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Latest Celiac Disease News & Research:
Everything posted by oceangirl
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Nicole, I was tested through Enterolab after a positive blood test but negative biopsy. (after four months mostly gluten-free-minus what I hadn't found yet) I wanted to know for my sake and my kids if I had the genes. I have two genes for gluten intolerance so gave each of my kids one. I think it's important for them to know this. Also, enterolab showed...
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ARCHIVED Frustrated That Nothing Is Working
oceangirl replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, Kathy Ann. I understand your frustration although I DO have much improvement after almost 6 months. I agree with others who've said to keep an open mind to other potential problems or issues. I do have to say that my family decided to go gluten-free in our house because I kept getting cross-contaminated. Now pretty much the only gluten is in all... -
ARCHIVED Catch Y'all Later.
oceangirl replied to penguin's topic in Introduce Yourself / Share Stuff
Tavi, No, no- thank you for asking. Too much useful info here and I still need that and want to offer what I can when I can. By the way, I like the way you think. lisa -
ARCHIVED Catch Y'all Later.
oceangirl replied to penguin's topic in Introduce Yourself / Share Stuff
And why isn't there peace in the Middle East? I've never used the internet until I became sick because of gluten. Everything here has been useful- even, and maybe especially, controversy. As a professional actor for over 30 years, this is all fascinating. As a human being, thank you. Thank you all. lisa -
ARCHIVED Hershey's Cocoa- Gluten-free?
oceangirl replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Rikki Tikki, Patti Thank you both so much! lisa -
I love the idea of raw, but I can only slowly add back in things raw at this point. I'm hoping I can train my system and develop the right enzymes eventually. Brown is not necessarily bad for meat. My Greek grandfather who ran a highly successful butcher shop in the U.S. used to "age" the meat. Indeed, in Greece an American might be horrified to go to...
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ARCHIVED How Has The Forum Helped You?
oceangirl replied to CarlaB's topic in Introduce Yourself / Share Stuff
This is a nice idea, Carla. I am fairly new and found the board quite by accident somewhere around April '06. It has been of invaluable help in myriad ways and I'm feeling VERKLEMPT as to how to specifically express it! Certainly, knowing others out there struggle with knowing what the heck to eat, that others have to obsess about their digestive tracts... -
ARCHIVED Hershey's Cocoa- Gluten-free?
oceangirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi All, Forgive me if this has been asked 10,000 times, but I couldn't find specific reference as to whether or not Hershey's cooking cocoa is gluten-free. The lable does say %100 cocoa, but I'm PARANOID!!! Thank you for any help! lisa -
ARCHIVED Tuna Fish And Sardines Absolutely Gluten Free?
oceangirl replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks, Richard! lisa -
ARCHIVED Tuna Fish And Sardines Absolutely Gluten Free?
oceangirl replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Lorka, Thank you! I'll try the Brunswick. lisa -
ARCHIVED Dishwashers To Iodized Salt
oceangirl replied to Kaycee's topic in Coping with Celiac Disease
Cath, OH MY WORD! I am booking my flight now! I suspect my myths would not be debunked! Thank you! lisa -
ARCHIVED Dishwashers To Iodized Salt
oceangirl replied to Kaycee's topic in Coping with Celiac Disease
Cath, Yes, fire is good, eh? The other alcohols are mostly (I think) grain-based, so, not so good for us! I have such an idealized vision of New Zealand- maybe too much adoration of the "Lord of the Rings" trilogy and too many National Geographics as a child- but, it will always have a mythic quality to me! Also, it's quite "neat" to be communicating... -
Lister, I have just read this entire thread after seeing it for weeks and weeks and not reading it. I don't know how to put this delicately, so I will be direct to you and others responding to you. You have EXTREME anxiety. I work every day with teenagers (not so far in age from you) who deal with this very common issue. Along with your very serious...
