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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Have you used the Brownie mix before with no issues? I say this because I don't tolerate BRM mixes. It is not that they have gluten but that I don't tolerate the sorghum flour that many of them contain.
  2. ravenwoodglass
    If you do a search with the words neurological and celiac you should be able to find a bit of info on this.
  3. ravenwoodglass
    If you had both postive bloods and biopsy you are celiac. Have you eliminated any of the other common intolerances that many of us have, soy, dairy and eggs? Have you eliminated distilled gluten grains? Some of us are sensitive to those.
  4. ravenwoodglass
    If you call your local health dept you should be able to get info on who to call to test. I am glad you seem to be getting some relief. According to the link Lisa was nice enough to post your area has really low levels of floride (.81 with 4.0 being the max allowed, so I wonder if that is it or something else maybe in the water that you are sensitive to...
  5. ravenwoodglass
    I hope you have a wonderful and relaxing Birthday. Enjoy your day.
  6. ravenwoodglass
    You do have a lot of possibly celiac related symptoms. If you are planning on having a biopsy keep eating gluten until that is done. When a celiac related testing is finished do give the diet a good strict try for a couple of months. Read as much as you can here and ask any other questions you need to.
  7. ravenwoodglass
    The following is from the FDA website. Caramel coloring can be made from malt (barley). That would not have to be declared on the label. How often it is I don't know. The gluten would likely be in extremely small amounts but someone who is supersensitive might have issues. Open Original Shared Link (a)Identity. (1) The color additive caramel...
  8. ravenwoodglass
    I would suggest trying the diet anyway. You have nothing to lose.
  9. ravenwoodglass
    There is no cure for celiac other than the gluten free diet. Acupuncture may help with some of the inflammation issues and with pain relief but as a cure for celiac, nope. I did use actupuncture for quite a while before I was diagnosed for pain relief. I have livedo reticularis as a byproduct of celiac and it was amazing to see the difference before and...
  10. ravenwoodglass
    If almond dream is made by the same company as Rice Dream I definately would drop it. You really can't trust that company IMHO since they have removed the barley from their ingredients on the RD I would think they might do the same with the AD. Pacific makes almond milk that is for sure safe. Hemp milk would also be a good alternative. I really like the...
  11. ravenwoodglass
    There are ups and downs at first. It took awhile to get as sick as you were and it will take a bit of time to heal. Heal it should though. I hope you are feeling better soon. To speed the process you should limit or delete dairy for a bit. Add it back in after you heal. Those damaged villi produce the enzyme you need to digest dairy so giving up dairy...
  12. ravenwoodglass
    What a great family. It is wonderful that you have such a good support system. I hope she is feeling better soon and you may find the rest of the family healthier also.
  13. ravenwoodglass
    Myself I wouldn't touch anything from a starbucks. Could you delete those from your diet for a couple of weeks and see if that helps? As for the shredded cheese I don't know about that brand but I do know of one brand that I used to use that wasn't safe because of the stuff they use to keep the shreds from sticking. For that I would call the company and...
  14. ravenwoodglass
    This is true but the numbers should be dropping if they are going up as it appears the OP's are gluten is most likely sneaking in.
  15. ravenwoodglass
    Yes it is definately a possibility. Talk to your doctor about this and for birth control also use a barrier method (condoms and or foam) to be on the safe side. Until you talk to your doctor use the barrier each time not just on the days your spotting.
  16. ravenwoodglass
    Just keep in mind that if you decide to get the endo you need to go back on a full gluten diet for about 3 months first.
  17. ravenwoodglass
    I hope you are getting on the diet as well despite those negative blood tests. It sure does look like you are both in the right place. I am sorry about the early loss of your Mom. Since I was finally diagnosed I often think of mine and wonder if she might still be with me if they had figured out how strongly celiac runs in our family. I think a couple...
  18. ravenwoodglass
    I haven't even had a cold since 2002. Even when I worked in the school system where colds and viruses are always present. When I was diagnosed my doctor told me my immune system was in 'hyperdrive' because of the celiac. It was so busy fighting the gluten that it couldn't fight even the smallest bug and thus I was catching everything that came around....
  19. ravenwoodglass
    I know the guilt feeling all too well. Please don't beat yourself up over something you had no control over. It is not like you knew and ignored it and I bet you are doing a great job learning to deal with it. I am glad to see in your sig that your little one is doing better so you must be doing things right.
  20. ravenwoodglass
    There does seem to be a bit of a link. We have seen that the Gluten-free Casein-free diet has helped a lot of kids with the condition. There are autistic adults but since they haven't been diagnosing autism except in it's most extreme forms for real long many of them are not diagnosed. For some in the autism spectrum the effects are severe but for others...
  21. ravenwoodglass
    If you want to see a GI doctor for an endo you HAVE to get back on gluten. If the thought of that sends shudders down your spine with the thought of how sick it will make you then there is no reason not to just follow your GP's advice and keep up the diet. Sometimes our body tells us pretty clearly what the answer is even when testing can not. If you feel...
  22. ravenwoodglass
    She could even still be celiac with negative blood work. You are a wise mom to give the diet a try. Start out with as much whole, unprocessed food as is possible. Unprocessed meats, chickens, beans, rice, potatoes, veggies and fruits are a good start. If you live near a Wegmans they label all their gluten-free stuff with a circle G which makes shopping...
  23. ravenwoodglass
    Do you take any prescriptions or OTC meds? Generic prescriptions need to be checked at each refill. Also since it appears your hubby is not gluten-free does he brush his teeth before you guys kiss? That can be a source of CC if he doesn't. Do you use any distilled gluten grain items? Some, but not all of us are sensitive to them. Most important how...
  24. ravenwoodglass
    Welcome to the board and to NY. If you are only a couple weeks in dropping dairy is a good idea. It will help you to heal a bit faster. The diet can take some getting used to and most of us have a few slip ups during the early months. Also it does take some time to heal. Try to go with as much whole unprocessed foods as you can. It makes it easier while...
  25. ravenwoodglass
    I use Maybelline Great Lash in the pink and green tube. Everyday Minerals for foundation and blush usually (for sure gluten-free) although I got some of the new Cover Girl and Olay 'simply Ageless' to try and have used it a few times with no issues. The ingredients look safe but I have not called on it. For eye shadow I use Almay but I have not called on...
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