TrillumHunter
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Latest Celiac Disease News & Research:
Everything posted by TrillumHunter
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ARCHIVED I Can't Commit To Gluten Free Without Some Sweets!
TrillumHunter replied to ohitsonlynicole's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't want to preach at you, but if you are eating gluten on a regular basis you probably won't be able to get past this no matter how delicious the gluten-free sweets are. It's not the sugar you are craving, it's the gluten. If you were diabetic, would you be too busy to check your blood sugar? You have to get a handle on this even if you never... -
ARCHIVED Introducing A New One
TrillumHunter replied to tarnalberry's topic in Introduce Yourself / Share Stuff
Absolutely lovely! Much happiness to you all! -
ARCHIVED America's School Lunch Problem Solved
TrillumHunter replied to minniejack's topic in Related Issues & Disorders
I see you're from WV-my dh's home state. Any chance she's sensitive because of the Jamie Oliver visit to WV. I heard that really pissed people off in Huntington. -
ARCHIVED Type 1 Diabetic, Positive Blood, Rash, Negative Gi
TrillumHunter replied to Lecia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The ADA says that about 1 in 20 people with Type 1 have celiac. I think your drs need a refresher because they seem to be willing to let your entire small intestine flatten before they'll recognize something is wrong. If you don't feel like educating them, and you have the opportunity to go to a center, you should go. Keep in touch and tell us... -
Nope, looks like you've got it. There is such a thing as silent celiac. It's okay. Work through how you feel and you'll be okay. It isn't that bad. About the b12-your body normally has a good store of it. You can be drawing from this if you aren't absorbing it from your diet. Until this store is used, you won't be deficient. There isn't...
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ARCHIVED Convert This Recipe!
TrillumHunter replied to daphniela's topic in Gluten-Free Recipes & Cooking Tips
I agree with Rachelle. Your really making a savory cream puff, so you should be able to sub in any gluten-free flour mix. If you don't have a mix, I use a light starch mix like white rice flour/cornstarch. Let us know how they turn out! -
ARCHIVED Fda Survey For Celiacs Regarding Labeling
TrillumHunter replied to Kathleen Smith's topic in Coping with Celiac Disease
I didn't sign up for anything. -
ARCHIVED Privacy And Your Feelings About It?
TrillumHunter replied to seezee's topic in Introduce Yourself / Share Stuff
Wow. This tops it for me. I'd be livid. I'd feel like her rights had been violated. I'm not a litigious person, but I believe I would consider that route if this "teacher" weren't fired. Would she "joke" about diabetes? Would she out a child with HIV? Spoken to her at length wouldn't be enough for me. Dismissed would be best; leave... -
ARCHIVED Fda Survey For Celiacs Regarding Labeling
TrillumHunter replied to Kathleen Smith's topic in Coping with Celiac Disease
I just took this and was going to post. It's not too long, and there is an opportunity to comment at the end. -
ARCHIVED Flour Weights
TrillumHunter replied to shepgs's topic in Gluten-Free Recipes & Cooking Tips
Open Original Shared Link This has a lot of them. I've trying to compile them myself, but it depends on the manufacturer. -
ARCHIVED Do You Think I Could Be Celiac?
TrillumHunter replied to dragonfly17's topic in Coping with Celiac Disease
Sure, all those are things you can see with celiac-or not. The only way to know is get the blood test or commit to a strict gluten-free diet for a few MONTHS. It takes a while for the villi to heal, so you most likely will have symptoms even after being gluten-free. It's up to you as to whether you need a definitive diagnosis or not. Lots of people... -
ARCHIVED I... But... Look, Can Someone Tell Me If This Is A Lot?
TrillumHunter replied to MagpieWrites's topic in Coping with Celiac Disease
It's always good to have a catch phrase to go to when she says something awful. Something like, "Oh my, that's something..." You can mentally fill in the blanks. There are lots of snappy comebacks, but you have to be the kind of person who can do it. I get the feeling you aren't really like that. Nothing wrong with that as long as you don't let her... -
It looks like they may be planning to offer gluten-free sandwiches if the response is good. Please go vote! I've eaten there before and it's good.