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ARCHIVED Tuna Fish And Sardines Absolutely Gluten Free?
oceangirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi! I'm struggling with figuring out hidden gluten or cc problems. Does ANYONE know for VERY, VERY sure a tunafish (preferrably with olive oil) and a sardine (the same) that's DEFINITELY gluten-free? Any help is greatly appreciated! lisa -
ARCHIVED Dishwashers To Iodized Salt
oceangirl replied to Kaycee's topic in Coping with Celiac Disease
Cathy I am like you- constantly adjusting my diet and retracing steps to figure out what is bothering me. I, too, am largely paleo, although I chuckled at GFP's comment re: not tearing raw meat off bone with my trusty incisors. I am hoping to put dairy back in someday, but I'm nervous. Maybe I'll try some goat cheese one day. I am soy, gluten, dairy... -
ARCHIVED Acupuncture As Part Of Healing Process?
oceangirl replied to eleep's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
eleep, I can't emphasize enough how much acupuncture has done for me. I discovered it 3 years ago when Western medicine could not cure my pneumonia and it did! Yes, it is very calming and anxiety-relieving. I am seeing my acupuncturist, an amazing woman, once a week currently and it is SO helpful. I've also known my immune system needs a boost and it... -
ARCHIVED Help! Do Mushrooms Bother Anyone?
oceangirl replied to oceangirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lin, Thank you! I have just seen this post at last and I thank you very much! I hope I can add them back someday, too. Good luck to you! lisa -
ARCHIVED Beware Of Dasani Water On Your Flight
oceangirl replied to ms-sillyak-screwed's topic in Traveling with Celiac Disease
I react horribly to Dasani water- don't know why. I would advocate forcing terrorists with celiac to drink as much of it as they can. lisa -
ARCHIVED Optimal Diet For Celiacs
oceangirl replied to Phila's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow! When I have a minute and look at the Internet it blows me away how we all have time for this. I hope we make the same time for people we can reach out and physically touch. This is a nice thread. But, I have to go to the dark side for a bit, as is my nature. I'm getting quite tired of the self-absorbed aspect of this bloody condition. (In myself... -
Shredded Wheat Alternative
oceangirl replied to momandgirls's topic in Gluten-Free Foods, Products, Shopping & Medications
I have no answers but BOY would I like to find one, too! I LOVE shredded wheat! Maybe someone will help us. Good luck! lisa -
ARCHIVED Going Crazy - Help Me Find The Gluten
oceangirl replied to tsomo's topic in Coping with Celiac Disease
I've been wondering about pet food. I have 5 cats, 2 dogs I always feed and wonder about mysterious "glutenings" ALL THE TIME!!! (I haven't made it a week yet without getting a reaction to something- the house is now gluten-free except the pet food) Anyone have help with WHERE to look for grain-free petfood? I hope you find the answers soon- I really... -
ARCHIVED How Not Feel Guilty Going From Eating Strict Vegetarian Diet To Eating Some Meat...
oceangirl replied to em2005's topic in Coping with Celiac Disease
Okay, I don't know what I did, but my response is mixed in with Steve's, I think. It started with: "I have been a vegetarian and my daughter is one..." lisa -
I have a delicious recipe for my own breakfast sausage and, instead of pork, I just use ground beef. It's called "Country Sausage" and it's in The Joy of Cooking cookbook. Very easy and yummy. No need for skins; they're just sausage patties. I hope those strange feelings go away soon! I also like how brave and creative Quin is, shaking up his menu all...
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ARCHIVED Downeast Maine?
oceangirl replied to Jen Sage Moon's topic in Introduce Yourself / Share Stuff
Jen, Hi! I'm from southern Maine and I don't know of any support groups your way but I wanted to say "Welcome to the Board". You'll find lots of help here. Good luck! lisa -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
oceangirl replied to eleep's topic in Coping with Celiac Disease
Erica, I'm sorry you feel so bad. I am much older than you, it would appear from your picture, but, to address your question about grief: I've been through a divorce from my best friend after 23 years of marriage and two children together. We are working on 5 years and it only now has rays of light. And I instigated the divorce. The sadness and grief...