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TrillumHunter

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Everything posted by TrillumHunter

  1. TrillumHunter
    Finally diagnosed....you posted while I was posting! Your dd sounds like a combo of my kids! I had one cranky, crying one and one who has been constipated since two. They are both doing fantastic. My son had been taking Miralax for the past four years. He hasn't had it in a month and is going every other day. It is truly amazing because he could not...
  2. TrillumHunter
    I think it is important to remember even when we don't have a recognizable reaction to gluten it can still be doing internal damage. The various reactions we have to gluten aren't the real problem. It's the sometimes silent destruction of our villi that can shorten our life span. We are a gluten free household even though I am the only diagnosed celiac...
  3. TrillumHunter
    I answered on the other one about this. I had those for years and years and I never had anything but white to off white colored ones. That said, the ent that took my tonsils said any type of matter can become lodged in there. He also said stuff can stay deep in the gland for quite a while. Gross indeed! Have you seen an ear, nose and throat dr? I would...
  4. TrillumHunter
    Baba ganoush-roasted eggplant dip! Yummy! You can do it without the tahini but I love the stuff and it keeps pretty much forever in the cabinet so it's a good thing to have around. This much more than a dip at our house. We eat it over pasta, spread it over pizza crust, and mix it with rice. Open Original Shared Link
  5. TrillumHunter
    Violet, So it just went away after going gluten free huh? Well, I am very, very happy for you and very, very mad it took me so long to be diagnosed. I wonder how many of us have/had this? I tell you, I was so sick with this for YEARS! For months at a time I would be hoarse and have a sore throat. I had been a singer in high school but I completely lost...
  6. TrillumHunter
    Is it stuck in your tonsils? You can rinse them out with a water pik or even gently nudge them out with a Q-Tip. It's called cryptic tonsillitis and the only cure is a tonsillectomy. I started getting it in my early twenties and they treated it with antibiotics. But it is almost impossible to clear because of the nature of the the gland. I wound up getting...
  7. TrillumHunter
    Second that. It's a yes or no test. Folks who have low positive numbers are no less celiac than folks with high numbers. I actually took my high negative daughter off gluten and she's doing FANTASTIC!
  8. TrillumHunter
    I wanted to add some additional ideas to rescue flops. It can make very good french toast. Have you ever made an egg casserole? Layer the buttered, sliced bread with shredded cheese and crumbled sausage/ground beef if you eat it. Whip up some eggs and water and pour this over the bread mixture. Bake in a 350 oven until it looks browned on top and bubbly...
  9. TrillumHunter
    Okay, so just some general baking temps. All of your ingredients, except the liquid you use, should be at room temp. Cold flour and eggs will weaken the raising power of the yeast and gluten-free bread needs all the help it can get. The fat you use should be cool but not so warm it's runny. Granulated bread machine yeast is the most forgiving yeast. ...
  10. TrillumHunter
    I find they need lower temps than their gluten counterparts. Are you pretty familiar with baking in general? I don't want to be insulting to you and talk about water temp and rising times and the like. I'm surprised you didn't like the GFPantry French bread. I've made it and found it to be light and fluffy. One thing these gluten-free mixes need is a...
  11. TrillumHunter
    Three healthy pregnancies and babies while undiagnosed here, too! Take care of you and your little one. I second the drinking lots of fluids. It helps with almost all of the pregnancy complaints.
  12. TrillumHunter
    I would say never ask a patient if they have diarrhea or constipation. Those words mean very different things to people. It might be uncomfortable for the patient and the dr but descriptive words need to be used! I'm actually an RN and I would never have called what I had "diarrhea." Over and over again they asked me that and I said, "No, but they are...
  13. TrillumHunter
    I would second the water and magnesium. I take magnesium three times a week.
  14. TrillumHunter
    We're pretty new at this as well. We have noticed tremendous changes in our 9 yo dd. Her temper was out of control before. A small request to pick up her socks would end with her in her room for the night at 5:00 pm. She still gets worked up but she can seem to hear the warnings now. She stops much, much sooner than ever before. To me, that is the...
  15. TrillumHunter
    I haven't been on in a while because life a has been busy. We have gone gluten-free as a family now and I have been working hard on adjusting recipes. Homemade pizza was a Friday night specialty for me before celiac. Friends raved about it! I've got some tips to share if anyone is having a hard time getting it to turnout well. 1. Parchment paper is...
  16. TrillumHunter
    Cooking is like that sometimes. Good for you for not giving up! Some of the best meals I've ever made have been substitutes for disasters--and I've been cooking a long time!
  17. TrillumHunter
    I have fantasized about it.... No, I wouldn't because I'm having a hard enough time educating the dr taking care of me right now. My friend is a nurse and she works with the hematologist who said to me, "You do not have any type of malabsorption disorder." She told him that, in fact, it turned out I did. His response? "Oh, really." Good luck if you...
  18. TrillumHunter
    I really like Bragg's Liquid Amino better than any of gluten-free soy sauces.
  19. TrillumHunter
    Are you taking any supplements? I was really deficient in B, A, D, E, iron and magnesium. I hope eventually my intestines will heal and I can stop them but in the meanwhile I can tell if I miss them. My cycle was horrible before I was dx'ed. So bad, in fact, I was considering hysterectomy. Since going gluten-free they are light and *almost* pain-free...
  20. TrillumHunter
    The gene test--We went through Enterolab. Our insurance wouldn't cover it and it was THOUSANDS of dollars through the traditional labs. It is less than $200 with Enterolab. And to be frank, I don't want this on her medical records right now. It is hard enough to get covered and with a chronic illness it can be impossible. I don't want that to be an issue...
  21. TrillumHunter

    ARCHIVED Stupid Doctor

    TrillumHunter replied to ~alex~'s topic in Doctors

    Run as fast and far away from this man. None of us is without defect. Don't give him any more of your memory space!
  22. TrillumHunter
    I share your happiness! I was dx'ed after 13 years of unexplained illness. I immediately tested my three kids. My dd's test was 1 POINT below positive. I had her gene tested and she is DQ2 so she went off gluten. WHAT A CHANGE! I posted recently about the wonderful turn around she has made. She isn't officially dx'ed but there is no way you could convince...
  23. TrillumHunter
    Okay, so second follow up with APN I originally convinced to test me for celiac disease. She is still saying I might need a colonoscopy despite me correcting her and giving her literature about it. I said today, "NO, I would need an endoscopy. They would need to biopsy the small intestine. Her answer--"Oh but an endoscopy only looks at the duodenum!"...
  24. TrillumHunter
    I get angry and short tempered with everyone in my path. It's a relief to hear that others have this as well. Two weeks ago I glutened myself through carelessness and I was a witch to the kids for three days. The fourth day I absolutely crashed one afternoon and had to sleep for three hours. After that I felt fine--like myself. I talked with the kids...
  25. TrillumHunter
    Thank you, Holly! I am seriously looking forward to eating there--maybe more than once. I'll tell you about it when I get back. Thanks again.
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