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gfpaperdoll

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Everything posted by gfpaperdoll

  1. gfpaperdoll
    Hi Alabama girl - yes welcome to the double DQ1 group. No wonder you were so sick. Those of us that have double DQ1 know how awful it is. Believe me double DQ1 gets everything that a "celiac" (sic) person gets plus some like all the neuro stuff, including depression, the heart problems, and all the other auto immune diseases, oh plus we seem to get the...
  2. gfpaperdoll
    oh that is soooo cute!!! yep, who cares about gluten, it is dairy that we mourn
  3. gfpaperdoll
    The secret to cheating is to keep a mental list of GLUTEN FREE goodies you consider to be on your "forbidden" list. For me that would be a $6.00 can of delux mixed nuts (available at Walgreens - on every corner) Potato Chips - I am not supposed to eat potatoes, allergic, but sometimes I can get away with it. Pamela's Gluten Free Pantry Brownie Mix ...
  4. gfpaperdoll
    That is such good news. I think sometimes the family is shocked at how much validation we get at restaurants. I have seen a HUGE improvement in restaurants gluten-free accomodations in this past year. I love it when the chef comes out himself to talk to me. A lot of times I eat alone & the manager & the waiter are waiting on me. People are looking...
  5. gfpaperdoll
    I am so sorry that you got glutened, yep it is the worst & makes you feel emotionally drained. I wish you could have slept all day... Please try to do some nice things for yourself all week & take it easy... Next week will be better!!!
  6. gfpaperdoll
    don't forget about baked sweet potatoes. I also have no idea how long it takes, we are all different. But I can sympathize with the food allergies, I have had them my whole life, I think the fact that I knew foods made me sick, helped save my life. I personally would not eat buckwheat... You could be getting cross contaminated from it. Is your...
  7. gfpaperdoll
    I would pretty much reply as hathor's comments... I do have double DQ1 - let me tell you it is not good - do not buy into that thinking "it is only gluten intolerance" - it is as bad or worse than DQ2 or DQ8. It seems to be the double DQ1 that is the problem. I am very sensitive & I try not to buy anything bob's red mill makes. Definitely not their...
  8. gfpaperdoll
    Tutor - if the tutor is not gluten-free tutor is cross contaminating your son by touching his papers & then giving them back to him & he touches the papers & then touches his food. that is enough to keep him screaming in pain. Not counting that tutor is probably also eating gluten in the car & has the crumbs all over one's person &...
  9. gfpaperdoll
    ohhh, I did not know smarties had gluten in them!!! I will avoid on my next trip to London!!!
  10. gfpaperdoll
    I am sorry your son is going thru this, definitely check out the SCD diet. I would also not give him any of the gluten-free pastas, crackers etc. No grains except maybe white rice - which you wash before cooking, & corn meal & corn flour if he can tolerate it. But before I tried that I would put him on a soft food diet, like boiled chicken with...
  11. gfpaperdoll
    Part of it might be the grieving process for the foods that you not eat anymore. But you will soon have new foods to replace those... start taking a B12 everyday & for the rest of your life. I take Nature Made, buy it at Walgreen's
  12. gfpaperdoll
    Glad you are better Mountain Mamma. Yes you can get sick for two weeks from a crumb. It also could have been the lentils. I cannot eat lentils - never could. I also cannot eat white potatoes, & if I were to eat lentils and white potatoes at the same time !!!!!! Try switching to sweet potatoes. You could have also gotten a contaminated...
  13. gfpaperdoll
    my suggestion would be to give up the gluten free bread and cookies & dairy. obviously you are eating something that is not agreeing with you. 4 weeks might be too soon for you to add in the gluten free grains. The cross contamination issue is also a concern, it kicks in after you have most of the gluten out of your system oh & personally...
  14. gfpaperdoll
    Dear Jenny, Yes I send lots of hugs to you. You have gotten this far, you can get this all figured out. Of course get checked in case it is a cyst. But a lot of people, including a friend or mine & her daughter get a really bad pain in their side from gluten. My friend has spent a lifetime of going to doctors & not being able to sleep at night...
  15. gfpaperdoll
    Jerry, hang in there, I have two DQ1 genes & heck I do not care what the nit picking doctors think they know, gluten intolerance & celiac is really the same thing. I really think gluten intolerance is worse because we also get the neurological stuff, usually have more food allergies etc etc. I would never cheat on gluten, there are just too many...
  16. gfpaperdoll
    I second that vote for Chocolate Icing!!!!! I cook a lot & then freeze meals in glass containers with plastic lids, then I can take one with me or take out of freezer take off lid, place glass plate on top & heat in the microwave. A quick dish is to saute onions, garlic, celery, & what ever veggie you have & then to stir in cooked rice...
  17. gfpaperdoll
    Posting from Texas here, the Tex Mex Capital Mission Brand White Corn Tortillas are fabulous. That is all I use, You can heat them in a skillet, in foil in the oven, fry for tacos or cut & fry for chips & yes, they say gluten free on the package, & I am very sensitive & never have a problem with them. I think they are available...
  18. gfpaperdoll
    Please give yourself a break at home and only cook one gluten free meal for the whole family!!!
  19. gfpaperdoll
    Hang in there with the SCD diet, with no dairy !!! that is the way I basically eat with a few treats of corn & rice. I have been gluten-free 3 years & very healthy.(gluten light for 10 years before that - thinking allergies) If you are desperate for something later on, I recommend Lundberg Rice Chips. In the meantime just enjoy the good foods...
  20. gfpaperdoll
    If you keep the child totally gluten-free & dairy free there is a chance that will fix the hypoglycemia. I always had this even when I was "wheat light" thinking allergies, then when I went gluten-free & then gluten-free/DF three years ago - my hypoglycemia disappeared. & darn, no more fast check outs because I was slumping over a shopping...
  21. gfpaperdoll
    I do not think a child in a family that is gluten-free should ever have gluten. Heck, I do not think most kids should ever have gluten, but most of the parents - my son included are uneducated, ininterested, lazy and willing to keep their head stuck in the sand. well maybe if the child comes down with leukemia or diabetes they might think about it, but...
  22. gfpaperdoll
    My family has DQ1 genes and this seems to come with a lot of allergies. If you keep your child completely Gluten Free, some of her allergies might get better, mine did. Allergy to soy is one of the things to look for in a celiac person. You might need to take her dairy free as well. I use coconut milk in all my cooking, even my cornbread. Can she have...
  23. gfpaperdoll
    I have not read the book but am familiar with the SCD diet as that is mostly the way that I eat. I totally recommend it. One of the reasons is that almost all the grains are cross contaminated with gluten and very sensitive people like me (& probably autistic children) cannot eat the stuff anyway. Not specifically to the two posts here but for anyone...
  24. gfpaperdoll
    Be sure to get a copy of the blood report for your records. I would not put the child thru a biopsy for a diagnosis. A positive blood test is a diagnosis. Also, little effort to just test thru Enterolab. About $369.00 for the poop test for dairy, gluten & the cheek swab for the gene test. You will save about that much in gasoline money running...
  25. gfpaperdoll
    Most of us take at least a B12 everyday - for life. Even if you test okay for the B12, it is the opinion of some of us (& I think substantiated by some reports) that the standard for the B12 level is too low. Gluten can affect you mentally. Once you are gluten-free I think you will notice that the brain also "becomes more clear" and I notice that...
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