
hathor
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by hathor
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I don't have any answer; I just want to commiserate. Reactions can be immediate or happen anytime within the next 2 to 3 days. So it makes it difficult to tell. I drive myself nuts sometimes looking at my food diary and trying to see links. The last couples days I felt, oh to heck with it. I spend all this time listing what I eat and how I feel and I...
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ARCHIVED Is Gluten Intolerance Stage One Of Celiac Disease?
hathor replied to CCM's topic in Related Issues & Disorders
I don't think there is a standard medical definition of gluten intolerance because the condition isn't even generally accepted. I think once there is an accepted test, the definition and the good statistics will follow. I've heard 30% of the population. I've heard 10%. I've heard four to five times the number of people with celiac. Hard to tell. I... -
ARCHIVED Unsure About Gluten Intolerance
hathor replied to Sharon818's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did eliminating gluten improve things at all? When you did have gluten, did you feel worse? I think this will tell you if you have a problem with gluten. It is possible that you have other intolerances in addition to gluten. Casein and soy seem to be common ones. Others on this board react to nightshade veggies, legumes, corn, you name it. If you... -
ARCHIVED Did You Have Gluten Withdrawal?
hathor replied to HappyMomof5's topic in Coping with Celiac Disease
I personally didn't go through withdrawal. But some do, and it is a documented phenomenon. Gluten and casein can create a bit of an addiction due to their biochemical effects on the brain -- explained here: Open Original Shared Link -
ARCHIVED Do I Have Celiac?
hathor replied to nicodemus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
She said she already had the blood tests and they were negative. You could try for an endoscopy. But this doctor sounds like a dismissive jerk. He might not do one. And there are negative results possible for that with people who have clear gluten problems. If it were me, I would avoid gluten and see if I felt better. If I still wasn't convinced... -
ARCHIVED Enterolab -- Waiting Patiently(?)
hathor replied to Mom23boys's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My results took a little over two weeks to arrive. -
ARCHIVED Labeled G-f But Made In Factory W/ Wheat!
hathor replied to stellarpink182's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't thus far. "Made on the same equipment" products are iffier. They do NOT have to include such warnings. Any such warnings on products are strictly voluntary. -
/celiac-disease/safe-gluten-free-food-list-safe-ingredients-r181/ Regular oats are always cross-contaminated with wheat. (Only intentional ingredients have to be listed in with ingredients. Any other warnings are voluntary.) There are special, gluten-free oats available. People with gluten intolerance may be able to tolerate those. However, some don...
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Casein isn't found in ghee, because that is 100% fat. I've heard that butter has very little casein, but still has some. Lactose-free products will obviously spare you the lactose (the sugar) but not casein (the protein). To avoid casein, you have to avoid all dairy ingredients (milk, cream, yogurt, cheese, whey, etc.) plus anything with casein or a...
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I can't find the original link I saw about the varying alpha-type casein (the type we react to) content in goat's milk. But a little googling found the following: "For milk proteins, the beta-caseins seem to be more dominant than alpha-caseins compared to cow milk (Jenness, 1980). However, more recent evidence from France and Italy has proven that the...
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Yes, fat is one cause. But I believe there are others. For instance, cows are milked while they are pregnant. So there are estrogens in their milk.
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ARCHIVED Elimination Diet Gone Wrong?
hathor replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This isn't quite right. They sell BOTH gluten-free oats (which say gluten-free in large friendly letters on the package) and regular oats (which are cross-contaminated, like all regular oats). There is no indication that they plan to discontinue selling the regular oats. -
I haven't heard that about parmasan at all. If it is made from cow's milk, how can the type of casein change as the cheese is aged? My understanding is that cheese has more casein in it than milk also. Anyway, goat's milk MAY work. I've read that the casein-type distribution can vary from herd to herd however. Some goat's milk has none of the nasty...
