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Gemini

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Everything posted by Gemini

  1. Gemini
    It is always beneficial to do genetic testing because if positive, can add 1 more test to your arsenal of knowledge. Yes, it can come out negative for the predisposition for celiac but that just may mean you are NCGI....which means you still need to be gluten-free if you feel a lot better on the diet. If you really suffer when eating gluten to the point...
  2. Gemini
    If the sibling is an adult and doesn't want to go searching for someone who will test because, apparently, there are many doctors who will not even do this unless you are seriously ill with Celiac symptoms, why would it matter at all if any doctor won't "respect" the medical need for a gluten-free diet? I really am having trouble with understanding why...
  3. Gemini
    Yeah.....2 months is not very long and other foods, even gluten-free ones, will cause grief at times. I still, after 8 years, have bad days when I eat something that is harder to digest like a greasier meal or heavier foods. We just have very sensitive tummies and probably always will but it does get much, much better the longer you are gluten free. Just...
  4. Gemini
    Most organs in the human body have the ability to produce tTg antibodies. The thyroid, heart and liver are some, along with the pancreas. When you have undiagnosed Celiac, your body is in a constant state of inflammation. If you go long enough, this inflammation will aggravate other organs and they start to produce tTg antibodies. This is why when some...
  5. Gemini
    To answer your question, I live in Massachusetts....but don't hold that against me! The new criteria for diagnosis, from the leading researchers of Celiac Disease in the US, is positive blood work, positive gene testing, and a positive response to a trial gluten-free diet, with resolution of symptoms. That's way more of a slam dunk that the biopsy...which...
  6. Gemini
    No soapbox.....alll I have to say is AMEN to that!
  7. Gemini
    Geez...you are like my twin! I have a Celiac diagnosis like yourself, based on all the positive criteria except I refused the endo. At 94 pounds at time of diagnosis, plus all the other positive stuff, you'd have to be a complete idiot to question whether I have Celiac. I never go to GI doctors because I have yet to find one that didn't sound like yours...
  8. Gemini
    You know, Abby, the advice already given is good. This should not be an issue, more like overkill on a Celiac's part. I have been gluten-free for almost 8 years now, have had dogs and kitties for my entire life and it never was an issue. I am a very sensitive Celiac also. Unless you eat the dog/cat food yourself, you should be fine. In any thing you...
  9. Gemini
    Welcome! I am a 53 year white female so maybe I can help! Nocturnal diarrhea is very indicative of gluten but it may be that you have additional food issues that are causing this. Have you tried eliminating dairy? Many Celiacs have trouble with dairy in the beginning because the enzyme used to break down lactose is produced in the tips of the villi...
  10. Gemini
    I agree. Why doctors say this is beyond me. Celiac is not rare but false positives, if they really exist, are rare indeed!
  11. Gemini
    Thanks for the tip! I want this cookbook.
  12. Gemini
    You may want to take a look at this cookbook......http://www.celiac.co...-cookbook-ever/ It was recommended by a forum member. I am not a vegetarian but LOVE veggies and include a lot of them in my diet. I tried ordering this but they were out of stock, which says something for the book. I will try again because it looks really good.
  13. Gemini
    I wish you all the best with everything and please keep us posted on your son's results. Everything will be fine and I doubt you will backslide or get careless on the gluten-free diet with him. Once people see the results of the diet, they rarely go back or become lax with it. Let us know if you need any help with that!
  14. Gemini
    Actually, many doctors, as I have mentioned, will diagnose Celiac without an endo. The less progressive doctors will not. Schools are only looking for an official diagnosis and it is no business of theirs in how that diagnosis was obtained. I would go easy on telling people to trust doctors and not us. That kind of thinking has resulted in most people...
  15. Gemini
    Hi VeggieGal, The DGP is a more sensitive test than it's predecessor, the AGA IgA. Both tests have merit in evaluating for Celiac but the DGP is the newer test and more often done here in the States now. You should have those done also but from what your results are that you posted, there is no doubt you have Celiac Disease. Doing the biopsy is not...
  16. Gemini
    Ok...what these mean is that he is having a massive response to gluten. The AGA IgA test is for gluten response in the blood stream. The tTg or T-glutaminase test is for intestinal damage and you notice it is not that high? This goes back to my statement about a 4 year old not accummulating enough damage yet because he is only 4. I went to the age of 4...
  17. Gemini
    This is brilliant, Marilyn! Religious reasons......
  18. Gemini
    I understand your dilemma and the only thing I can suggest is to not feel uncomfortable when saying no to people. You need to learn how to do that. Maybe if you explain to them what you have said here, they will understand and if they don't....not good people to begin with so don't worry about what they think. We have a Christmas lunch at my workplace...
  19. Gemini
    You are going to get a lot of responses telling you to have the endo done but I will be honest in that I would never subject a 4 year old to an invasive test, especially when there has been positive blood work and, apparently, Celiac symptoms. There are other criteria that can diagnose anyone, without doing the endo. You must have positive blood work, a...
  20. Gemini
    I am not sure if Graves affects iron levels but Hashi's does.....if you are not making enough thyroid hormone and it dips too low for more than a short period of time, you can pop anemic. The instability of your thyroid may be causing the low ferritin. I am the same with regards to exercise. I am constantly in motion and do not rest all that often...
  21. Gemini
    I am thrilled for you as having thyroid disease for that long rarely ends up with your results after going gluten free. You may not have Hashi's thyroid, which is autoimmune so this could explain your results. I totally get the eyebrow thing too! I have had Hashi's for over 20 years and now that I am gluten free (7 years ago), my thyroid function is...
  22. Gemini
    I have never noticed food, other than gluten, affecting my Hashi's and am not sure how much it really matters. Most goitrogenic veggies are only so when eaten raw....steaming them makes them more user friendly, without the unwanted affects on the thyroid. I have no issues with soy so I do not go out of my way to exclude that from my diet. I do not think...
  23. Gemini
    This is one of those things you just don't need to worry about. I am very, very sensitive and occasionally have my nails done and I have never had a problem. And before anyone chimes in that we are all different, Peter explained it well. You would not normally eat nail polish....it's not something you should ever ingest. I doubt you chew your nails because...
  24. Gemini

    ARCHIVED Aroma!

    Gemini replied to Coryad's topic in Coping with Celiac Disease

    Another great idea for the baguettes! Now I'm hungry.....
  25. Gemini

    ARCHIVED Aroma!

    Gemini replied to Coryad's topic in Coping with Celiac Disease

    Have a good trip! I always wondered how easy it would be to eat gluten free in Asia, so you'll have to let us know more. What about the soy sauce or do they not use a lot of that? Dedicated woks? I haven't had Chinese food in years. The one place that has a gluten-free menu, P.F. Changs, does not have very good food, IMO. So I go without. Not the same...
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