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ARCHIVED Snyders- Call To Action
TrillumHunter replied to cbear6301's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for posting that link, Jestgar. I had a mini-meltdown recently because my kids sat down and ate an entire bag of Glutino pretzels while I was gone for about an 1.5 hours. This was right after I had fed them a full breakfast. I really wanted pretzels and a Dr Pepper that evening. -
ARCHIVED Is Low Blood Pressure/being Extremely Cold
TrillumHunter replied to SLB5757's topic in Coping with Celiac Disease
Being anemic can cause this as well. This is very common in people with celiac. You need a ferritin test as well as a CBC. Other signs of iron anemia- chewing ice, shortness of breath, dizziness when you change positions, and unrelenting fatigue. Some folks do have low bp, but if this is a change for you, it isn't normal. -
ARCHIVED I Cannot Believe It!
TrillumHunter replied to proud-armywife's topic in Coping with Celiac Disease
Oh, the digestive issues will come if you keep eating gluten. That's what happened to me. I had many of symptoms of celiac that aren't commonly recognized--unrelenting anemia, neurological problems and such. I was diagnosed with pernicious anemia (b12) in my early thirties. It wasn't until I couldn't have any milk products and was SPRINTING to the toilet... -
ARCHIVED Not Doing Well Emotionally
TrillumHunter replied to sandsurfgirl's topic in Coping with Celiac Disease
I think it helps to think what would you tell a friend who came to you with the same complaint. Would you tell her to suck it up loser? No, you'd tell her to take extra care of herself and forget about doing everything. I think you should take your own good advice. You'll feel better. Prayer IS key for me! -
ARCHIVED Neurological Symptoms And Eosinophilic Esophagitis
TrillumHunter replied to Hiawatha's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It can improve, although it goes very slowly--think years. I was diagnosed with pernicious anemia first and started b12 injections. Those helped, but it wasn't until last year that I could say I don't have the pain/tingling sensations very often. I do get those on the couple of times I've gotten gluten. I think it would have take longer being just gluten... -
ARCHIVED Gluten Free Oats?
TrillumHunter replied to jello5's topic in Gluten-Free Foods, Products, Shopping & Medications
Also, to add to all the good info Roda gave you, it's best to avoid even gluten-free oats if you are recently diagnosed. They're something to be added cautiously after you've had a chance to heal. -
ARCHIVED Prayers Needed For A Mom
TrillumHunter replied to TrillumHunter's topic in Introduce Yourself / Share Stuff
Heather passed away peacefully last night. She will be deeply mourned by her husband and three children. It is a great loss to our parish and homeschooling community. Thank you for your prayers. -
ARCHIVED New Worst gluten-free Food Ever
TrillumHunter replied to BethM55's topic in Gluten-Free Foods, Products, Shopping & Medications
I really like these and I don't like rice pasta. Hmm, I do think they are tricker to cook. They can't boil too hard and there is a narrow window of deliciousness. Did you cook them all or do you have some more to experiment with? -
ARCHIVED Was My Doc Right?
TrillumHunter replied to celiacmom2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Like people on her say, can you be mildly pregnant? No! It's an either/or kind of thing. Buffetbrides post made me think of that. -
ARCHIVED Was My Doc Right?
TrillumHunter replied to celiacmom2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm with Raven. I had a decade of neurological symptoms before I finally developed GI symptoms. Like she said, this ISN"T a GI disease, it's auto immune. Most of the neuro problems I had resolved on the gluten-free diet. But I am left with residual damage to my nerves and I've developed an inability to absorb iron in my diet. I've recently had to... -
I'm very happy to read this! It sounds like you are in good hands and he'll get to the bottom of it. Mom to mom, I know this is a HUGE relief! To his good health!
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Hi all, A mom in my parish had a stroke on Saturday. The dr thinks she has a slim chance of surviving. She has three young children, so this is very hard. If you are so inclined, please pray for her and pass her name to any prayer list you can think of. Her name is Heather. Many thanks!