herpetiformis. Every physician should know that dermatitis herpetiformis is a classic symptom of celiac disease! In fact, celiac disease is the only known cause for dermatitis herpetiformis...
    1 point
  10. Matt13
    Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so...
    1 point
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      Is there a minimum time since diagnosis of refractory celiac disease?  I really hope I’m not eligible for your study, but looking for it is one reason my gastroenterologist suggested an endoscopy. I’m having it later this month, due to still having GI symptoms on a strict gluten free diet.
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      There's a company called thistle subscription based food completely gluten free plant based. They offer juices, juice shots. I was wondering has anyone made their own juices shots for anti inflammatory gut healthy juices etc? 
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      Anyone diagnosed with Refractory Coeliac Disease can participate (they do not need to be in the UK but would need to be able to speak and understand English as the intervention is facilitated in English language)
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      Is this only for those in the UK, or can anyone diagnosed with celiac disease participate?
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