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Latest Celiac Disease News & Research:
Everything posted by Gemini
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I know it can be difficult to gain weight. I went 6 months before gaining any noticeable amount and it was only noticeable to me when I pulled my pants on and they were getting tight. Eat whatever you want that agrees with you and is gluten free. Is dairy OK for you.....like milk? A banana split might be good for weight gain. A fib is highly...
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ARCHIVED Doctor Unable To Explain, Please Help
Gemini replied to dartmania2002's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Another winning answer from nvsmom! To the OP....you may not be ingesting gluten at all. Everyone always thinks people are being cc'd when their blood work comes back high but if that test is the tTg, it can most certainly be from another AI disease brewing or present, that is not diagnosed yet. They should run the DGP also, in conjunction with the... -
It very well could be Reynaud's as those are symptoms of it. Do your hands/fingers become blanched (turn white) when exposed to cold? When the circulation comes back, they turn brick red. That was my biggest symptom. However, after a while on the gluten-free diet, it calmed down and barely bothers me anymore......except when I do winter sports in the cold...
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OK all my Celiac baking peeps.......does anyone have a fabulous recipe for biscotti or a flour blend that works really well for making these? I would benefit from this also but it is for a friend who I have FINALLY convinced to go gluten free because she screams of a gluten problem. Her first cousin is a diagnosed Celiac and she had blood work done and...
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ARCHIVED Need Moral Support For Travel
Gemini replied to C-Girl's topic in Coping with Celiac Disease
I am 55 this year so 47 is young, baby! Ha,ha! I have to tread carefully because all my friends here have given you good advice. However, I really understand your concerns. I was very sick at diagnosis and forged on ahead and went to Europe (UK) and did fairly well until that 2009 trip when I went haywire. It is so not fun to be in Europe and away... -
ARCHIVED Need Moral Support For Travel
Gemini replied to C-Girl's topic in Coping with Celiac Disease
If you decide to go, do not leave the country without taking out travel insurance that includes some medical benefits. If you were to go and become ill and need medical attention, the insurance you have will not be accepted out of country. You will have to pay cash and then be re-imbursed by your insurance company. I always take out medical insurance and... -
ARCHIVED Importance Of Getting Professionally Diagnosed
Gemini replied to JBarnett's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The statement you make about medical care in the US is not true. Anyone can walk into an emergency room and get free medical care here. Taxpayers foot the bill but they do in every other country also. You can also apply for Medicaid if you are financially strapped......really financially strapped and not faking it, and get free medical care also. There... -
Discoloration of teeth can happen with Celiac or just from the aging process. Everyone's teeth become duller and less white as they age, some worse than others. But tooth and gum problems are huge for Celiac's and it is because of one thing......inflammation. Inflammation makes your gums recede and bone loss occurs. Celiac can strip enamel off of your teeth...
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ARCHIVED Can A Person With Celiac Donate A Kidney?
Gemini replied to Nikki2777's topic in Related Issues & Disorders
Yup...I agree, Irishheart. Some medical advice is wonky and not to be trusted. With an over active immune system, even under good control with the gluten-free diet, having an organ removed is asking for trouble. It's a total crapshoot and a path I would not venture down myself. I was rejected for blood donation due to autoimmune disease. They do not... -
ARCHIVED Can A Person With Celiac Donate A Kidney?
Gemini replied to Nikki2777's topic in Related Issues & Disorders
Hi Nikki.......my brother is now looking into kidney transplant surgery as he is a Type 1 diabetic and has been for years. I believe he also has Celiac but I can't convince him it could be the reason his health is so poor. I doubt any one with Celiac would be able to donate because doctors generally do not accept those with autoimmune issues. Celiac's... -
ARCHIVED Pledge Furniture Polish
Gemini replied to mac3's topic in Gluten-Free Foods, Products, Shopping & Medications
I would be interested in hearing how you know that you are sensitive to the whole wheat plant as opposed to the gliadin portion of it, which is what we celiacs have to be careful about ingesting. You have contradicted yourself by saying you are highly sensitive to all gluten, including the portion of the plant without gluten. That makes no sense. In addition... -
ARCHIVED Celiac & Lactose Intolerance
Gemini replied to tonalynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm a quick healer also but I am still dairy lite. I'm not so sure that most Celiac's gain dairy back all that well. I would take it easy, tonalynn, and not splurge and eat a lot of dairy at first. Go slowly because you don't want it hitting you in the back of the head because of overindulgence. Many Celiac's I know, including myself, have a limit to... -
ARCHIVED Still In Limbo, More Symptoms Weekly!
