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Gemini

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Everything posted by Gemini

  1. Gemini
    Normally, make-up is not a problem except for anything which goes on the lips. Gluten cannot be absorbed through the skin so it's a choice issue. However, since your daughter is only 6 years old, it would be almost impossible for her to understand the need to not ingest any make-up through her mouth so if it were my child, I would definitely go gluten-free...
  2. Gemini
    I am soooooooooo happy that everything worked out well for you, luvdogz! Having been there myself, I know the anxiety level it puts you into. As far as the going gluten-free, I would and not look back. Celiac can absolutely cause very wonky blood work, especially protein related abnormalities, and now that you know you do not have anything really bad, I would...
  3. Gemini
    How great is it that you were able to figure this out so quickly? Synthroid is not gluten-free and there are other, better meds to take for thyroid disease which won't make a person sick. I am currently using a totally compounded T3/T4 so I KNOW it is gluten-free. I was using the Levoxyl for a long time but needed to supplement with T3 also, which Levoxyl...
  4. Gemini
    I am not so sure about that, Pete. I have seen imported products not conforming to the regulations but didn't give it much thought because I wouldn't be eating them anyway. Specialty shops carry many imported products and not all were clear on gluten-free status. They carried the original label from their country of origin and that's all. I have also seen...
  5. Gemini
    Natural flavoring has long been mislabeled as a potential source of gluten. Here are the basics on how to figure this all out......if any product manufactured in the US contained wheat in a natural flavoring, it would have to be labeled and is usually done so in parentheses next to the food in question. Any food made outside of the US does not fall under...
  6. Gemini
    This is pretty good, common sense advice and it's too bad people are still getting all kinds of misinformation about how to live gluten-free. No wonder there is so much paranoia! A topical reaction to gluten is not a Celiac reaction. That's an allergic reaction and has nothing to do with Celiac Disease. It's usually caused by a wheat allergy or another...
  7. Gemini
    Your experience mirrors what I have had....including the point where I almost passed out. It knocks the wind and strength right out of you. I would guess that because you are new to this, you probably ingested gluten somewhere. Relax, because it will happen on occasion, even if you are diligent about things. It happened to me for the first time in almost...
  8. Gemini
    There is the distinct possibility that you have other intolerances that are causing the problems you describe. I did and when I eliminated those, my inflammation and problems improved yet again. You are correct, it's not all about eating gluten. You have to look at all the other allergens also and make sure their are no problems with those. Sometimes...
  9. Gemini
    Those are outstanding numbers for repeat testing! You have done a good job. As far as a "zero" result, if a person actually came up with a zero, it would be a fluke. That's the reason they give you a range within the normal......anything within the labs quoted normal range is the amount which will not spark an autoimmune reaction. Everyone will ultimately...
  10. Gemini
    Actually certain travel is not difficult at all. I have traveled internationally since diagnosis, twice, and had no problems. You absolutely have to carry some snacks with you like fruit/dried fruit or nuts. I also am lucky that the airport I fly out of has some good restaurants with gluten-free menu's so I can eat before the flight leaves. A meal should...
  11. Gemini
    Yup, seriously! To show you the differences between how people are affected by this, I was almost a gonner from Celiac by the time I was diagnosed. Yet....I never had diarrhea until a few months before diagnosis and it didn't become daily and life-threatening until the week I was actually diagnosed. I had pale, large volume stool for years, which floated...
  12. Gemini
    Actually, this is the biggest clue which points towards Celiac Disease and it's called nocturnal diarrhea. It's more common to have diarrhea in the middle of the night for a Celiac because it's the result of ingesting gluten all day. It takes time for the autoimmune response to kick in and actually cause diarrhea..that doesn't happen right away. Then, what...
  13. Gemini
    Ken hit the nail on the head! I no longer ever eat at Japanese restaurants because their food is loaded with gluten, for all the reasons Ken stated. The noodles in this country contain wheat, there is the broth issue, soy is a no-no and yes, the grill problem. The grill is totally contaminated and unless they are kind enough to own a dedicated grill, you...
  14. Gemini
    I have a total of 4 autoimmune diseases and have managed to make a great recovery without using any old worm! It is possible but it may take time. I was also an older, diagnosed Celiac so if I can do it, anyone can. It's not terribly difficult to avoid CC and the longer you go, the better at it you will become. Are there still times when taking a gluten...
  15. Gemini
    I have Sjogren's also and it's pretty severe. I have noticed some improvement with it since the gluten-free diet but still have dry mouth and eyes, to some extent. It's a lot better than it was but still annoying and requires diligence in making it more comfortable. I am not interested in trying a grain free diet because I have no other problems with...
  16. Gemini
  17. Gemini
    I am not sure of the specifics regarding the significance of a Beta band but it would be pretty weird for you to have an M spike for 1 1/2 years (that's a long time) and be walking around with myeloma without being really sick. I have a friend who is undergoing treatment for myeloma now and he was very sick at time of diagnosis. His case was very clear cut...
  18. Gemini
    Just my 2 cents worth here......for the millionth time since I started posting to this forum, the tTg is a lousy test to use for dietary compliance and doctors are still making this huge mistake. I just don't understand what they don't get! A primer.......tTg can also elevate in the presence of other autoimmune diseases, consistent and common with Celiac...
  19. Gemini
    I few notes on my experience with this......you stated they did the SPEP blood work on you, which tests for abnormal protein levels. Did this come back normal or elevated? This is the test that would screen for myeloma and usually, elevated protein levels, along with monoclonal bands present would strongly indicate a possibility of myeloma. The BMB is a very...
  20. Gemini
    I find it mind boggling that anyone would infect themselves with hook worm in an attempt to be able to eat gluten again! That's just gross.......
  21. Gemini
    I would like the definitive answer to this myself! I have read that it is and that it isn't so have not had any for at least 3 years now. I love Bailey's too! Recently I read on another website regarding Celiac that all distilled, grain based liquor is gluten-free, unless flavorings are added post-distillation. However, some Celiacs claim they...
  22. Gemini
    I also took minocycline for a very long time, on the advice of a clueless doctor who claimed no harm would come of it, and it really messed me up, long term. The problem is, it can help other issues, short term, but if you are on antibiotics for an extended period of time, it will totally mess up your GI tract and cause leaky gut, not to mention a resistance...
  23. Gemini
    Yup....I agree with you completely on this! People are so easily offended these days and read into comments way too much. I don't think it's that detrimental as my husband and I have been together for 27 years and we still laugh together. There isn't anything I can't say to him and vice versa so we rarely have problems with communicating. I'm sure we have...
  24. Gemini
    I think this is the best advice so far. My husband is not totally gluten-free and I don't expect him to be. I am the one with the problem and he shouldn't have to change his life around because I cannot eat gluten. That is controlling and selfish. What I do expect from him is extra care when storing and making his non-gluten-free food in our kitchen, which...
  25. Gemini
    Caramel coloring is absolutely safe....unless the product comes from another country and then all bets are off. If it contained wheat, it would have to be listed on the label as the source and many, many US companies have converted to using corn and rice as the source for their products because they are beginning to realize just how many people cannot eat...
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