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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    I figured out I was intolerant to oats by challenging them a couple years ago. I ate them three times a day and reacted by day 2. It was the same reaction that I get to gluten. I didn't like the one Bob's Red Mill product I tried and since there are so many I do like, like Pamela's mix and Tom Sawyer, I never tried any others. As to meds I don't think oats...
  2. ravenwoodglass
    If this started after you added dairy back in perhaps you could drop all dairy again and see if it resolves.
  3. ravenwoodglass
    I tried it once for a couple of days as I like lemonade. I just put fresh lemon in water with a bit of sugar. For me it caused a great deal of discomfort. I have no idea why maybe just too much acid for my system. I hope your not talking about the lemon water detox with cayenne pepper and maple syrup. If you are thinking about doing that do a search on lemon...
  4. ravenwoodglass
    I'm glad you have a good freind that is going to help you through the process. As another poster stated depression can be directly related to celiac. There have been many studies on it and if you do a search using the words celiac and neurological or celiac and depression you will find a lot of peer reviewed info. It is hard at first but once you have healed...
  5. ravenwoodglass
    As was stated folks that are doing the diet strictly and still have issues are encouraged to go back to their doctors. There are many here who feel much better and have gotten their lives back by following the diet even when tests were negative. Can we have other issues going on, of course we can. Can we have other intolerances, yes we can. Many who are...
  6. ravenwoodglass
    The biopsy can also give a false negative. When your done with testing the best way to know if you need the diet is to do the diet.
  7. ravenwoodglass
    Yea it's okay to skip the endo with positive blood tests and it is becoming much more common for doctors to skip them. I hope he is doing better soon.
  8. ravenwoodglass
    I know it's scarey when our children are ill but now that she has been diagnosed and will be on the diet her problems should go away and she will avoid many more down the road. Do make sure that the rest of the family is at least tested and sometimes making the whole home gluten free can be helpful. Sometimes the hardest part is getting the diagnosis, for...
  9. ravenwoodglass
    What are you eating? If you can go with mostly unprocessed whole foods that can help you heal fastest. Make sure that you have your own dedicated toaster and scratched pots and pans, strainers for pasta and any cutting boards that have been used for gluten foods. It can take some time to heal and some of us find a food and symptom diary to be helpful in pinpointing...
  10. ravenwoodglass
    That's great news. It does feel so good when our 'personal pharmacy' keeps getting smaller and smaller. Glad to hear everything went so well.
  11. ravenwoodglass
    Have they done a celiac panel yet? That would be a good first step if they haven't done one already. Keep in mind that even on gluten you could still have a false negative on both blood and biopsy. I also was the heaviest I had ever been in my life before diagnosis and others have also gained weight as they got sicker so that doesn't rule it out although...
  12. ravenwoodglass
    If you are continueing to have pain and blood in your urine and possible problems with your kidney that are concerning you then it might be a good idea to see a nephrologist. They specialize in kidney issues. If your symptoms have been relieved with the diet then IMHO it would be counterproductive to gluten yourself for the 2 or 3 months it would take to...
  13. ravenwoodglass
    I hope you told those folks about the high rate of false negatives and encouraged them to try the diet anyway. They may not choose to do so but I sure do wish someone, somewhere had clued me in when they first started testing me. No doctor in all the years they kept testing me ever said a word about the high rate of false negatives. Their doctors likely didn...
  14. ravenwoodglass
    Becca, Welcome to the board. Your going to find a lot of good ideas and support here. Do check out the recipe section and as another poster said if you need ideas for replacements just ask. I go with Thai Kitchen rice noodles a lot instead of specialty gluten free pasta. It is a bit less expensive and I love the angel hair but they also make a thicker one...
  15. ravenwoodglass
    Sign me up, especially if there are some older unattached nice guys that are going.
  16. ravenwoodglass
    I don't recall ever seeing this section before. Whoever is responsible for putting it in thanks for doing so.
  17. ravenwoodglass
    Anything that gets onto your hands or contacts a mucous membrane can cause the antibodies to form and a reaction to occur. Some are more sensitive to small amounts than others. Some use gluten containing topicals and don't have a reaction. I am not one of them.
  18. ravenwoodglass
    I agree. I just carefully rinse and sort them before I use. Most bags even say to sort to look for rocks. I have on occasion found a pebble but as of yet have not found a wheat grain. I appretiate the companies like Wegmans that tell us of the risk.
  19. ravenwoodglass
    I think it took about 2 to 3 weeks for me to get mine back. PS Boy do I miss the days when I was a "Proud breastfeeding, babywearing, part time cosleeping" Mom. Enjoy them now cause they are gone way to fast.
  20. ravenwoodglass
    Please don't give up hope. For one thing the liver is an organ that can regenerate. Maybe the diet won't be a 'cure' but it certainly can't hurt anything and you may find it stops the degeneration in it's tracks. There are quite a few people here that have had elevated liver enzymes and other signs of liver problems that have seen them resolve once they have...
  21. ravenwoodglass
    I don't have an answer about the tea but Gimbals makes gluten free licorice scotties. I eat the jelly beans all the time but haven't seen the scotties in stores. Now that I found the website I'll have to order a bunch. Off to do so right now. Open Original Shared Link
  22. ravenwoodglass
    He sounds like a great doctor. The one thing I wouldn't do is put her back on gluten in the future. Doctors used to think that kids would outgrow celiac because it can be a long time after they go back on gluten before the gut symptoms appear. Meanwhile the antibodies can attack other organs. IMHO it is not worth the risk. Glad to hear she is doing so much...
  23. ravenwoodglass
    Stevia is in the ragweed family so if someone is allergic to ragweed they may have problems with stevia. I am allergic to ragweed and get an allergic reaction to it but it is not a gluten reaction.
  24. ravenwoodglass
    I have the same issues with the kidneys that you describe. As long as I stay away from gluten I am pain and bleeding free. Can't say it will be the same for you. If you want a diagnosis of celiac from the GI you need to go back on gluten for a couple of months. If you just can't stand the pain of that then keep in mind we don't need a doctors permission to...
  25. ravenwoodglass
    Just a quick off topic note, after your done with your tests go gluten free for a while and see if it helps no matter what the results. I have had my arthritis in remission now for 8 years and while my joints still look gnarly they work and my pain, which all the meds never helped, is now totally gone...unless I get glutened.
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