Gemini replied to answerseeker's topic in Coping with Celiac Disease
Some doctors don't seem to understand the weak and wobbly thing with regards to preps very well. It can set you back a lot. You also have heart instability right now and that could be affected by a prep and the fast you have to do. Make sure you stress your concerns about it but maybe they have other tests they can do for Crohn's that won't be as difficult... -
If this were true, then we would all be able to share things like dips and sauces with the gluten eaters. You are contradicting yourself. For someone who washes gluten-free grains because you believe everything is cc'd, you think there is little risk of cc from a shared dipping sauce when one party is consuming beer? Every reputable Celiac organization...
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ARCHIVED Still In Limbo, More Symptoms Weekly!
Gemini replied to answerseeker's topic in Coping with Celiac Disease
Have a look at this: Open Original Shared Link Why do they want to rule out Chron's? Are you still having GI issues? I thought they diagnosed Chron's via a colonoscopy and I hope there is another test for that because I wouldn't advise doing a prep with low weight. You'll lose even more and end up under 100 pounds. Just be wary of what they advise... -
ARCHIVED Still In Limbo, More Symptoms Weekly!
Gemini replied to answerseeker's topic in Coping with Celiac Disease
answerseeker.......your vein and clot problem are the result of inflammation in your body. That's what phlebitis is...inflammation of the veins. Clots can result from this. So are the heart issues. Inflammation and the fact that your weight is too low. Being very underweight can throw off cardio but it should resolve once the inflammation is down and you... -
ARCHIVED Test Results.....worrying?
Gemini replied to ButtercupSarah's topic in Related Issues & Disorders
Sarah.....was this a blood test for cortisol or a saliva test? Saliva testing is more accurate as they use 4 points of reference, pertaining to time of day, for measurement. Early morning when you awaken, noon, late afternoon and late evening. If these reference ranges were for morning, then taking your blood around noon would not be correct. Sorry for... -
ARCHIVED Cold Snowy Winter Comin'............ Git Ready
Gemini replied to Candy's topic in Introduce Yourself / Share Stuff
It's been mighty chilly here too, Nicole. For much longer periods than the norm. However, there is no 8 inches of ice on the roads. I have so much respect for Canadians.....they are tough when it comes to winter. You even manage to find the fun in it and yes, I like driving in the snow. It can be very fun! -
ARCHIVED Do Both My Parents Have Celiac Gene
Gemini replied to anand's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Anand, Is there any explanation along with the test result? You would need a double DQ2 or DQ8 for Celiac to be present on both sides of your family. I was gene tested and have a double DQ2 gene but I was not too surprised. Like your parents, both of my parents are highly symptomatic for Celiac. I am in the United States. It looks like...- 4 replies
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ARCHIVED Cold Snowy Winter Comin'............ Git Ready
Gemini replied to Candy's topic in Introduce Yourself / Share Stuff
Touché, you little beeyatch! Ha, ha! It's the polar vortex for you! -
ARCHIVED Cold Snowy Winter Comin'............ Git Ready
Gemini replied to Candy's topic in Introduce Yourself / Share Stuff
This is the most perfect description of the weather this wintah! I love it....bipolar! It is 18 degrees F here in Boston today but I like it because the sun is out and shining brightly. I can handle anything if the sun is out. We have had our fill of grey, gloomy days so far. I can handle grey and gloomy if it rains but not when there is dirty snow... -
ARCHIVED The Unwanted Mystery Ingredient From Eating Out
Gemini replied to Starving Amy's topic in Gluten-Free Foods, Products, Shopping & Medications
Amy...brewers yeast and quinoa are gluten free. Ditto for royal jelly but as always, labels need reading or more questions need to be asked. It sounds like you need more food education before venturing out to eat. Anything done as a croquette generally has breadcrumbs on the outside and probably were fried in a shared fryer. Unless you asked specific questions... -
ARCHIVED Advice Re Low Carb, Moderate Protein, High Fat Diet?
Gemini replied to love2travel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I couldn't agree more about the fibro remark. Another case of symptom treating and a fancy name. However, I think many would not be willing to do what you have done to be better and not hurt. They want that in pill form...... -
ARCHIVED Alternative Treatments For Adrenal Fatigue
Gemini replied to GFinDC's topic in Related Issues & Disorders
Thank you, IrishHeart! You don't mess around with hormones because any misuse of them can result in severe problems and even cancer. They are powerful entities and need to be monitored via bloodwork or saliva testing, in some instances. I do think the term adrenal insufficiency is overused but hormone levels can be messed up and need tweaking from time...- 44 replies