MaryJones2
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Latest Celiac Disease News & Research:
Everything posted by MaryJones2
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That's terrible that you had such a bad experience. Bugaboo Creek has a Open Original Shared Link so you might consider contacting their corporate office and letting them know what happened. I don't think it's acceptable for a restaurant with a published gluten-free menu to charge extra for a salad when their menu clearly states that salads require special...
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ARCHIVED "Super Sensitive" Celiacs.....
MaryJones2 replied to jerseyangel's topic in Super Sensitive People
Wow. I can't believe how alike we all are. I haven't done dairy or soy in 3 years. I am learning, slowly, that corn is a problem too. It's so nice to know that I'm not alone. -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
MaryJones2 replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Unfortunately I don't think there is much you can do about this. I do some contract work with a few apartment complexes and this is pretty standard practice. It's likely in your lease agreement somewhere that they can enter your apartment at any time for any reason with or without notice. Most complexes are very good about notifying residents ahead of... -
ARCHIVED Whole Family Took Enterolab Tests - Overwhelmed - Help!
MaryJones2 replied to gfreston's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There are two sides to this. If you do the gluten-free thing for a few months and then remove dairy for a few weeks chances are you'll find out quickly who has a problem and who doesn't. The other side is that dairy is really hard to digest and can delay healing. Many people remove dairy initially and add it back in after several months. I think it really... -
ARCHIVED I'm Mad At Nature Valley's Granola Bars
MaryJones2 replied to 626Belle's topic in Gluten-Free Foods, Products, Shopping & Medications
The other two ingredients that jumped out at me are oats and natural flavors - both of these are potential sources for hidden gluten. -
ARCHIVED Making Bread From Scratch Need Help!
MaryJones2 replied to KatieTall's topic in Gluten-Free Recipes & Cooking Tips
Bette Hagman's Gluten-Free Gourmet Bakes Bread cookbook was a big help when I was starting out. Everything is from scratch. -
Welcome Donna! You've certainly found a great support group here.
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ARCHIVED Why Is It So Hard?
MaryJones2 replied to Bridy's topic in Parents, Friends and Loved Ones of Celiacs
Open Original Shared Linkmakes a pasta shape called "Little Dreams". It has bunnies and other fun shapes. Open Original Shared Linkmakes gluten free fish sticks and chicken nuggets. -
ARCHIVED If This Is True, I'm Gonna Freak
MaryJones2 replied to MarsupialMama's topic in Gluten-Free Foods, Products, Shopping & Medications
Well...I have heard of this but have never found a company that uses wheat based films. If they did it would have to be declared. I think washing produce thoroughly is enough. You have so much to worry about already! If it helps I am super sensitive and haven't had any issues with fresh, whole produce. (I don't do well with precut stuff but I think... -
ARCHIVED Highly Sensitive People
MaryJones2 replied to Gentleheart's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi James, to answer your question yes. 8 ppm can make some of us sick. The generally accepted threshold is 20 PPM in the US. Once the FDA regulations go into effect products will have to be at 20 PPM or less to be called gluten-free. The problem with most people on this particular thread, myself included, is that we can't tolerate even 20 PPM. Most of us... -
ARCHIVED How Sensitive Is "very Sensetive"?
MaryJones2 replied to raisin's topic in Coping with Celiac Disease
I do this too. This system works for me. It's really all about what my body tells me. -
ARCHIVED Dry Eyes
MaryJones2 replied to sdiconsiglio's topic in Parents, Friends and Loved Ones of Celiacs
I don't know if a specific link to celiac has ever been proven but there is a condition called Sj -
ARCHIVED Peripheral Neuropathy And B12
MaryJones2 replied to Laurenlovespink's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When I started several years ago mine was around 350 and considered 'normal' by the lab standards but I certainly felt off. Two of my doctors like to see it about 500. I feel much better when it higher that's for sure. I've been doing weekly injections for several years now and love them. It's one less pill I have to worry about each day! ' -
ARCHIVED How Sensitive Is "very Sensetive"?
MaryJones2 replied to raisin's topic in Coping with Celiac Disease
jerseyangel, that's a great idea! Your story could be my story. -
ARCHIVED gluten-free & Dairy Free
MaryJones2 replied to AshleyS's topic in Related Issues & Disorders
You might consider keeping a food journal. It really helps a lot when you are having sporadic issues. -
Kathy is correct. Most Xanthan Gum is derived from corn. It can also be derived from soy, etc. Namaste products use Xanthan Gum that is carbohydrate free and is not made with soy or corn (although I'm not sure where it comes from).
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ARCHIVED Gluten-free Vitimins
MaryJones2 replied to raisin's topic in Gluten-Free Foods, Products, Shopping & Medications
The FAQ is helpful: Open Original Shared Link Q---How does Kirkman -
ARCHIVED Glutino Products : Reaction?
MaryJones2 replied to raisin's topic in Gluten-Free Foods, Products, Shopping & Medications
You might want to check their allergen chart and see if you can find a pattern. You might be sensitive to one of the ingredients. Open Original Shared Link -
ARCHIVED Gluten-free Vitimins
MaryJones2 replied to raisin's topic in Gluten-Free Foods, Products, Shopping & Medications
I really like Kirkman Labs. Because I have multiple intolerances I have a hard time finding vitamins that don't upset me. -
ARCHIVED Awesome! Gfcfsf Cream Substitute For Cooking!
MaryJones2 replied to climbmtwhitney's topic in Coping with Celiac Disease
Excellent find! I am going to check this out. Thanks for posting. -
ARCHIVED Your Input On Fatty Stool
MaryJones2 replied to KenzieGirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well that certainly sounds like a gluten reaction to me! I know it stinks (no pun intended) but you really need to sufficiently load yourself up daily with gluten for 6-8 week for the tests to be accurate. I hope you find your answer although I think you've already figured it out! -
ARCHIVED Feeling Worse On gluten-free Diet
MaryJones2 replied to finlayson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Me either. McCormick is on my rather small list of absolutely trustworthy companies. I trust McCormick over most grocery store brands. -
ARCHIVED Feeling Worse On gluten-free Diet
MaryJones2 replied to finlayson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oats are a tricky beast. They are OK if they are certified gluten-free but even then a certain percentage of celiacs can't tolerate them. It's generally recommended that you aviod oats until you are healed and introduce them slowly. Open Original Shared Link Open Original Shared Link -
ARCHIVED Sorrento B.c.-anyone?
MaryJones2 replied to celiac-mommy's topic in Traveling with Celiac Disease
There was a discussion about this recently but I can't put my hands on it. Peter had a really good post about what can/can't cross the border. Hopefully he will chime in later. As a general rule of thumb for any customs it's organic matter like fresh meat, vegetables, dairy products, etc. -
ARCHIVED Going Gluten Free
MaryJones2 replied to TJ060306's topic in Parents, Friends and Loved Ones of Celiacs
welcome tj, there is so much to learn. Gluten is not required to be listed and can hide in things (barley is especially troublesome and hides in natural flavors, etc.) so I'd recommend you purchase products that are on gluten-free lists or come from reputable companies that clearly label all forms of gluten. I personally think it's a great idea to make...