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mftnchn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mftnchn

  1. mftnchn
    Hopefully others can contribute here. My impression is that you only had two of the five tests that are recommended on this site. Also what is the reference range for the first test result?
  2. mftnchn

    ARCHIVED Endocopy For Celiac On Tuesday

    mftnchn replied to mmshutt's topic in Doctors

    Call the company and inquire about the source--maybe the maltodextrin isn't barley??
  3. mftnchn
    Please keep us posted, and know that what you are feeling is something we have all been through. It does get better, and this forum is a lifeline and the best source of support and information I have found.
  4. mftnchn
    20% of celiacs present with constipation only, another large percentage have alternating diarrhea and constipation. Elimination diet would help, however, that will be very difficult in the military. If you have enough time, you could try the "rare foods diet" and see if your symptoms cleared up on that, if they do, add in one food at a time. I'd still...
  5. mftnchn
    Yes false negatives are frequent, from what I have learned on this forum. Also, you have to be eating the equivalent of 3-4 slices of bread a day for a number of months prior to the blood testing and biopsy, or the false negatives are very high. Dependence on these for diagnosis is the current medical standard, but the research is very clear that this misses...
  6. mftnchn
    You've had some good replies here. I'd add the reminder that some people don't see any improvement for the first year (I remember one posting here to that effect) so patience can be the name of the game. Meanwhile, our intestines simply don't work that well, and it takes up to 2 years gluten-free for the healing to finish. I have a lot of bloating as...
  7. mftnchn
    Yes, I agree. Check out Dr. Fine's resume. Also, someone here on the forum has worked in a laboratory and looked into Enterolab. I found her comments interesting. She said that Dr. Fine's tests on stool are the exact same reagents etc that are used in the blood tests for celiac. I too hope that he publishes. However, I had this experience: I...
  8. mftnchn
    I'm intrigued that night sweats can be celiac related. I get them too, but not too often now. I thought it was/is hormone related. I am starting the menopause track, am now irregular. Just another possibility: lyme disease. Night sweats are very much a part of the symptom spectrum, especially with babesia. Check out the lyme disease thread which...
  9. mftnchn
    I also travel a lot, but am not in a different place every night, and I travel in Asia mostly. Nuts are my food to fall back on. I carry cashews every time I travel. I buy raw and bake them myself but you can probably find them already roasted and safe to eat. I also carry my food with me, frozen in individual portion containers. I usually check...
  10. mftnchn
    I went gluten-free in April 2007, and have lost some weight (can't tell you exactly) but the loss has increased in the past month or two. Also I still have times where I really bloat, but also now have some times when all that goes down. Dmack, One thing is that the healing takes a long time. 1 week is very short when it takes 1-2 years for adults...
  11. mftnchn
    Hi Alvin, welcome to the board. The Chinese for celiac disease is 乳糜泻。 You might try searching for that on google, I found several articles in Chinese but didn't notice if there were any references to Singapore. I found that info about DQ2 in Southeast Asians interesting. The thing is, with the coming and going of many races of people in Asia over th...
  12. mftnchn
    Kassandra, Black, "tarry" stools are typical when there is intestinal bleeding somewhere higher up. If you see red blood that is coming from the end of the system--like in the rectum. I also find eating chocolate or a lot of cookies with dark molasses, that it will darken the color of my stool.
  13. mftnchn
    Welcome, Matilda. Some good ideas already. Hopefully the doctor will do a broad spectrum of checks, like all the chemistry and metals, check for lyme, parasites of all types (this is very important and the lab used is extremely important), fungus and mold and other bad bacteria in the intestines. Have you tried elimination diets? You haven't mentioned...
  14. mftnchn
    I have had periods like this, where I seldom caught colds. Also since 2000 and doing lyme treatment, the ecoffee really seemed to keep colds from happening or being more than very mild. I would have one start, and after ecoffee symptoms would clear almost. Last year I caught a lot of colds, maybe 6-8. Doctor gave me vitamin A emulsion to use, and...
  15. mftnchn
    Still reading a few pages back.... My update: I took the spirulena for 2 days and then had symptoms, but I don't know if it was that. I'll check it again. I still have dips occasionally and it isn't always easy to figure out from what--too many variables. I am keeping a basic record, just need to take a look and see if any pattern shows. Interesting...
  16. mftnchn
    Kassandra, My husband had a motorcycle in the early 90's and has a titanium hip. He has had another repair on it as well as the first repair didn't take too well (too much damage in the hip bone). The bone grew very well into the titanium from the first on the leg portion, and the second time, the hip bone grew well into it as well. He hasn't had...
  17. mftnchn
    No I haven't noticed that. Just the sunshine wiping me out. Yeah, I agree this in interesting. I am going to try this and try to notice if it helps. I am running out of charcoal and digestive enzymes, so I am going to likely have to figure out some other approaches for a couple of months until I get back to the USA. Everyone--I'm off on another...
  18. mftnchn
    Welcome to this forum! Please know that we have all been there when it seems overwhelming and there is nothing you can eat. I affirm your decision to do the testing now even though it might not show up. You'll have a baseline for the future. Here's my suggestion. While you are getting the testing done (hopefully as soon as possible) and still eating...
  19. mftnchn

    ARCHIVED No More D

    mftnchn replied to tmk's topic in Coping with Celiac Disease

    There are some really good threads here on constipation with tons of ideas. A combo of vitamin C and magnesium works really well for many, and it good for you as well. If you try magnesium, go with the same dose for 4-5 days before each increase as it usually can take a few days to have an impact.
  20. mftnchn
    Hello, mtndog...thanks for the update. I can relate to the lyme combo and how wiped out during those early months of treatment. Glad you are in the process and it does get better.
  21. mftnchn
    Julie, right now my sense about the detox baths is that it stirs things up for sure. So my guess is that it both mobilizes the toxins and helps you get rid of some. But sounds like it is easy to overdo, and that we need to make sure we have what we need to bind toxins. I am going to try again, but do half the amount (1/4 cup total, of a mix of salt, soda...
  22. mftnchn
    Sure, but I need to make the cinnamon rolls again. Taste is good and they look nice, just a bit too dry. I want to tweak it a bit more and try again. My hubby was quite happy and ate quite a few. He is never negative and ate the others we made, but he LIKES these. lol Here's the cookies, both are more the cakey type of cookies: Soft Molasses...
  23. mftnchn
    There are some good pie crust scratch recipes if you google it. All have the issue of stickiness, but taste can be pretty good! You can search the forum here for tips on pie crusts too. I found a lot.
  24. mftnchn
    It is a big adjustment especially when we feel so miserable. I spent many many hours reading this forum, and eventually things started falling into place. As has been said, simple meals at first will help. Remember that with a diagnosis of celiac it means absorption issues. So often many of our symptoms have to do with deficiencies. Your doctor was...
  25. mftnchn
    Welcome. This is a place with lots of information, including answers to your questions. It takes awhile to read everything. Because of cross contamination, it is not easy at all to have both a gluten and gluten-free kitchen. Does your family do well with following a clear regimen in the kitchen? If not, you'll constantly deal with CC symptoms, and...
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