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Gemini

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Everything posted by Gemini

  1. Gemini
    OK, it sounds like you are somewhat insulin resistant. That can happen but it could be tied to Celiac and it may go away if you eat well and keep your weight under control. Your body gets all messed up from gluten intolerance. Like I stated, I had blood sugar swings that made me pass out. That has all resolved on the gluten-free diet. My blood sugar now...
  2. Gemini
    Have you kept track of what you have been eating lately, since the psoriasis flare? I know psoriasis has been linked to Celiac because that is just what happens with foods allergies/intolerances........they tend to produce rashes. I have a problem with hives but they are triggered when I am exposed to molds/humidity, which is kind of hard to avoid right...
  3. Gemini
    I am so sorry you are going through this, boysmom. This must be so difficult for you. They are getting pretty good at treating this disease so I am sure you will be fine in the long run. I would suggest asking for a referral to a nutritionist who specializes in cancer nutrition. That can be a big help and I am sure whatever information they have to share...
  4. Gemini
    I can totally relate to your feelings about doctors because they did the same thing to me for a long while. I stopped going to them out of frustration when I started hearing them say to go to a shrink. They think we all are nuts or hypochondriacs. NOT! I would say a couple of things here to think about....... I was diagnosed through blood work only...
  5. Gemini
    One of the hardest things to deal with is the amount of time it takes to heal when you are doing so through diet and no meds. People today expect to feel better within 48 hours but it doesn't happen that way with Celiac Disease. 6 months from now you will be even better. Add another 6 months to that and improvement should continue. That is how you have...
  6. Gemini
    Oh, I totally understand both systems also and I agree that depending on the problem, it can either be easy or a nightmare to obtain what you need. Some health care plans here in the States depend heavily on referrals and it really is a PITA! But, really......the GI doesn't think you need a colonoscopy after a positive stool test with your family history...
  7. Gemini
    Hi ken, In answer to your questions, yes, yes and yes! Open Original Shared Link The above is an article that explains the pathway in which kidney stones can happen with Celiac Disease. It also most certainly can cause osteopenia/osteoporosis, due to a lack of nutrient absorption and the inflammation that happens with un-diagnosed Celiac....
  8. Gemini
    In the absence of gluten in your diet, rising tTg is most likely due to another autoimmune disease, as you already mentioned. It is sometimes hard to test for them because they can behave like Celiac......they can show negative on a test, even if you have symptoms. You should be tested for Sjogren's Syndrome, Type 1 diabetes, liver disease, Hashi's thyroid...
  9. Gemini
    I am happy you have some solid answers, monkeyloaf. Welcome to our club, even if you weren't crazy about joining! This is good because you will have more control over your health now. Hope to see you on here......there is loads of good advice and support.
  10. Gemini
    Take a look at this, Celiac peeps...... Open Original Shared Link I am proud to say I work at MIT and this is being developed by MIT graduates. Such smart people doing great work! I mean...who cares about smart phones when all we really need is a gluten detector for dining out!
  11. Gemini
    It's about time that major Celiac centers are getting on board with the correct testing methods.......things we Celiacs have known for years. I cannot tell you how many people I have met over 11 years who tested negative on the tTG, only to have the biopsy and be officially diagnosed. They went through years of hell and frustration too. If insurance...
  12. Gemini
    As far as pots and pans, if the ones stocked for use in the rental are stainless or aluminum, I usually wash them really well on arrival and use them. But sometimes they have Teflon stuff and I will not use old Teflon pans or something else that could hold trapped food and create a cc problem. So, if you do not know, then bring a pan or two of your most...
  13. Gemini
    I think it good that you are willing to put your money down for such important testing.....I did the same thing 11 years ago because I got tired of the bureaucracy and wait times. Never regretted that money spent! But I think what frieze was referring to with her comment was the docs always push for the invasive testing because of the money they make from...
  14. Gemini
    Yes, and then we all can celebrate the $5.00 bag of M&M's. One could argue that everything can potentially be cc'd from anywhere but if you follow that to such a degree, then you would not have much to eat and your food variety would greatly suffer. Yes, I know no one needs M&M's to live but many people have come on here and argued that melons...
  15. Gemini
    Hi monkeyloaf......with a positive tTg and EMA, that is a slam dunk for Celiac Disease. It doesn't matter that they are weakly positive, a positive is a positive with Celiac! With a positive EMA, I am sure you will show damage on biopsy BUT if it happens that damage is patchy and they miss those spots, please do what you already stated and go strictly gluten...
  16. Gemini
    Sass.......please do not go gluten free until you have done a complete Celiac panel and possibly a biopsy for Celiac Disease. I know it is hard when you have extreme symptoms but I think it important to try and get an official diagnosis. Doctors do that to us older ladies and there is no excuse for that behavior. If you do not get results from your doc...
  17. Gemini
    Olivia....what country are you located in? I just bought a bag of regular M&M's from the vending machine at work. They are the milk chocolate ones and it is a 1.69 oz. bag. The allergy warning states: Contains milk and soy. May contain peanuts. The "best before" date on it is for April of 2017 so this is a recent bag.
  18. Gemini
    I'm ok, just a little tired right now. Lots of stress getting elderly parents and in-laws taken care of. My thyroid took a dip low (no surprise there) so I had to increase dose by a quarter grain. Overall, I am not dragging all day but waking up and getting going in the morning is slowwwwwwwww. I'm sure you understand that! Yeah........Barty. I thought...
  19. Gemini
    Thanks for your kind words about my brother, Icelandgirl. So nice to hear from you again. Yes, this is what drives me crazy the most....people with obvious and potentially life threatening symptoms like diarrhea with severe dehydration. I had that at the point when I was diagnosed but it wasn't the doctor's who suggested a Celiac panel, it was me. I...
  20. Gemini
    I like the way you put that, Squirmy and it's very true!
  21. Gemini
    Your brother sounds like mine, Squirmy. He was a Type 1 diabetic and had flaming celiac symptoms to boot but his docs always, always blamed his diabetes on everything. He lived in the country and the docs in his state just were so far from being Celiac savvy. I doubt they ever diagnosed one. His health was failing so badly that in the end, with the 3 MONTHS...
  22. Gemini
    Good for you, Elle! Now you can figure out the problems and feel better. We are all interested with how things go for you so please do update us when you can.
  23. Gemini
    My first thought was how many people that have been labeled as mentally ill or psychotic actually have Celiac Disease and never get diagnosed? Their whole lives spent battling these conditions, being flooded with various meds and no one looks at their diet or does other testing! It really is tragic. I always wondered whether Patty Duke was an un-diagnosed...
  24. Gemini
    If you are referring to Amaretto Disaronno, then I can tell you that I have had it a couple of times since being diagnosed in 2005 and never had a problem with it. I am very sensitive too and react strongly to cc. I do not drink much variety in the way of alcohol but red wine and this seem to be perfectly fine!
  25. Gemini
    I came across this article on FoxNews on-line and thought many here would like to see it. In case some were wondering how badly gluten can affect the brain..... Open Original Shared Link
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