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Aerin328

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Everything posted by Aerin328

  1. Aerin328

    Happy birthday and may God bless you today!

  2. Aerin328
    Grey, I have to reiterate this. It can take a long, long time to recover from this frustrating illness. It took me about 6 months before I started to feel "more" normal, and about 10 months I'd say until I at least had days where I had energy for a day (or even a few) at a time. 1 Year being gluten-free has found me better than ever before - the days I feel...
  3. Aerin328
    Brian, Yes, I took them together and decided "I don't know what it is but I'm not comfortable." lol Today I began digestive enzymes and I have ordered a probiotic. I appreciate everyone's comments. This darn disease is so frustrating at times - always second guessing where the gluten could be, always second guessing potential negative affects of other...
  4. Aerin328
    I am a recovering celiac, 7 months gluten-free and still healing. I have great days (finally, yeah!) but I definitely still have a good number of crappy days. GI symptoms are gone, but I still struggle with fatigue and brain fog. In my quest for total healing I've heard several times "All Celiacs should be on digestive enzymes and probiotic supplements."...
  5. Aerin328
    Could also be the caffeine - I know a couple celiacs who can't take caffeine in any form b/c it irritates their stomach. This probably isn't true for most but just a thought.
  6. Aerin328
    Just getting a burger pattie at McDonalds is very dangerous b/c the grill itself can be cross-contaminated. There is just too much gluten flying around in that place! Also, as posted by others, it may be fried with glutenous foods, and thus cross-contaminate it. And ketchup is also glutenous. Unfortunately I try to avoid McD altogether :/
  7. Aerin328
    Joni, welcome! Just a response on the "how long does it take to regulate" question. As our Celiac veteran Lisa stated, it can take any varied amount of time. I have found, and read about others who have similarly experienced, that gastrointestinal issues should subside within a few weeks. However, the anti-gliadin antibodies which can trigger certain system...
  8. Aerin328
    Allyson, Again, welcome! In your initial post you commented that you are still fatigued. I have found, and have read posts and replies from other people who have found, that fatigue and brain fog seem to be the *last* symptoms to retreat. In fact the immune reaction can continue as long as 1-2 years after going gluten-free b/c the antibodies remain in the...
  9. Aerin328

    ARCHIVED Torture!

    Aerin328 replied to GeoffCJ's topic in Coping with Celiac Disease

    Aye, it's torture. But I guess self-control is good for the soul. (Not that that's a huge comfort when you're drooling over delicious pizza, but you know what I mean). Hang in there!
  10. Aerin328
    I am moved by the bravery so many people have demonstrating in surviving such terrible ordeals with positive attitudes. Celiac disease is a terrible thing, but for those of us who survive and conquer, our perspectives benefit beyond that which other people may understand. My own brief story: I experienced a childhood of lasting fatigue, allergies...
  11. Aerin328
    Many who visit this site are in the maelstrom of celiac suffering. Those of us who have gone through it know there is nothing worse - it seems to attack not only your body, but your mind, making you feel like you'll never escape. But there is hope, the body DOES heal. When the fog lifts and health returns, it's absolutely amazing the difference. To...
  12. Aerin328
    Celiac disease is a long-term illness that requires long-term healing. If you just went off gluten 2 months ago your body is probably still in quite a tizzy, and even more sensitive to gluten than before. I've read in a couple places it takes 1-2 years for the antibodies to leave the blood and for the immune system to break its self-traumatizing cycle.....
  13. Aerin328
    It's really hard to face, and difficult to do. But as the previous poster commented, you don't want to wait until it is too late. I was healthy for years, and then *bam*- I was bed-ridden for months. Auto-immune illness is terrible to escape from once you're in its cycle, so try to avoid getting sucked into the cycle! Go gluten-free! All here will be available...
  14. Aerin328
    Hold out Daisy. Gluten causes your immune system to do crazy things to your body chemistry and brain - emotional distress is definitely a symptom. Just have patience and strength knowing it WILL pass (even though it doesn't feel like it ever will). Good luck!
  15. Aerin328
    I also find that going gluten-free has helped me get sick a lot less ; and when a real cold does take hold it seems to be defeated much faster. Celiac's can manifest itself in MANY ways, so I wouldn't be surprised if it was glutenous reaction. However maybe you caught it a few days/ a week ago and b/c of the glutening your system was unable to defend. Either...
  16. Aerin328
    I can understand how terrible getting contaminated can be. Don't lose hope - you will learn as you go forward and things get easier. You can always come to this site when you have questions or frustrations. Good luck, and know that you are not alone!
  17. Aerin328
    Thank you for the link, very interesting. Probably gluten-free but I will wait for the company to respond. Thanks again!
  18. Aerin328
    My family just made a gluten-free banana bread for me for Christmas. Awesome! Except the vanilla they used (which I'm looking at) appears suspicious: It is Spice Islands brand, "Pure Vanilla Extract." The bottle says "100% bourbon vanilla." The "bourbon" it's what's worrying me. Does anyone know if this is safe??? Thanks!
  19. Aerin328
    Thank you for writing this post. Once again it's so comforting to find other people out there who understand the absolute frustration that goes with not only dealing with this terrible illness, but also in trying to work with a world that often doesn't understand. It's great to know we are not alone.
  20. Aerin328
    Rachel, Andrea is right when she says "Don't be too hard on yourself as far as the diet and learning. There is a long learning curve but it does get easier." Going gluten free is a huge life change and there is a lot to learn. But I just wanted to say : it is all definitely WORTH it !!! So don't lose hope! Celiac's disease is terrible in the way that...
  21. Aerin328

    ARCHIVED Save Me!

    Aerin328 replied to Mal's topic in Gluten-Free Restaurants

    Many celiacs are also intolerant to casein, the protein found in cow's milk (and in whey). (Enterolab automatically checks casein at the same time in their full celiac panel - www.enterolab.com ) Awesome restaraunt is Outback Steakhouse (mentioned above as well) - it's expensive but they have a gluten-free menu that tastes great! Christian
  22. Aerin328
    That's an awesome story!
  23. Aerin328
    Thanks to all the replies, this is very helpful!!
  24. Aerin328
    Thanks Momma Goose, hopefully someone else will add their $0.02. Meanwhile I couldn't wait and Had the chicken last night and so far no wreckage- hopefully it's OK! Thanks again!
  25. Aerin328
    We purchased a brand of frozen precut chicken filets called Pilgrim's Pride, noticed when I got home it says they are "soaked in chicken broth to add flavor." Fearing the broth could be glutenous (as it often is in canned soups) I went to their website and they specifically list the broth ingredients separately as, "Chicken broth, sodium phosphates." Does...
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