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Gemini

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Everything posted by Gemini

  1. Gemini
    This is extremely common and I'll tell you why. The gastro doc is the one who will want to do an endo, not only to complete all the testing protocol that was drilled into his head during med school but because, and here is the issue that upsets some people, he makes lots of money doing endoscopies. Not to say doctors are all evil money mongers BUT the doctor...
  2. Gemini
    Without going overboard and threatening lawsuits, I REALLY think all this is going to take to resolve is a letter from an attorney, again explaining why you cannot partake in this meal program and I am pretty sure the school will comply with your exemption. The school is pushing your buttons, all in the name of money, and they are banking on the notion that...
  3. Gemini
    This is not the best advice to give people....at all! There are many reasons why some are prone to kidney stones but to tell people never to take calcium supplements, especially post-menopausal women with low bone mass, is irresponsible. There are tests that can be done to figure out if you absorb well so there is an option if in doubt. I take a good dose...
  4. Gemini
    Do not take your vitamins within an hour of drinking coffee, tea, or wines (not that you'd be drinking wine for breakfast!) as they contain tannins and tannins will greatly inhibit absorption of your vitamins. This came from a good MD and is not something I read in some flaky nutritional book! I also break up the dose of calcium I take. I get my supplements...
  5. Gemini
    If you have a gluten intolerance or sensitivity, just stop eating gluten....period. It's not heroin you are trying to dump, just gluten. If you suffered from exhaustion, that is not a symptom of stopping gluten as you should start feeling better immediately, if you have truly gone gluten-free. It may take time to heal, but you should feel better in many ways...
  6. Gemini
    If you re-read your original post here above, you stated you EXPECT them to comply and they WILL accommodate you. I saw you added no threat but those 2 sentences sounded awfully arrogant to me and it is not an attitude I would ever use on anyone. As for the appearance thing, that's comparing apples to oranges, even though your basic opinion is correct.....
  7. Gemini
    BTW, When I called Conrad's Ruth Villa inquiring about food ingredients, I never requested a special meal. My intent was to locate a few foods that I could safely eat and bring other foods to make a complete meal. Instead of helping me with food ingredients, Brad Rudly Recommended that I don't attend the event. Keep in mind that I was required to pay...
  8. Gemini
    My opinion....very bad idea and my spine is fully intact, thank you! All those obnoxious, squeaky wheels may get their way short term but there is back lash and it will come. Nothing more arrogant than demanding that someone accommodate you or else. I also wouldn't be so stupid as to do so in anything food related because God only knows what will end...
  9. Gemini
    Any meds taken by mouth should be checked on for gluten-free status before they are taken. Most dental products are gluten free......I have checked into this myself because I have had a lot of dental work done. However, without knowing what you were given, that's a guess. You should contact your dentist and find out what was used and check on the meds yourself...
  10. Gemini
  11. Gemini
    Gotcha! I remember this from the radio......back in the days of yore...... It was called "Hitchhiker's Guide to the Galaxy" but I didn't remember the author's name. Thanks!
  12. Gemini
    Long story short, this is my Test Case to make a difference for those that have DH and/or celiac disease... I just need to understand what rights One has with this Disease.. Are there any topics on One's rights? Thanks, Tom
  13. Gemini
    My Dr decided to run a Celiac panel on me, to my suprise, and when the test results *finally* came back, they were half positive, half negative. The Gliadin IGA and IGG werre both positive. The other tests were negative. Megan...what your testing shows is you are reacting to gluten. These are the two tests that are used to monitor adherence to the...
  14. Gemini
    OK....this has got to be one of the BEST all -time posts, ever! If more people were in touch with their sense of humor, the transition to a gluten-free diet would be so much easier. It was for me for many reasons but you have to remember to laugh. I especially loved the reference to the East Bake Oven....what memories. It was the first oven I had, at the...
  15. Gemini
    If the test in question was the Ttg, that can take a lot longer than 3 weeks to drop. The other problem that seems to be missed by many people is Ttg levels are indicative of other autoimmune problems also, not just Celiac Disease. So if your Ttg levels are rising, it could be that you have more than 1 autoimmune problem.
  16. Gemini
    With positive blood work and a positive EMA, you have your diagnosis. The only reason to do an endo after positive blood work is to see what damage has been done. You cannot see indications of Celiac Disease with the naked eye, period. It has to be looked at microscopically. A doctor may see inflammation but to actually diagnose flattened villi, you need...
  17. Gemini
    I have Celiac, Hashi's thyroid, Sjogren's Syndrome and Reynaud's Syndrome...the one where your fingers and toes turn white/blanched and the circulation shuts down temporarily. They can also become numb from this. The Reynaud's has improved dramatically since going gluten-free but it still happens, especially in cold weather. There really isn't a test that...
  18. Gemini
    Doctors are not very well versed in autoimmune diseases but to my surprise, the hematologist was more informed and knowledgeable than any other doctor I ever saw. She smiled and told me that the low white cell count was a very common issue with multiple/single autoimmune problems. I thought why the hell don't the others know this! I am 50 years old...
  19. Gemini
    Jodi......I have Sjogren's myself and know that lung problems can be associated with this disorder. I am fortunate that I have no known lung problems but Sjogren's will dry tissue out and can affect many different organs in the body, not just the mouth and eyes. It sounds like this is all related to Sjogren's. Prednisone is not pleasant but can be a lifesaver...
  20. Gemini
    You'll want to stir it frequently as it's very similar to making risotto. The stirring will bring out the starchiness of the grain and make it creamy. It really is very, very good and a damn good substitute for wheat!
  21. Gemini
    I have had life long low white cell counts and did some investigating on my own. I found out from a good hematologist that this is fairly common in people with autoimmune disorders, not just celiac Disease. The blood does not lie and many diseases and disorders will show in a person's blood work, in various ways if you know how to read it. It is also familial...
  22. Gemini
    Hi Ron, I am 5'4" tall and my weight was down to 97 pounds at time of diagnosis. I started to gain weight around the 6 month mark and today, 4 years later, I am a healthy 112 pounds and holding. I am 50 years old so have to watch what I eat now. If you have celiac disease and stay on a strict gluten-free diet so healing will occur, you should be...
  23. Gemini
    Polenta is just the type of cornmeal used...it differs from grits. It is all ground corn though, just ground to varying degrees. It is most always made from yellow cornmeal, as opposed to white corn. There are the tubes of polenta sold in grocery stores which is precooked and more compressed. You can cut it up and serve it many ways, as mentioned above...
  24. Gemini
    I am an ultra, super-sensitive Celiac, as many here like to categorize it, and the pet food issue was a non-issue for me. I don't eat my pet's food myself and already have good habits like hand washing in general so I have never had a problem with it. I use very high quality pet foods and, although there is no wheat in them, they do have some barley. Like...
  25. Gemini
    I know your frustration well although I presented classically for celiac disease with the resultant malnutrition and weight loss so I had the opposite symptoms that you have. However, I also have Hashi's, which is one of the other autoimmune problems that go hand in hand with celiac disease. As far as your lymph node is concerned, another autoimmune problem...
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