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Gemini

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Everything posted by Gemini

  1. Your welcome! Sounds like you may have Sjogren's but it can be as hard to diagnose as Celiac. Go with your instincts and if you have dry eye/mouth symptoms, it probably is. Gum recession is a BIG symptom, if you otherwise take good care of them. I have pretty bad recession and with my existing issues, my dentist will retire on my business alone!
  2. I agree with this completely! I think the doctor is confused about his information because dental enamel defects occur WITH Celiac Disease and the ingestion of wheat.....not the other way around. I should know....I have a lot of defects which is the reason I am always having dental work done. When my bottom adult front teeth came in, there was no enamel at...
  3. Have you been tested for Sjogren's? I got the impression from your first post that you may have already done that? There most certainly is blood testing for Sjogren's and they are the 2 tests you mentioned in your original post.....SS-A and SS-B. These are antibodies that may show in your blood, just like in Celiac Disease. If you test negative, it doesn...
  4. I had the same problem with these pizza's and solved the problem, although it requires a 2 step plan of action! If you notice, the crust when it comes out of the freezer is not flat like gluten frozen pizza's. The middle does not make contact with whatever you use to cook it on....I use a pizza stone. Even when the dough relaxes in the oven, it still...
  5. I also have Sjogren's Syndrome and it's pretty severe. However, it can be managed well enough but can require a lot of maintenance. I would recommend going to the dentist four times per year for cleanings instead of just twice. This has made a large difference in my dental health. I also have gum recession and have had numerous dental procedures done over...
  6. It is true that you have to ingest gluten into your GI tract to invoke an autoimmune response. Gluten cannot be absorbed through the skin. However, if you eat finger foods after putting on lotion with wheat in it, that could be a potential problem. If you stand in the shower and let the soap run down your face, yup, another potential problem. Anything which...
  7. The diet is not a negative issue at all...unless you do not cook. That might be a problem but, really, being a diabetic is much, much worse than a diagnosis of Celiac Disease! You cannot have sugar or many carbs as a diabetic but with Celiac, there isn't much that can't be duplicated gluten-free. You can at least have dessert and red wine, thank goodness...
  8. My husband is not totally gluten-free but it has only caused one gluten hit for me in 5 years and it was my fault...forgot to wash my hands after making him a sandwich. The only dedicated appliance I have is the toaster. We share everything except the few cooking utensils, which are the wooden ones, he uses for his occasional pot of spaghetti. I have Le Creuset...
  9. Jason....this is the funniest post ever and made me laugh out loud! I'll have to remember the next time that supposed adults are behaving like a bunch of moronic bullies, to open up a can of whip ass! I have learned in the last 5 years that some gluten eating adults are no more mature than the kids on the playground who are always making fun of other...
  10. The problem with Synthroid is that they use outside sources for their fillers and additives. Because of liability concerns and companies not willing to disclose their ingredient lists, the makers of Synthroid will not put the 100% gluten-free stamp on their product. It could mean that Synthroid is 100% gluten-free but there are no guarantee's on that. If...
  11. I couldn't agree with this post more! Many people need to take T3, along with T4 and I am one of them. Like yourself, I try to keep my TSH suppressed and the T3/T4 in the upper ranges, otherwise I feel like I'm in slow motion. Generic brands work just as well for many people. It's the same med as the brand name. You just have to make sure it's gluten...
  12. My kitchen is not gluten free but it's just my husband and myself....no kids. I am as healthy as anyone with a totally gluten-free kitchen. Many, many people do this with total success....it all depends on your situation. There is way too much fear in the world today and a newly diagnosed Celiac should not fear maintaining a mixed household. If you...
  13. Check this out: Open Original Shared Link It's in the North End and within easy walking distance to the "Gahdin". (Boston-speak!) I have yet to get there myself but it's high on my list of things to do. They are only open for dinner and yes, not really inexpensive but what the hell? Your going out for the evening and need to eat so treat yourself! According...
  14. You reply to someone with this type of attitude and then tell me not to reply to it? My opinion differs from yours and that's OK but I will repeat that not everyone needs a nutritionist when diagnosed. If a lifelong study of nutrition does not qualify me to help myself, then how do you put your faith in any nutritionist? They study nutrition also so I...
  15. While I admire your perseverance in trying to become totally healthy again, there are many of us who do not need to seek the advice of a nutritionist. You do not always need to have a degree to know the right things to do regarding recovery from Celiac Disease. I studied nutrition for most of my life and almost went into the field but I was not interested...
  16. I understand your point completely and am very well versed in ancient grains and their gluten content (I studied nutrition) but I also know what kind of wheat Europeans use and it isn't close to ancient wheat. They do not use GMO products but their bread and pastries are gluten loaded. Extremely refined wheat, like we use here in the States. I would...
  17. Well....here goes the other bull in a china shop! I agree, Richard, that it makes no sense. I had minor surgery in November and the meds they gave me knocked me on my butt and did everything they were supposed to do. They were oral meds. I have also taken antibiotics since I have healed and they worked very well. I think what a doctor has to do is...
  18. Why do you feel that you are better off in Brazil than in the US? If you have Celiac Disease/Gluten Sensitivity, you cannot have any wheat, period. Doesn't matter whether it's "different" wheat or not...wheat is wheat and it all contains gluten. Plus, the US is so far ahead of many countries when it comes to manufactured gluten-free products. After 5 years...
  19. Hi Sophie, I am glad to hear you are feeling better! Yes, antibiotics do make symptoms disappear and help in many ways but I still caution you to not follow this regimen for too long. I felt better also when I was on Minocin for 2 years BUT what happened afterwards made me regret taking them for so long. I honestly think that if you follow the diet...
  20. I can totally relate to your daughter's experience and this is the reason it took me 20+ years to be diagnosed. I stopped going to doctors for 10 years....completely, except for my awesome thyroid doc because they were such ignorant A-holes. The last doctor, although very kind with his words, told me to seek counseling because he could find nothing wrong...
  21. By staying on and maintaining a solid gluten-free diet, your autoimmune system calms down and antibody levels go down. I think the reason why so many experience better health without colds and flu is because, now, your autoimmune system is attacking the invaders it should be attacking, and not our body parts. It's been re-directed back in the right direction...
  22. A positive EMA test, regardless of titer number, is a positive for Celiac Disease. It's 100% specific to Celiac, meaning no other condition will cause a positive. You have celiac disease and I am impressed that a family physician would suggest starting the diet immediately. Smart man. At this point, an endo will check for amount of damage but it's not needed...
  23. I wasn't diagnosed until I was 46 and I was almost dead from malnutrition....really. I had extremely positive blood work and declined the endo so I could immediately go gluten-free and heal. I will say that even at an older age, you can most certainly heal. I have and feel better than I ever did at 30. So, do not worry about all the damage and that you'll...
  24. There has been evidence and some small studies done, which point to the fact that smoking can delay the symptoms of Celiac Disease. Personally, I smoked until 4 months before I became deathly ill with Celiac so my experience mirrors yours. It seems that all hell broke loose after I quit. Some attribute that to the fact that, supposedly, smoking depresses...
  25. This is a totally brilliant and oh so true statement! The biggest reason most people do not take Celiac seriously is because there is no medical treatment for it....no chemo, radiation or surgery. Food is not considered a treatment for anything in this country and that's why the vast majority of Americans are walking around overweight and sick. They...
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