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mftnchn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mftnchn

  1. mftnchn
    I've also read something about infants and children having more bifidum than adults, as I recall. Ali I think you are right, so little is known about the exact balance we all need. My MD (who treats a lot of autistic kids, people with lyme and many other things) said that it is more important to stay away from the other cultures and the inulin, FOS...
  2. mftnchn
    Thanks, that is totally fascinating. Not sure I can handle the fecal transplant idea very well, LOL!
  3. mftnchn
    I think that is what Elaine said too on an email somewhere. If you can confirm what's in it, it's fine. I did 5 days on intro, and don't regret it at all. It was boring for sure. I would cut your magnesium, but realize it may be shifts in your body. I had loose, normal, mucous, parasites, and fatty stools in those first 5 days, then by a week...
  4. mftnchn
    On the constipation protocol you can start with the almond flour muffins, 1 a day, right after intro. You can progress as fast as you tolerate but it is always wise to add one food at a time, every couple of days or you can end up going backward and redoing things. I have found slower is better. I am trying to watch both constipation and bloating as...
  5. mftnchn
    Since you are primarily gluten free, it will be hard to further test celiac. I am afraid that you are not going to know whether it is celiac or gluten sensitivity unless you go back on a high amount of gluten for weeks to months--long enough to have significant intestinal damage that can be found on biopsy. Its hard because there are not other ways to...
  6. mftnchn
    I followed it pretty carefully from the beginning. Although not too symptomatic, I knew from testing about severe malabsorption and carb digest problems. I made one exception 2-3 times, with making smoothies from fresh blueberries. Also I have followed the constipation protocol of having one almond flour muffin a day. I have moved beyond that now and...
  7. mftnchn
    Gina, I have been following Elaine's protocol for constipation that is on the www.pecanbread.com website, only I cannot get prune juice. You might check that out to try as well.
  8. mftnchn
    Hi Gina! I'm also on SCD and constipation is my major celiac symptom. How long have you been gluten free and how long on SCD? Magnesium helps a lot for me. I don't take much calcium with it, my doc isn't concerned about that for some reason. I take oral (quite a bit right now due to relapse after gluten contaminated spice recently), and injections...
  9. mftnchn
    Same for me. Actually this is what led me to my celiac diagnosis. I had tried the "tried and true" and it didn't work; I found the references to gluten problems when searching for answers. I was up to 1600 mg of magnesium in the early months of gluten-free!!!! But was gradually able to cut it down to 300-400 daily and not every day. Now I am back up...
  10. mftnchn
    Paula, sorry to hear this. I think the colonoscopy is a good idea. I just had a screening one this summer and it was relatively ok. Just the prep was rough.
  11. mftnchn
    Dawn, its great to see you making progress. It does get easier!!
  12. mftnchn
    I don't mean to be an alarmist, but honestly, I am alarmed. This could just be curiosity, but it could very well be much more than that. In my opinion it has to be carefully looked into. It is obvious to me that this boy is familiar with porn, it isn't likely that he figured this out in the few minutes he had access to your computer. He is also willing...
  13. mftnchn
  14. mftnchn
    Hello and welcome!!! In Asia, the rice cookers have a \"keep warm\" selection. It will stay on 24 hours. It is too hot for yogurt but I have a way to make it work Let me know if you are interested. Another thing here are little gel filled hand warmers that you can plug in to warm and then unplug. I keep mine plugged in and it is just enough to keep...
  15. mftnchn
    Well said Patti, and thanks Shay. I agree that my need for this is for hidden sources primarily and it needs to be highly reliable. Shay, I hope you send your test results to the company.
  16. mftnchn

    ARCHIVED Need Advice

    mftnchn replied to Wonka's topic in Coping with Celiac Disease

    Wonka, So sorry for all of this trouble. Sounds like you were about 50% on gluten-free but never fully better? I think taking the step to try to eliminate any CC and rechecking your food and personal care items makes a lot of sense. About the water, I use reverse osmosis. Other thoughts I have are: -be sure you have eliminated possible lyme...
  17. mftnchn
    Scotty, I have just been on SCD since July '08. Lyme I have had a long time. I think I got it in about '82-'83, at least then I had a tick bite and my neuro/pain symptoms started after that, and allergy symptoms went crazy. Ameoba infection was found too. Finally got diagnosed with lyme in 2000. I have been treating for 8 years, and overall am much...
  18. mftnchn
    I did have an endoscopy such as was offered here, prior to doing Enterolab. No biopsy. No one here even knows what celiac is, I have found. It isn't common in Asia--although there is more of it then previously thought so over time it might be "discovered." I live in an area where there is a high consumption of wheat. I (and my doctors) have been the...
  19. mftnchn
    Neesee, I am well aware of the limitations of Enterolab testing and do not speak of it as "gold standard" diagnosis to anyone. I say I have a clinical diagnosis of celiac. I have non-classic symptoms. In my case, I did Enterolab testing on a whim, I was looking for an answer to chronic constipation. My results were starkly positive. Malabsorption over...
  20. mftnchn
    Sorry, SCD stands for specific carbohydrate diet. It is designed to help heal the gut. For me, and possibly others who are celiac, damage to the villa means that we do not adequately produce carbohydrate digesting enzymes. Often mentioned is lactase, but there are at least two others that cannot be produced without villa. When we don't break down sugars...
  21. mftnchn
    Gina, the BTVC book and other sources on SCD usually comment on diarrhea instead of constipation, so you have to really look for the C information. What I have discovered is that both D and C are considered to be caused by the same thing, so C is a sign that we are going too fast introducing foods. I'd suggest doing intro. It is important for getting rid...
  22. mftnchn
    Fiddle faddle, I totally agree. And many of us have tried alternative healings and testings which have not been "validated." No one forces anyone to use Enterolab. If we respect others doing alternatives but not Dr. Fine, we are not being consistent IMHO. Neesee, that is fine if you have a clearcut reaction and clearcut improvement. I don't, and not...
  23. mftnchn
    Castor can you post a list of the foods that you can eat? Maybe we can make some suggestions based on that. Yes, lyme is incredibly debilitating. Sounds like you are taking some steps though, way to go!
  24. mftnchn
    DMarie, I've posted here before that a baking solution may be to try to find duck eggs. You may have no sensitivity to them due to no previous exposure. There is some cross reacting that occurs when people are allergic to foods, so sometimes if you were rotating foods you could have duck egg on one day and chicken egg two days later. I don't care for...
  25. mftnchn
    Scotty, Magnesium helps with constipation and keeping the intestine able to contract. You can make yogurt with nut milks, coconut milk or even in veggies. Once you get the hang of it, it isn't that hard. It is also much cheaper than buying probiotics which can be expensive for good ones. Yes, not all probiotics have dairy. You should be able to...
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