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Latest Celiac Disease News & Research:
Everything posted by kenlove
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Thats great to know since I have to go to Lincolnshire in June -- is that marriott & dinner theater place still there?
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ARCHIVED Please Tell Me It Will Get Better
kenlove replied to cheesycow5's topic in Coping with Celiac Disease
I would have to dispute this to some extent -- primarily its the balance thats needed although if your only talking about the usual, picked way to early, flavorless fruit found in most American grocery stores, your right. Fresh, more exotic tropical fruit with their different amino acid compounds, natural digestive enzymes and highest natural occurrence... -
ARCHIVED Going To Korea And Japan In April
kenlove replied to CalicoSue's topic in Introduce Yourself / Share Stuff
Hope you have a great trip -- If you can access the forum while there we would love to hear about it. If you get stuck in Tokyo let us know too. I've had an office there 30 years and can get someone to help. There are tens of thousands of better and safe places to eat in Tokyo than outback! just bring your cards and soy sauce with you. have fun! -
ARCHIVED Sending A Form Again Warning
kenlove replied to lpellegr's topic in Board/Forum Technical Help
I was getting it on my laptop with an older version but not with Safari 4.05 -
Hope you'll post the finished story here. Depending on the size of the paper and what you come up with maybe they will let you offer it to AP. Would not hurt them to be a little more aware of things. As a reader, I would want to know that the restaurants in my area were safe -- I would want to know which chefs and staff were really aware of...
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ARCHIVED Please Tell Me It Will Get Better
kenlove replied to cheesycow5's topic in Coping with Celiac Disease
YOu sound like me 5 years ago although I dont think the anxiety was so bad. I didn't spend time on denial either. I did get a couple of hormone injections that helped. Yolo on others on the forum here suggested some B12 which helped a lot with energy. start thinking about some creative things you can make that are gluten free. finding food you can enjoy... -
the sounds are scary at times. My chest has popped so loud it's woken me up out of a sound sleep. GUEss I"ll have to deal with the parathyroid soon. They want to do a bone density first. I just dont want to go into a-fib or a flutter again.
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BEing in Kona -- I had no idea this chain existed until I looked on the net. Sometimes the seaweed can be processed with soy sauce, especially cheaper ones often made outside of Japan. If your sure the table soy sauce is gluten-free then you should have no trouble unless they buy pre-made rice. Many rice balls, onigiri in Japan, have wheat starch...
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Interesting about the thyroid - i was told I have a parathyroid problem with calcium buildup and they will want to remove it in the next year or two. Two more tests scheduled for the next few weeks. Never put it together with the heart trouble since that started along with the celiac. Then again they know so little about celiac it is most likely all tied...
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thanks mamaw they didnt knock me out for this procedure and I didnt feel a thing. mostly topical -- there are no nerves inside the veins so I never knew they already had the wires in me until I saw it on TV. What an amazing difference in just breathing easier! take care
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Thanks bluebonnet i'm still a little weak after running around outside, but considering it was only 9 days ago I cant complain at all. What did they tell you about ablation? I thought the technology was amazing. I think I blame celiac for everythning since prior to that I never had a cold. good luck ken
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I had that month long monitor too and there were no patterns to my pulse which is one reasons they decided to give me the ablation. I know what you mean about that heart rate going up os much too. Passed out in a parking lot last July when it happened for an extended time. It was getting to the point where I would stand up after sitting for 2 hours and...
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ARCHIVED ConAgra Foods
kenlove replied to Lisa's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for posting -- -
ARCHIVED High Prices For Gluten-Free Foods In Stores...
kenlove replied to Hawaii78's topic in Coping with Celiac Disease
Never saw Udi's in Kona where the other frozen and Glutino breads are well over $7.00 That gluten-free black bread is $8.95!!! -
ARCHIVED High Prices For Gluten-Free Foods In Stores...
kenlove replied to Hawaii78's topic in Coping with Celiac Disease
YOu sort of hit the nail on the head -- I dont see the government subsidizing the sorghum and millet growers ()-- Fruit growers would be nice though... -
ARCHIVED Teriyaki Experience Resturant
kenlove replied to miaryan's topic in Gluten-Free Restaurants
Thanks Larry -- interesting. I think im thinking of someplace else -- much older -
ARCHIVED Teriyaki Experience Resturant
kenlove replied to miaryan's topic in Gluten-Free Restaurants
I vaguely remember a Steak and Ale in downtown Chicago. Same chain perhaps? -
ARCHIVED Teriyaki Experience Resturant
kenlove replied to miaryan's topic in Gluten-Free Restaurants
sounds like a great recipe. Sauces were reduced over time in the "old days". IN the South of Japan, sometimes with pieces of sugar cane floating in them. -
ARCHIVED Going To Korea And Japan In April
kenlove replied to CalicoSue's topic in Introduce Yourself / Share Stuff
missy'smom beat me again! She's not only qucik to reply, shes right. I cant tell you much about Daegu or Korea either but I would not eat the sea weeds which are often processed with soy sauce. The kim chee is ok as long as there is no soy sauce in them. You could ask for plain boiled veggies in sokme Korean places, especially turnips. I would bring a... -
ARCHIVED Teriyaki Experience Resturant
kenlove replied to miaryan's topic in Gluten-Free Restaurants
ont know this place but do know teriyaki sauce which is not gluten free and can cause a lot of pain for celiacs depedning how its made. Most of them, including food service industry types from Japan contain not only shoyu (wheat based soy sauce) but also wheat starch and sometimes flour. There are some gluten-free recipes for sauces you can make your self... -
All depends on where you have to go. From where I am in Hawaii to GUam, there is no choice unless I want to go through Manila or Tokyo. No problems so far on other international flights. I say so far becasue Idnt want this to become a precendent for other airlines.. Bad enough there are no choices on domestic AA.
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Having just had minor heart surgery a few days ago I have to say that I never had any heart problems until I was diagnosed with celiac 5 years ago. While they were still in the process of diagnosing me for that I was ssent from the doctors office to the ER for a heart beat or pulse of 168 -- they go it down and put be on pills and didnt have any trouble until...