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Gemini

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Everything posted by Gemini

  1. Gemini
    Then you have it worse than those avoiding wheat alone because corn is in everything! I think it's easier to avoid wheat than corn. The spray is pretty good stuff. I buy it in Whole Foods and the citric acid cuts through and really does a good job of removing any waxes. I also wash them for the reason you stated...who knows who or what has been touching...
  2. Gemini
    Actually, you are incorrect. That term was used by my physician because she had not seen anyone that sick from Celiac before. As she put it, I was one week away from a feeding tube so end stage Celiac is probably the best way to describe it. If I had gone any longer, who knows, I may have been one of those who died. I prefer not to think about how sick I...
  3. Gemini
    It doesn't matter...all of the fruits and veggies I ingest are washed using a citrus spray, which is gluten-free, and then thoroughly rinsed. So, there would be no wax on whatever I was eating. And how do I know this? I don't get sick, have zero reactions, and my blood work is showing no gluten ingestion. I am using the best possible methods for ensuring...
  4. Gemini
    The reason your cholesterol was not low was probably due to the fact that damage can be patchy with Celiac and, unless you have total villous atrophy, some foods will be absorbed enough to keep your cholesterol normal. Personally, we pay too much attention to cholesterol in this country and people are being put on meds who do not need it. If your HDL (healthy...
  5. Gemini
    You are correct....the endomysial antibody is 100% specific to Celiac Disease and a positive one + a positive tTg ranks in at 98% certainty of Celiac Disease. So, congratulate yourself that you are smarter than this so-called GI doctor! You are also smart to include past family history, which sounds highly suspicious for celiac disease. How important...
  6. Gemini
    If the jar is over 3 oz. you pack it your suitcase.
  7. Gemini
    Yup....that would the only other issue, that I can think of, for a Celiac. A feeding tube would absolutely require gluten-free nutrients.
  8. Gemini
    Considering that all of the leading researchers for celiac disease, at least the ones I have read up on like Dr. Fasano and Dr. Green, continually tell people that gluten has to reach your gut, meaning your stomach, for an autoimmune reaction to occur, I have to believe that these doctors know what they are talking about. This has also been my experience...
  9. Gemini
    This was a really well thought out post and I couldn't agree with you more! I believe that a person does not become more sensitive to gluten and reactions do not get worse. It only appears that way because you've probably felt so good after maintaining a gluten-free diet. I know when I was at end stage, my reactions were no worse than they might be now...
  10. Gemini
    Actually, any potentially correct information about gluten is a concern to those of us with celiac disease....no one is blowing you off! However, I was end stage Celiac and extremely ill at time of diagnosis so any trace amounts of gluten would really screw me up, to put it bluntly. I eat enough fruits and veggies every day to choke a horse...it's the mainstay...
  11. Gemini
    Positive blood work IS a diagnosis but the AMA hasn't caught on yet....really! These days, if they don't see it on a picture, they will doubt the diagnosis. You probably haven't triggered long enough to cause extensive enough damage to be found with just 5 samples. That was not enough samples, either....a good doc would take 10-20 samples, from all over...
  12. Gemini
    Although I always think Peter is right on with his advice, this time I have to respectfully disagree. You may not be tolerating them because of the fiber content of oats. If you weren't a person who regularly consumes large quantities of fiber every day, then oats will give you a problem. Some have to work up to eating oats very slowly. As long as they are...
  13. Gemini
    Taking gluten into your system through an IV will not cause an autoimmune reaction....it has to pass through your gut. Your grandmother probably just had so much damage, she would have lost weight anyway. It would have been harder for her to heal at her age. I am very sorry she had to suffer so and I know how you feel. My grandmother, who I am convinced...
  14. Gemini
    OMG, Seth! I looked at lynnhappens.com and clicked on the Goldfish Pond Association link and I have to tell you....that brought back so many memories! That's where my great-grandmother had her house...on Goldfish Pond. You'd have to know Lynn to know about Goldfish Pond. It's so important to save those neighborhoods and keep them nice. That's an area where...
  15. Gemini
    Jason...one of the surprises I had when traveling to Europe was the French were actually the easiest people to obtain a gluten-free meal from. Ok...I have never been to France but when in London, where there are many 1st generation French who open restaurants, I usually have the least amount of trouble dining there. Not everything needs the sauce and bread...
  16. Gemini
    Metaplasia is not that uncommon and does not necessarily go to cancer. It's common for women to have that problem on their cervix...I had that problem a long time ago and the cause was a very short stint on the birth control pill. Yes, the pill is not as safe as many would have women believe. The doc's wanted to do much more invasive testing and I refused...
  17. Gemini
    I've actually been working with a group of residents in Downtown Lynn to help revitalize the area and get people to enjoy our local restaurants, such as The Blue Ox, Tatiana's, Pho Lynn, Capital Diner.. but now I feel funny because I can't go to most of them! I also agree with you about the breads..and pizzas! I grew up on NYC/NJ pizza to begin with...
  18. Gemini
    Your welcome! Why am I not surprised they ran out of gluten-free pizza?
  19. Gemini
    Are they closed for good or just closed at the time you arrived? Geez...that's like from National Lampoon's Vacation, when they arrived at Wally World, only to find it closed!
  20. Gemini
    Although this doctor sounds very good and very professional, I do not entirely agree with her reasoning on endoscopy. Positive blood work or extreme positive dietary response IS a diagnosis for Celiac Disease and endoscopy is not always warranted. From all I have read, and this includes information from the leading Celiac researchers, the risk for lymphoma...
  21. Gemini
    Seth...I was born in Lynn, raised in Peabody and currently live in the Framingham area. I am not a vegetarian but eat only small amounts of red meat. I take it you do not eat fish either? If not, I will admit being a gluten-free vegetarian must be incredibly hard in many ways. I eat lots of fish and some chicken and occasional red meat and even with all that...
  22. Gemini
    If your daughter looks and acts and feels OK, this is a bigger indicator of how things are going. That was a pretty high tTg number to begin with so I think it's going to take awhile longer to get into the normal range. I think it's pretty impressive you've gone from around 1000 down to 44 in a child that young so I don't know why the doc would be concerned...
  23. Gemini
    Her Antigliadin numbers are excellent!!!!!!!! What that means is she is NOT consuming gluten in her diet. Really! These are the tests to check for that. I would definitely say her tTg is still not normal because of the severe elevation at time of diagnosis. Yes, I am not a doctor but the lab I had my testing done at (Genova) does a fantastic job of detailing...
  24. Gemini
    Open Original Shared Link Check out this place for exceptional Italian gluten-free pasta. I buy my supply from this company and they have great customer service. I usually buy the Bi-Aglut but one of the guys who run this company recommended the Le Veneziane also. I realize it's very expensive pasta BUT after eating these, you'll throw the Tinkyada in...
  25. Gemini
    How bad are your flashes? Most of the OTC stuff which contains herbs, etc. do not do much at all if your hot flashes are really bad. It depends on what your hormone levels are. I use Rx bio-identical hormone replacement and, although I still flash a bit, it's nothing compared to what I went through when it all started. The bio-identicals are safer than...
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