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Gemini

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Everything posted by Gemini

  1. Gemini
    Silk Soy Milk is gluten-free so maybe you are reacting to the soy. I drink Silk Soy Milk on a fairly regular basis and as an extremely sensitive Celiac, I never have a problem with it. Either that, or you may be reacting to another ingredient. The statements issued by companies do not mean they are not gluten-free, they are just protecting themselves...
  2. Gemini
    This type of a reaction to a vaccine is not unusual, even for non-Celiacs. You already have an overactive immune system and a vaccine will stir things up a bit. I used to have the same type of reactions to allergy shots, when I received them. One thing I am curious about is I read that those who were vaccinated for Hepatitis while undiagnosed for Celiac...
  3. Gemini
    I honestly do not know why doctors cannot concur on anything these days! I know most of them mean well but why the hell do they doubt a Celiac diagnosis so? Scalloping, from what I have read, is classic Celiac. It can occur before the villi are gone. I am so glad you refused the gluten challenge because you would have been really damaging your insides. ...
  4. Gemini
    Metagenics vitamins are some of the BEST vitamins on the market.I don't know if you'll find better. Your stomach may not be able to handle them at the moment but, with time, that will change. They really work well and are highly absorbed by the body. I use their calcium and vitamin D supplements, plus the fish oil caps. Maybe they have a childrens dose that...
  5. Gemini
    Scalloping seen on an endoscopy IS evidence of Celiac Disease. This is why using the biopsy as a "Gold Standard" of diagnosis is just plain wrong. The medical profession misses so much and patients continue to wonder and suffer symptoms. Getting on with your other questions.....I am pretty well versed in all this as I have multiple immune disorders and...
  6. Gemini
    Unless you have a topical allergy to wheat, there would be no reason to wear gloves. The soap will do it's job if you are washing dishes.
  7. Gemini
    Yup...I am the proud recipient of a double, dog dare DQ-2! I thought I had triggered in my late 20's (I am 51 now) because of the severe stomach pain I endured after eating but in retrospect, I may have triggered as a very young child. I always had stomach pain and discomfort and can remember being sick back to the age of 4. It came and went. I was also...
  8. Gemini
    Elizabeth Hasslebeck is not a good source for gluten-free status in things. There are errors in her book. The Celiac Foundation or other more well connected sources of information should be used. There are gluten-free flavored coffee's on the market...I think Green Mountain Coffee Roasters is one of them. I would suspect that the cheaper the coffee, the...
  9. Gemini
    If a company rep has verified that the supplements are gluten-free, then all of the supplement would be gluten-free. They do not exclude packaging when verifying gluten free status. There are many supplements which are gluten-free and many medications which are also gluten-free. It should always be verified with the manufacturer but more often than not,...
  10. Gemini
    I do not use separate sponges and it has not been an issue. Considering that you use the sponge to wash your dishes, and I am assuming you use plenty of soap, any gluten that sponge comes into contact with would be long gone. The more important aspect with sponges is replacing them once a week so bacteria will not become an issue. Yes, once a week is the...
  11. Gemini
    A positive blood test, especially one with a positive EMA, is a diagnosis for Celiac Disease. At this point, the only reason to do a biopsy is if you want to see how much damage has been done. I still have trouble wondering why it takes so long for some doctors to become convinced that a person has Celiac Disease. Your blood work, coupled with the dietary...
  12. Gemini
    Jason....just because no one tested positive on the antibody test, doesn't mean they don't have Celiac. It could be a case of latent Celiac or silent Celiac with negative antibody testing. Happens all the time. You are supposed to be tested at least every 2 years, with a diagnosed family member as history. If they think that they can have 1 blood test and...
  13. Gemini
    First off, let me wish you continued good health and no return of that nasty leukemia! I am very glad to hear your treatment was successful. However, a couple of things struck me and made me have to ask you these questions......usually, in the US, when being treated for any serious cancer, a patient undergoes radiation and/or chemotherapy. Along with...
  14. Gemini
    You would essentially have to eat the shaving cream for it to cause a reaction! Gluten has to pass through the gut to spark an autoimmune reaction. The gut is a closed system, except for entry from the mouth, nose and the bum. One other exception would be the eyes, if you using eye drops. What goes into the eyes will trickle down the back of your throat...
  15. Gemini
    I just celebrated my 5th year anniversary gluten-free and I know no other life! It has become so second nature to me that I cannot remember living with wheat. To be honest, I never had any trouble with the diet at all and embraced it wholeheartedly from Day 1 but I was extremely ill, had gone 20 years with horrible symptoms before it was figured out and...
  16. Gemini
    Excellent question, debmidge, and I will answer with what I have learned from all the reading I have done. To make it clear, I do not have DH myself and no apparent skin allergy to wheat either. This is something I read in Dr. Peter Green's book on Celiac Disease and it makes sense but I am sure not everyone will agree. It was surprising to me, however. ...
  17. Gemini
    Many Celiacs have liver related issues before they are diagnosed and I would bet that yours will go away if you follow the diet strictly. I had elevated liver enzymes but no longer, since I started the diet. I would bet there is a connection for you. I would ask about being screened for the gene for colon cancer. That will give you a lot of information...
  18. Gemini
    I also have Sjogren's Syndrome but my symptoms have improved dramatically on the gluten-free diet. I also use Restasis eye drops and would highly recommend them to anyone with Sjogren's....it's helped tremendously. They are a Rx eye drop. My eyes used to be horrible with dryness and allergy related problems but the longer I am gluten-free, the better they...
  19. Gemini
    Gluten cannot be absorbed through the skin as the molecule is too large. You have to ingest gluten to spark the autoimmune reaction. If you feel you cannot use skin care products without ingesting them, then you probably want to make your products gluten-free. It's a choice issue with whatever makes you most comfortable but it's not medically necessary.
  20. Gemini
    While I am the last person who would intentionally try to scare anyone on a health related issue, anyone who develops a polyp which is pre-cancerous at such a young age ought to be gene tested for one of the colon cancer genes. It is very common to see polyps and pre-cancerous lesions in someone who carries the gene and not for someone who doesn't. The...
  21. Gemini
    Gluten absolutely has to be ingested for a reaction to occur. Your daughter ingested some although sometimes it is hard to tell if you have....especially if the product is dusty. If she did all those things you mentioned, then I would bet she got enough into her mouth to cause such a reaction. I have had extreme reactions also and I ingested gluten although...
  22. Gemini
    If you get sick from eating bread or suspect you have a gluten problem, then get yourself tested or do a dietary trial. If you keep ingesting gluten, you'll end up sicker than you'll ever want to be. Many people have sporadic symptoms...I did. I could eat wheat sometimes and not others. This is partly why I never connected wheat to my being ill until I got...
  23. Gemini
    I agree, Richard...I have never found any vanilla which was not gluten free. I am also extremely sensitive and if distilled grains made a Celiac sick, I would be sicker than ever by now. I am not sure why some have so much trouble finding the easy information out there. If you check reputable sources, there should be no problem.
  24. Gemini
    I do not keep my food in the cupboards separate from the few things my husband eats with gluten but they are all boxed or wrapped so as to avoid any leakage. Cereal, cookies....things like that. You just have to be careful, not paranoid. You will need a toaster all for yourself and no one else can use it, period. For all the other pans you use, replace...
  25. Gemini
    I am so happy the whole thing worked out for you! It sounds like you have conquered this gluten free issue and moved on to a better way of dealing with the whole thing. You did the right thing...take a moment, think about it, take a few deep breaths and let it go. It really is only food and, as much as we all enjoy eating with socializing, it isn't the end...
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