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ARCHIVED Casein Intolerance Vs. Lactose Intolerance
hathor replied to skikat's topic in Parents, Friends and Loved Ones of Celiacs
For most people, casein intolerance appears to be permanent. I have read at least one poster on this forum where it wasn't, though. I don't know that lactose intolerance is always temporary. There are plenty of nonceliac folks where it is a lifelong condition. -
Yes, this is correct. I should have made that clear. Thanks! Sometimes when I up the weight, even getting to 8 may be a problem at first It is useful to write down what you do, the reps, number of sets, and weight used, whether you need to scale back or go to a higher weight the next time, if you had to take a midset break, etc. It is nice to see...
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Have you tried googling? I'm sure there are exercise sites out there. What I've heard is that you go with a weight where you can't do one more rep. If you could do more, you aren't stressing your muscles enough to make all the progress you could. If you do the same number of reps with the same weight, well, you will plateau. Also it is helpful to change...
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ARCHIVED Gluten In Toothpaste
hathor replied to mama2two's topic in Gluten-Free Foods, Products, Shopping & Medications
Here is a link I found with the gluten responses of assorted manufacturers. I've been using Tom's of Maine myself. Their response in April of last year is reported as follows: "Only two of our products contain gluten: Natural Moisturizing Hand Soap liquids (Contains wheat protein) Natural Moisturizing Body Wash (Contains wheat protein) All other Tom's... -
ARCHIVED It's Not celiac disease, So What Could It Be?
hathor replied to threedee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with what has been said. There are false negatives with traditional celiac testing. Gluten can be damaging your body for some time before the antibodies show up in your blood and the damage is observable in your villi. I've certainly read a number of people here who had negative tests, continued to eat gluten (and feel crappy), then were tested... -
ARCHIVED Cooking Oils
hathor replied to mak07's topic in Gluten-Free Foods, Products, Shopping & Medications
I think "groundnut" means peanut, which is a legume, not a true nut. Edit: you may or may not react to an oil made from an allergen. For instance, some people who can't handle casein CAN handle ghee. Some who can't handle soy can handle soy lecithin or even soybean oil. If you are reacting to the protein and a product contains no protein but is 100... -
ARCHIVED Norwegian Cruise Lines
hathor replied to laurelfla's topic in Traveling with Celiac Disease
Thanks. I'll try that the next time I go on a cruise. I've heard good things about Norwegian before from another celiac, so I figure that they are the ones to go with next. I particularly like all the different restaurants onboard. Flexibility is nice. -
ARCHIVED Having Trouble Accepting The Diagnosis Of Celiac And Allergies To Food
hathor replied to applecore's topic in Coping with Celiac Disease
I was tested by Enterolab for gluten, casein, egg, soy & dietary yeast. -
ARCHIVED Elimination Diet Gone Wrong?
hathor replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
By "added fat," I mean anything that is 100% fat. I eat some naturally high-fat plant foods to a limited extent. But at home at least, I rarely eat anything with oil in it. Occasionally I will use a tiny bit of olive oil if a recipe absolutely needs it, figuring that this is closer to a real food as was created by nature (they just press the stuff out... -
ARCHIVED Having Trouble Accepting The Diagnosis Of Celiac And Allergies To Food
hathor replied to applecore's topic in Coping with Celiac Disease
Yeah, active dry yeast and baker's yeast (and brewer's yeast for that matter) are the same genus & species. There are yeast-free breads and bread recipes out there. It is difficult for me to give advice on this, because I'm not at all sure that I react to yeast, even though I had a positive score. My score was right above Enterolab's cutoff and... -
You might try cutting out dairy and soy first. These seem to be common additional intolerances. No reason to go on an elimination diet if the problem is one or both of these two. If you google, you can find different elimination diets. The one I know about is here: Open Original Shared Link There are places that will test for intolerances or food...
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ARCHIVED Father In Law Appears Celiac Too, But Tested Neg.
hathor replied to KierasMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is a rather significant percentage of false negatives with the blood test. Is that what they had? If they are amenable, they could try Enterolab testing which is more sensitive and isn't messed up with attempts to go gluten free. (If gluten has been eaten in the previous year, the tests are said to be valid.) However, I don't know how anyone can...