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Gemini

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Everything posted by Gemini

  1. Thanks for all of the links.....very interesting. Now if only I can get my brother and his wife to listen. They are nice people but think their doctors are better than everyone's. My brother did not take good care of himself at all in the beginning of his diagnosis and only started to go in that direction when his kidneys and health really started to tank...
  2. I am a diagnosed Celiac, through blood work, and I had phenomenal results in just 3 days. I was extremely sick at time of diagnosis and down to 97 pounds, with a 1 pound per day weight loss going on. I couldn't eat much at all and was tied to the bathroom....could not leave the house. After I had my blood work done, I could not wait any longer to start...
  3. I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be...
  4. I know it's pretty common for young women to retain water when their cycle is due but that sounds extreme. I know this sounds silly but are you drinking enough water? The more dehydrated you are, the more water you will retain. Salt is also a culprit in water retention and I am sure you want to hear that! Seriously though, I would keep track of really...
  5. I think you are a very smart person with some valuable information here. I have heard of LADA and agree with what you say. My brother is a Type 1 (very bad too) and I swear he has Celiac also. Many symptoms of diabetes are the same as celiac so his doctors tell him he is not a Celiac and that is what he wants to believe. His diabetes is extremely hard...
  6. It's almost a sure thing that other family members of yours have Celiac also but many things come into play in why it may not seem so. Doctors are not very good at diagnosing this, except when patients have in-your-face symptoms. Then there is the biggest reason of all....denial on your family's part or them not knowing it's genetic and they should be tested...
  7. That would be an allergic type reaction and not a Celiac reaction, as you would have to ingest the product to cause a Celiac reaction. Many people have a reaction to topical products but I think the poster was concerned about ingesting soap from a washed plate. That won't happen unless you fail to rinse the plate and let the soap dry on the plate before serving...
  8. As I said before, you do not rinse your dishes after washing them? Rinsing would take care of any soap and I know as far as I am concerned, soap is pretty awful tasting so I make it a habit never to ingest any. I also have yet to find a liquid hand soap that contained gluten of any sort but I buy less mainstream products than some. My dishwasher is not...
  9. Injections are not an issue for gluten free folk....they by-pass the gut and you cannot have a reaction unless gluten gets into your GI tract. If you look into this and check any reputable medical reference, you'll find this to be true. I have had injections after going gluten-free and have never had the slightest issues with them. As for flu shots...
  10. Which Italian restaurant in Framingham made the mistake? I ask because I live near Framingham and cannot think of any Italian restaurant in that area which serves gluten-free food. I probably wouldn't go there anyway after what happened to you! While your experience does not confirm having Celiac, I know what you mean by your reaction. I am a confirmed...
  11. Unless you are eating dishwasher detergent, you cannot be "glutened" by running your dishes through a dishwasher with any soap. There is a pretty good rinse cycle in most dishwashers and most soaps are formulated to not leave any residue on your plates. If this were of any serious concern, I am sure the Celiac Foundation and all GI docs would be warning...
  12. Truer words were never spoken! My family are determined to not get this whole thing and it's probably because many of them have it also and choose to stay in denial. I bring a cooler with me whenever I visit family because they will end up making me sick. It's a pain to have to tote food around but it beats the hell out of getting really sick away from home...
  13. I think the comparison of whole soy and what you refer to as fractured, GMO soy are apples and oranges. Honestly, it's a wonder people eat at all! Not all soy sold and consumed here in the States is genetically modified so don't assume people are eating crap. I know I don't and soy will absolutely help with hot flashes and menopausal symptoms, if your estrogen...
  14. I think the comparison of whole soy and what you refer to as fractured, GMO soy are apples and oranges. Honestly, it's a wonder people eat at all! Not all soy sold and consumed here in the States is genetically modified so don't assume people are eating crap. I know I don't and soy will absolutely help with hot flashes and menopausal symptoms, if your estrogen...
  15. I think the reason many older women don't have much to go on when it comes to bone density is that many don't put as much effort into it as I am right now. They are steered into meds and have a hard time with the exercise that's required. This weight training stuff is great in how it makes you feel but it is literally the hardest work-out I have ever done...
  16. I truly know you meant nothing by your statement about "older" patients......it's just that at 51, I went through early menopause at 45, which is common for Celiac's. I feel so much better than I did at thirty that I literally cringe when I hear people refer to me as older! I guess I am but I am actually now in better shape than most of the younger gals...
  17. May I ask whether or not you are post-menopausal? I also have osteoporosis in my spine and osteopenia in my hips. I have never taken any bone meds because I chose not to after doing some research on them.....interesting that you were given injections of Reclast yet still your bone density did not improve. That bypasses the gut so it goes to show how poorly...
  18. The most basic thing you have to remember is that you have to ingest gluten into your GI tract to have a reaction. All of the books and medical literature that are out there regarding what has to be gluten-free clearly state that washing with soap is a non-issue, unless you are using a specific soap for your face or skin that may contain a gluten component...
  19. I have gotten sick from a small amount of crumbs that made it into my mouth, obviously, because it's the only way that a Celiac reaction can occur. It happened almost exactly the way you described your experience. No matter what way you are exposed, you would have to get enough into your GI tract to cause a reaction. That's why washing your hands is so important...
  20. I just discovered this brand at Whole Foods and have to say it's the best gluten-free bread I have had since diagnosis and that's over 5 years! It's much better than Udi's! I have only tried the cinnamon raisin bread, toasted with peanut butter, and I thought I was about to have a religious experience. Absolutely delicious and the texture is the same...
  21. I agree. When I go to Europe, it's so easy to be gluten-free. High awareness and most people speak English also...at least in the cities, where I tend to stay. I can't speak for all of Europe but western Europe is easy. I do carry some snacks on board the plane, in case there are delays, but other than that, I wing it. Haven't had a problem or gotten sick...
  22. Ditto for Virgin Atlantic. Yeah, they aren't an American flag carrier but they are English....close enough! I got a warm gluten-free roll that was really good, along with great gluten-free meals. Never got sick from one of them and I am uber-sensitive. I figure if the English can't get it right, no one can. I haven't flown Virgin America yet but...
  23. Night sweats occur from a deficit of estrogen and progesterone and not from an excess of these hormones. Soy would actually help a woman who was having hot flashes and night sweats from menopause/peri-menopause. It may not help everyone but soy is not the bad food that many make it out to be. Japanese women eat tons of soy and hot flashes are not common to...
  24. I am about as sensitive a Celiac as they come and was deathly ill at time of diagnosis yet have had fantastic luck with educating restaurant chefs on how to make a meal gluten-free and avoid CC. I think it depends on where you live and what type of restaurant you go to. Higher end restaurants generally do a good job of making a meal gluten-free, without...
  25. The reason I put that in is because if I didn't, someone would have piped in how dangerous it is for Celiacs to consume grain alcohol. I agree with you....I think it is safe to drink as far as Celiac Disease is concerned but I am also not negating the fact that some people have some kind of reaction to it. Since alcohol can be irritating to the GI tract...
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