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JennyC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JennyC

  1. I am a loyal customer! See's chocolate is wonderful.
  2. If you are still eating gluten then I would do a combination of things. I would do IgG testing if that has not been already done and a biopsy. If those are inconclusive and you still do not feel like you have your answer, then you might consider genetic tests for celiac. ~97% of celiac patients are either HLA-DQ 02 and/or 0302 (08) positive.
  3. This doctor is crazy and needs to be reported. Celiac disease is a genetic disorder. Therefore eating brown rice, beans and vegetables are not going to change your DNA. It will also not stop your lymphocytes from reacting to gluten. This is so frustrating. That doctor must have forgotten all the science he has ever learned.
  4. My favorite places are the Hawthorne/Corbett Fish house, Picazzo's Pizza and Garlic Jim's Pizza. Open Original Shared Link
  5. We use small to moderate amounts of their fava bean flour all the time and have never had any problems. However, I think the garbanzo bean flour is horrible!
  6. Some doctors are really set in their ways. If the GI dismisses you because of a negative biopsy, please find a new doctor for your child. Sometimes we really have to push hard and advocate for our children.
  7. You can remove the paddle after the first kneading cycle. I do that even with my machine so that the hole in the bottom of the bread is smaller.
  8. Please don't let the doctor convince you that she does not have celiac disease if her biopsy is considered negative. There is a medically accepted term called latent celiac disease. Latent celiac disease takes place when there is positive serology and symptoms but a negative biopsy. The thought is that celiac disease is present, but not enough damage has...
  9. I make bread from scratch in my bread machine. For some reason my bread seams to turn out better in the machine. I spent the money to buy the Breadman Ultimate with a gluten free setting, but next time I buy a bread machine I would buy a cheaper model as long as I can program it. I never use the gluten free setting because it only has a 20 minute rise...
  10. The fries are fried in dedicated fryers. Wheat is one of the starting ingredients for the beef flavoring. It is so highly processed that no gluten can be found in the final product. In Europe it is not uncommon for wheat containing products to be labeled gluten free, such ingredients include glucose syrup and wheat starch. Maybe we are a little behind...
  11. I am in the process of finding a new pediatrician, but we do have a great pediatric gastroenterologist. With all your child's problems you should easily get a referral to a specialist. Her name is Dr. Terry and she practices at Doernbecker Children's Hospital at OHSU. She's awesome and very highly recommended by many physicians and GIG. Open Original...
  12. Another vote for Kitchen Aid. My mixer is a workhorse and it takes all the abuse I give it, and keeps working strong.
  13. There is a ton of QC done in the lab, and there is not as much variability as one might think. Proficiency tests are frequently done in which samples of unknown concentrations are sent to the lab and the results the lab gets must be within a certain range of the absolute value of the samples. QC is done with each new reagent lot and also with each instrument...
  14. No, they only have soy sauces that contain wheat. La Choy soy sauce is gluten free. Last time I checked Kroger soy sauce is gluten free too.
  15. My son was getting glutened by Wellshire kids dinosaur shaped chicken nuggets. The Chicago Tribune even did an article stating that their products tested positive for gluten , at times very high levels, on numerous occasions! I am still furious. My son's tTG level went from 4 to 19 (reference range <21) during the year he was frequently eating their...
  16. For some reason my bread comes out better in my bread machine. I customized my own bread machine setting. I have the Breadman Ultimate and it's gluten free setting did not have enough rise time. Also I remove the paddle when it's done kneading, so the hole is not as big.
  17. If you call Starbucks corporation they are knowledgeable. Don't quote me on this, as I have not talked to them in a while, but they do not consider the vanilla frap to be gluten free because the vanilla powder may be cross contaminated with gluten. This is also true for the vanilla powder in the shaker that you can add to your coffee. Also the malt frap...
  18. Do you know the reference ranges for the tests done? Different labs have different normal values.
  19. I don't really know of many restaurants on the coast. In Nehalem, Oregon the pizza garden has gluten free pizza. In Seaside, Oregon you can eat some of the breakfast foods at Pig & Pancake. If you are passing through Portland there are lots of places to eat. If you give me some more information, I could try to be a little more helpful.
  20. I usually start them on the stove, then finish them in the oven. I'm sure you could cook them however you make your oven fried chicken. I was mainly posting about the marinating technique.
  21. I use the following recipe from epicurious.com as a template for my fried chicken. (I do reduce the salt though! ) Marinating chicken in buttermilk with lots of spices makes it SO flavorful! I will never make it any other way. In fact last time I made this chicken, I forgot to flavor the outside and it didn't matter because the inside was so great. ...
  22. Yes, like I said I have not been following this rule. I think maybe that's why my cakes and sweet breads fall. I think the 2:1 ratio might be most useful when baking finicky things?
  23. I was looking into this question the other day, and I found that gelatin acts as an additional binder. If you look in the ingredients of some gluten free mixes, especially the ones that are not so "main stream," some contain gelatin. It seems that you can use 1 tsp gelatin to 1 cup of flour. I just made a new flour mix, and I added some gelatin. This...
  24. We live in Portland, Oregon and we have it so great here that I don't ever think that we could move! We have four gluten free pizza places within a ten minute drive from my house. We also have many bakeries, and even two fish houses! There are also plenty of health food stores like Whole Foods, Trader Joe's and New Seasons Market around. I think our...
  25. This is what we use. My son is supper picky and he does not like home made mac & cheese. We use Kraft mac & cheese powder and tinkyada pasta.
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