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nora-n

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Everything posted by nora-n

  1. nora-n
    Hi, I personally do not think these 4 days matter for the blood tests or for the biopsy either. I was virtually gluten-free because of a low-carb diet for some months so I tested negative....one really needs a lot of gluten to test positive. nora
  2. nora-n
    Hi. I was almost at the north pole, in Longyearbyen for a couple of weeks...I still have some pages to read in-between..... I googled klinghardt and got some hits, yes, Germany. I still have to read through the pages. nora
  3. nora-n
    Hi, I just caught up.....This morning I received a newsletter from Mercola (I keep getting them and they are sometimes interesting) and the last note was about ART and Klinghart! (the tilew of the newsletter is something with vitaminD, and this note had a note "Dr. Mercola recommends" " Get to the Root of Chronic Illness... Dr. Dietrich Klinghardt's...
  4. nora-n
    with me, it tokk 6 weeks for the neuro symptoms to return. and, I read an another board that someone's father went back on gluten and did fine but tested sky-high on antibodies after a year. (he then died of lung cancer after a few months. She thinks the gluten did not help his immune system..) nora
  5. nora-n
    Hi, I just want to add that GI specialists only look for the villi blunting or villi atrophy kind of celiac (I think it is because here in europe patients get money from the health departments in some countries and they need a positive biopsy. Without positive biopsy, no celiac and the same rules re.celiac diagnosis apply to you.) You might be super-sensitive...
  6. nora-n
    I noticed the fatigue lifted after 7 months gluten-free. I had had a gluten challenge before , to get the boipsy, I was back on gluten 5 weeks (negative results, too short but one week after the neurological symptoms came back (the floor seemed so far away) and I had a burning sensation again (which had disappeared while gluten-free) and then I had to...
  7. nora-n
    Looks like to me above 20 since the 20 is on the open side of the <. The transglutaminase test is pretty specific for celiac, but weak positives are not so specific. I just read several articles on that. If yours were above 30, the doctor would have sent you to an endoscopy. Now you are in the maybe-section for full-blown celiac, or in te latent section...
  8. nora-n
    Yes, this makes more sense. I think it would have been more clear if they had reported the double DQ2 the first time. nora
  9. nora-n
    Maybe if you post which lab did the gene tests, someone might know how they report the test results. I have read here that many labs only test positive or negative for DQ2 or DQ8 so I assumed your results were positive or negative for DQ2 or 8. Maybe they report DQ5 as well, and leave - whern it is negative for DQ2, 8, or 5, I do not know. Have not seen...
  10. nora-n
    Yes, it is weird since they say 5 (DQ5 is a subtype of DQ1, and the alpha allele is 0101 and the beta is 05* or *05 I do not remember which, and there are lots of very gluten sensitive persons on the internet with DQ1) and they printed a - so I thought it meant it was negative for DQ2 or 8, just like my test was. Yes, they get one from you and one from...
  11. nora-n
    I have a computer like this too and it does this too....
  12. nora-n
    It just means that the other beta allele was negative for DQ2 or DQ8. They did not test for which DQ type it was. (In the thread here is a wiki link that explains the DQ types (nor so much on topic, but)...Open Original Shared Link ) nora
  13. nora-n
    Hi, I was off gluten before testing too and that is why I have no official diagnosis. I was back on gluten just 5 weeks before the biopsy. Now in hindsight, as the more severe symptoms did not return util the 6 weeks bak on gluten, I think they should not have dismissed me altogether then. We should probably have continued with testing. nora
  14. nora-n
    Or you mean moons on the nails? nora
  15. nora-n
    The doctors here have some leeway, my daughter who went back on gluten got an official diagnosis based on response despite negative blood tests and biopsy. But, the doctor doing the biopsy called on the others there to show them what an abnormal intestine looked like. They only took two samples and only looked at one sample. The doctor who gave her the diagnosis...
  16. nora-n
    I am still waiting for the results. The biopsy was not taken at the site of active spots as the Iga would have been used up there. My only concern would be that I have been gluten-free for more than a year but I had an outbreak just before the biopsy because of an accident with frying fish fingers, I fried mine first and then the gluten ones and my frying...
  17. nora-n
    I am in Europe too, and here we need a proper diagnosis with a biopsy. This also has to do with money from the government for gluten-free food and the school sytem and food at school etc. Even relatives want a proper diagnosis or they just feed the kid gluten to test her or something like that. The enterolab test results would not be accepted by doctors...
  18. nora-n
    samento, where do you buy it, from the doctor, or in health food shops? Where would i look in Europe? I read some years ago on a thyroid forum that a Dr. white was diagnosing lyme in many thyroid patients that did not get better from taking thyroxine by looking at the blood in an dark field microscope and he sold samento to them. This was in the UK. nora
  19. nora-n
    Geopathic stress could be something like water or magnetic fields below the house where the bedroom is. If you always feel better sleepitn in other houses or hotels you probably have geopatic stress under your bed. There is this magnetic grid everywhere too and at the crossings the engery is too much I think I remember. In addition there are water and other...
  20. nora-n
    About the amalgam, sweden will soon follow and ban amalgam too. The thing is, the dentists can use up what thay have, but they cannot buy any new amalgam. They are griping ang complaining because they say in some special cases only amalgam works, like in some old people who keep their mouth open.... No, I did not do detox, had no place to go , nor any money...
  21. nora-n
    Here are some university lectures for your doctor about celiac diesase, over one hour, on youtube Open Original Shared Link found at the delphi celiac forum. nora
  22. nora-n
    I had a biopsy like that too, and they tested the sample (same as celiac biopsy sample, because the lactase enzyme is made in the tips of the villi) for the enzzzyme. I was not lacking the enzyme....but I do not tolerate any tracs of milk, it feels like my intestines get swollen and I get constipated for a day or so. I rreact to the protein but I have no...
  23. nora-n
    Hi all, about amalgam: it is officially forbidden here in Norway the first of january 2008. The new rules were passed on Dec 21th so many dentists did not get the news until they returned from holidays after new year on january 2nd..... I had mine removed in the early 90's , started in the late 80's as I always got progressively more tired after each new...
  24. nora-n
    Hi, I see in your siggie that your sister tested positive for celiac in a blood test and biopsy....so you have a good chance to have it too, with those symptoms. Sometimes it may take a long time and a lot of damage before the tests for celiac turn positive, and various labs have dfferent cutoff limits, some only detect 60% of biopsy prove celiacs in...
  25. nora-n
    Yourdaughter must have DQ6 as one of the DQ genes, and this is a subtype of DQ1. DQ5 is a subtype of DQ1 too, by the way. DDQ1 seem to be even more gluten sensitive than DQ2 when they first are gluten sensitive, judging from all the postings here by DQ1 people. Dr. Hadjivassiliou found that 20% of his gluten ataxia research subjects have DQ1. I guess...
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