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mandasmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mandasmom

  1. mandasmom
    I travel all the time!! 3-4 hours in the car should be no prolem....i always take nuts, fuit, crackers, peanut butter, canned fruit, dried fruit, protein bars and slimfast. I alwasy request a fridge for the room when I make my reservation. Once youve taken a few trips you will get the hang of it..hardest part is travel to places where locals dont speak english...
  2. mandasmom
    One of my daughters favorites is one of those indivdual packages of microwavable brown rice (minute rice or trader joe) covered with a can of sheltons chili--nutricious, easy and calorie reasonable Peanut butter is a college staple--works great on rice cakes lots of fruit and nuts indidual packages of salad dressing, soy sauce and crakers (glutino...
  3. mandasmom
    What the heck is hydrolyzed protein....i suddenly see it in lots of stuff and I have a really bad feeling about the gurgling sound in my stomach...does anyone know what this is??
  4. mandasmom
    Congratulations on your optimistic attitude about eating out and joining in with firends. Eating out always poses a risk for Celiacs but I believe it is a risk worth taking to insure you enjoy the full spectrum of life and of relationships. i eat out frequently and rarely have a problem. i would suggest to you that the simpler the better especially in the...
  5. mandasmom
    Its amazing how a couple of unruly kids can really impact the quality of life for a whole neighborhood!! When we first moved to our neighborhood years ago I was so disappointed that there were so few kids...as the years unfolded i was delighted that our home become a safe place for our own kids to play inside or out without constant need to negotiate the...
  6. mandasmom
    If you are a diagnosed celiac there really is no half way. Gluten free means Gluten free. There are some who do not have cleiac disease who are gluten sensitive..they mayt simply feel better with diets low in gluten. For these patients an occassional ingestion of gluten is not a problem. Celiacs need a completely free diet. Only those with DH need to worry...
  7. mandasmom
    One of the things that I have enjoyed since going gluten-free is the joy of food---real cooking of real food. While giving up fast foods and convenince junk..I have actually learned to cook alot of really cool stuff. I have certainly expanded my horizons regarding all kinds of food and Ive become a bit of a wine expert as well. I takes a bit of time to get...
  8. mandasmom
    I think you get better at this the longer youve been at it....I never allow myself to go anywhere hungry...we always eat before we go. I find that this lessens the anxiety a great deal. I also remind my self that while being glutened is miserable its not initself life threatening. Last weekend I spend 4 houre in the ER with a friend who's 10 year old son...
  9. mandasmom
  10. mandasmom
    I entertain a ton--always gluten free--including special occasions. Ladies luncheons are easy. I vote for a salad bar...lots of veggies and lots of toppings and folks make their own. Ive done this a few times for ladies gatheriengs and it works perfectly!! If you dont want to do a cake --do ice cream sundaes ..decadent and lots of fun ...easy to choose lots...
  11. mandasmom
    Celiac is def covered by ADA..its likley that whom ever u are dealing with at the Univeristy has no idea about that..keep pressing until you get the right person and certainly have appropriate documentation from your daughters MD. I have a 25 year old daughter who was diagnosed while she was in college too. It is a bit of an adjustment when learning to live...
  12. mandasmom
    I always bring chips, crackers etc to restaurants...never gave it a second thought. I have had some odd looks from table mates but a quick one sentance explanation usually works. Dont make a big deal and no one else will either....I never want my celiac disease to keep me out of the loop so Ive learned to eat before I go (even if it means in the car on the...
  13. mandasmom
    Celiac Specialties in Chesterfield Twp Michigan makes rally wonderful buns...donuts too!! They ship daily but they are a bit pricey..
  14. mandasmom
    I thinks it fine to bring your own food..most hosts probably appreciate not having to worry about you guys..lI most often eat before I go (reduces temptation) and whenever possible bring a gluten-free side or dessert that everyone can share...I really like showing others that there are wonderful gluten-free foods!! Last night I went to a friends house and...
  15. mandasmom
    I think that gluten free bread is an oxymoron....really! I keep a loaf of whole foods sandwish bread in the freezer but it goes to waste most of the time...gluten free means bread free for lots of people..i would spend my time and money looking for alternatives to bread rather than alternative bread!!!!
  16. mandasmom
    We will be 18 for dinner on Thanksgivning and the whole meal will be gluten free---I just invite people and they seem to continue to return year after year. If they offer to bring something I have a guest bring the wine and other brings fresh fruit and yet another a veggie tray--everything else is gluten-free...I dont even think some of my guest realize it...
  17. mandasmom
    I am so sorry that you are so ill...celiac disease has so many presentations its hard to diagnose. Many celiacs also have multiple food intolerances. I really hope that you can get to a major medical center where you can be seen by a top credentialed GI doctor. Many MDs dont see alot of celiac in adult patients and therefore are slow to recognize it. Large...
  18. mandasmom
    I think its a falicy that Holidays are fun...its a ton of work for the hostess and lots of inconveince for the guest...we make such a fuss about food no wonder its tough on anyone with dietary restrictions!! I agree that health and safety comes first...I am so lucky cause I have a family (and freinds too) that always call in advance to ask what they can prepare...
  19. mandasmom
    There are many Celiacs who eat out often..especially those with professional lives that keep them on the road alot. I will agree that eating out freqently does increase the likllihood of getting glutened. But I believe ist a risk worth taking. I never want this disease to limit my professional, personal or social choices!! I almost always have a snack...
  20. mandasmom

    ARCHIVED Oats

    mandasmom replied to JNBunnie1's topic in Coping with Celiac Disease

    I was really nervous about trying the oats...weeks of mouth sores is my dreaded reality--but I finally gave in and bought cream hill estates..good news!! No problems at all..I still limit my intake to 1 or 2 servings a week..some times instead of my oatmeal as breakfast I use the Cream Hill in baking. I will use it as topping for an apple crisp on thanksgiving...
  21. mandasmom
    Ive been doing a gluten-free thanksgiving for years..i never even mention that fact to my guests!! REally!! I use a fresh turkey--organic--and stuff it with a rice and dried fruit stuffing..i have also used cornbread. Mashed potatoes..sweet potatoes with strusel topping (gluten-free oatmeal)..Brussel sprouts with carmelized onions...chebe bread...butternut...
  22. mandasmom
    My mother developed Alzheimers in her late 60s and died of related causes at 72..just a few months before a few family memebers wer diagnosed with Celiac...I am fully convinced that she had undiagnosed Celiac and suffered with various symptoms all of her life....reading this article reinforces that completely...I feel lucky that many of our family memebers...
  23. mandasmom
    I agree-Gulios is awesome....wonderful food and even a bit of live music on the weekends!!
  24. mandasmom
    I live in Michigan...my celiac daughter lives in West Hollywood. We are always amazed how much easier it is to manage in small communites like ours here in Michigan then it isi in a big city like LA. However, there is a very active support group in the area and a brand new gluten-free bakery in culver city-the sensitive baker-so the resources are growing...
  25. mandasmom
    We eat TJs stuff all the time....much of it is prepared on shared equipment...I suppose the only way to know for sure is to periodically have blood drawn to tell if you are reating to the small possiblity of CC. Even shared equipment must be thoroughly cleaned between products..that insures the taste and quality of the food. We havent had any overt problems...
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