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mftnchn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mftnchn

  1. mftnchn
    Hi, and welcome. This is a place where lots of people are willing to give help and support. I notice that you did not have a biopsy. It is not uncommon at all on this forum to see people who have both negative blood tests and biopsy but still have celiac or at least a very severe gluten sensitivty that responds well to the diet. In addition, it is...
  2. mftnchn
    Hi, been keeping up reading, just quiet. Quick update, but its late and gotta go to bed on this side of the "pond." No, Jin, never found zinc. I'm skipping it for now. My test last week for milk didn't go really well. Not strong dramatic symptoms, but felt foggy and fatigued enough that I couldn't do much. But the worse thing is that I haven't...
  3. mftnchn
    Unfortunately, I think all are possibilities and each person has to figure it out. CarlaB is one who tested sensitive to casein on enterolab and later has been able to eat it. She says she is gluten intolerant but not celiac. I just tested it after 4 months off milk totally, and have not done well at all. I challenged it with quite a bit of milk in...
  4. mftnchn
    There are a few dishes you could consider. You need to make sure they don't add MSG--which can be from wheat, though not always. Chicken or shrimp with cashews usually has no breading or soy sauce, probably has cornstarch. Sometimes the steamed fish but it can have soy sauce. Sweet and sour sauce may have soy sauce or may not. You would have to ask...
  5. mftnchn
    Are you saying these were the results or the tests requested?
  6. mftnchn
    I'll just add that I have read a number of people on the forum that only learned eventually by experience that they need to cut out any gluten containing personal products. They do not at all seem to be over-reacting when you read their stories. Based on that, I decided I needed to make the effort to eliminate those things. When I did eliminate the soap...
  7. mftnchn
    You've had some good responses here. Here's my thoughts: You could ask for a copy of your test results and compare the tests to the five listed on the Columbia University web site or post them here and someone can tell you what you are missing. Also, there is one of them that if it is low, means that your antibody response is depressed, and means...
  8. mftnchn
    Good news to confirm what the issue is so you know how to address it. The doc sounds great, seems like he needs to be cloned all across the country!!
  9. mftnchn
    I don't know but it is a good question. Hope you can find something and let us know.
  10. mftnchn
    I don't know, but glad you are asking. This forum has been mostly a safe place to ask such things. Hopefully, someone has had that experience.
  11. mftnchn

    ARCHIVED Newbee

    mftnchn replied to Doc1977j's topic in Coping with Celiac Disease

    I second all of these ideas. Also it wasn't clear to me how long you have been gluten-free? The celiac diagnosis sounds firm, now its just making sure you are completely away from gluten, and being patient. The ups and downs are where I am at too.
  12. mftnchn

    ARCHIVED Hidden Symptons

    mftnchn replied to VRB's topic in Coping with Celiac Disease

    Did I miss something? You said you were diagnosed with gluten intolerance, not that you were diagnosed as celiac. How were you diagnosed? What tests did you have? If you are asymptomatic and don't have positive celiac blood tests or villi damage confirmed by a biopsy, then you might not have celiac disease. If this is a gluten allergy, and you have...
  13. mftnchn
    Good, thanks for letting us know. Potatoes are from the nightshade family, so if you continue to have problems you could check those. Most common beside potato would be tomato and green pepper.
  14. mftnchn
    I have to agree that these other food intolerances may or may not be life-long. Although Dr. Fine is pretty negative about milk for anybody, that impresses me as not a balanced approach. I think we need to remember that celiac is not an allergy, it is an auto-immune disease triggered by gluten. We don't know that other foods cause a similar disease process...
  15. mftnchn
    I wonder if there would be a down side of only taking calcium and not magnesium as the two work together in the body.
  16. mftnchn
    Andrea, that's great news. I am really looking forward to hearing about improvements these treatments make, even if you can't do everything right now.
  17. mftnchn
    Just a note to mention that as I understand it even two weeks gluten-free might give you negative blood and biopsy, especially in a young child as they heal much faster than an adult does. Also Enterolab does not diagnose celiac, only gluten sensitivity, and according to their website, up to a year after you stop eating gluten. That's amazing the attitude...
  18. mftnchn
    Hi, do a bit of a search on this forum and you'll see some bread recipes recommended. I personally am using one that was posted here that is made on the fast cycle of a bread machine. We like it and I have served it to several non gluten-free people who were very surprised it was gluten-free.
  19. mftnchn
    You might try activated charcoal capsules to help absorb. For food allergies, Vitamin C in mega doses can be really helpful. If too much it causes diarrhea, but that isn't all bad if you are trying to move a food through your system. I am taking L-glutamine which is supposed to help the intestine heal. Its an amino acid. I don't know if anybody uses...
  20. mftnchn
    Hi Janet. I think these are all good things to check out. You could keep a food diary and see if there was any change in symptoms. If it was me, I would first do an elimination by food group. First dairy, if no relief then eliminate all grains, if no relief eliminate all legumes, if no relief eliminate all nightshades. The other food I would check...
  21. mftnchn
    I fully agree with your getting tested for both of these diseases. I hope you will keep us updated. I can relate to the arthritis although mine has not been deforming. Also I think lyme arthritis can move around the body a lot, like even change over a few hours. That's what my arthritis did. However, the arthritis meds didn't help me at all. I finally...
  22. mftnchn
    I agree with everything said here. It is worth the trouble to find out now. I have struggled for a good portion of my adulthood with the symptoms and it has really cut into my life. Not to scare you, just be thorough now so you don't regret it later!
  23. mftnchn
    The issue is that the blood tests and biopsy pick up the advanced level of damage in the intestines only. So once you go gluten free healing occurs and false negatives are the norm. So yes, if you want a diagnosis, go back on gluten (significant amount) and do the tests now. Otherwise, sounds like you are on the right track and just stay on the diet...
  24. mftnchn
    There is quite a learning curve on this disease! Yes milk products are gluten free. Yes many of us have problems with milk. Several possible reasons: intestinal villi damage means the villi tips are not there to produce enzyme to digest lactose. In this case, you have to wait until healing has occurred. 6mo maybe?? Intolerance to casein, the milk...
  25. mftnchn
    Jin, nope Ambien works great for me. Just try to get along without if I can. Fellow insomniacs, maybe what is going on with our bodies just in disrupting the hormones system, estrogen, progesterone, cortisol, thyroid, etc. or other things I don't remember have impact on sleep.
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