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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    I agree with Guhlia and Riceguy. This is something I just don't see as being of any real value. For one thing man has spent quite a while increasing the level of gluten in wheat to give it more of the qualities that make wheat, wheat. Even ancient forms of wheat like spelt are not tolerated by us and I am not even really sure that it is just the gluten...
  2. ravenwoodglass
    My local health food store recently gave me a bag of a new flour that they were thinking of getting in. I really liked it, especially for scalloped potatoes. It is Tom Sawyer brand. I also like this one for coating chicken etc. Another good one is Pamela's gluten-free baking mix, it makes great biscuits and stuff but does have buttermilk in it.
  3. ravenwoodglass
    I have bought a box of the Rice Chex and those are fine but personally I will wait until they have the gluten free marked on the box before I go for the Kix.. I went to the web site and there was a big write up in the news section on the gluten-free Chex but not a mention of any other cereals that are or are in the works. Although they may have removed...
  4. ravenwoodglass
    I am a bit jealous of your going to Hawaii but anyway, we have a member who lives there. Perhaps you could post a specific query about eating in Hawaii, I am sure he would be helpful. I know how you feel about those strange ingredients in the cookbook, but that is mostly for baked goods. It can be a lot of fun experimenting with recipes but for myself...
  5. ravenwoodglass
    The weight loss should stop soon. Many of us find we are constantly hungry for a bit during the healing process, our bodies have gone without nutrients for so long that once we start absorbing it doesn't want us to stop taking in that good stuff. You can have sandwiches, you just need to find a bread that you like. I don;t know if you can find them where...
  6. ravenwoodglass
    I had swollen nodes for years, in neck and groin mostly. Doctors always attributed it to my then undiagnosed DH and the lesions from that. I do know they have finally gone down but it did take a long time gluten-free before they did.
  7. ravenwoodglass
    Also make sure you check every med and supplement you are on. There are no regs to putting the toxin into those items and you need to check with the maker of the drugs, don't trust your pharmacist or doctor to know for sure. Some pharms will be good about checking and others get frustrated and assume things are okay. With generic scripts you really need...
  8. ravenwoodglass
    It does sound like DH and the iodine in the contrast would have triggered it. I have had a couple CTs since gluten-free and my doctor writes 'no contrast, no gluten, no iodine' in big letters on the lab slip. The stuff they made me drink for them after my celiac diagnosis was way different from the barium preps that I have had before, they were clear and...
  9. ravenwoodglass
    Not a silly question, as you can see from replies. My joints clicked and scraped for a long, long time. It's another one of those things that don't happen to me any more. I also have Ehlers Danlos, which is genetic and results in hypermobile joints. My knees for example bend backwards and I have to be very careful not to dislocate my ankles and knees...
  10. ravenwoodglass
    I don't have any experience with this but I have heard of it. I am surprised it makes you feel 'high' though, I thought the whole reason they made a pill was so people wouldn't. I am glad it is helping you a bit. I hope you continue to improve and that you are soon able to injest food. That is good news about the disability also, that must be a real relief...
  11. ravenwoodglass
    Yes, by the time I was diagnosed I had some pretty severe joint damage to go with the pain. By six months gluten-free my canes had moved into a corner to stay. My damaged joints still look a bit knobby but I have been in remission from my arthritis with no meds now for over 5 years. Something that the doctors thought would not happen. Just as an info...
  12. ravenwoodglass
    What you have done is a gluten challenge. In your case the return to illness was obvious. Have you contacted the GI doctor? There are some that will give you your 'official' diagnosis based on the challenge results. Whether at this point you want to continue the challenge and biopsy is, IMHO, up to you. No matter what the results of the biopsy are you...
  13. ravenwoodglass
    The idea that gluten has to get all the way into the stomach is a false. Gluten is fully capable of crossing any mucous membrane. This includes the nose, eyes, female private parts (women with DH need to be really careful with scented pads and such to avoid blisters) and so on. Once it gets into the blood stream through a mucous membrane the autoimmune...
  14. ravenwoodglass
    My first thought also. And also was the coke from a 'speed bar' or a bottle? Formulations are different for each and risk of CC is high with a speed bar/
  15. ravenwoodglass
    I was on the NIH database site, okay I am bored this morning LOL I thought of how many of us are eating fresh veggies and fruits and wondered if many use this product. I have never looked at it in the store so perhaps they clearly label the wheat in it but just in case, I used the search for wheat and the tab for household products: Open Original...
  16. ravenwoodglass
    I would call the 800 number on the carton and ask. I tend to be supercautious and if a company usually uses a gluten free label on their food and a product doesn't have it I either pass or call before I consume. Yoplait is a really good company, perhaps there is barley malt used in the chocolate in a small enough amount so it can be left off the label....
  17. ravenwoodglass
    If you need to be gluten free, and are, you should see recovery from your perimenopausal state. You are very ill right now, and your symptoms scream celiac. I wonder if you found my diary (just kidding). I had a lot of struggles getting diagnosed and unfortunately was well into menapause before I was finally diagnosed. Even then my OB/GYN said that...
  18. ravenwoodglass
    You should start the diet the day they do the endo. That may give you your answer before you go back for the results. There is a learning curve to the diet and everything that gluten hides in. Meds and supplements can be the worst as there are no labeling regs for those. Toiletries are tricky for the same reason. But you have come to a good place for...
  19. ravenwoodglass
    Did you have a colonoscopy or a endoscopy? The endo goes through the mouth and does not require a prep to be drank to clean you out. If you had a colonoscopy, the one where you clean out the lower intestine and enter through the bottom, he could not have found celiac because he wasn't in the right place. If he gave you an endo and said that everything...
  20. ravenwoodglass
    I think the gluten free diet is going to seem like a miracle to you. If you by any chance have a Wegmans near you start shopping there, they label all gluten-free stuff and no CC worries. You have come to the right place for support. Just do it, if not for you then for that little one.
  21. ravenwoodglass
    Yep. Me. I had it severely for many long miserable years. In my childhood I was told I had poison ivy 'in my blood stream' to explain why I would be covered summer and winter. After I went gluten free I would get the kind of breakouts you describe. At first they would appear in hours but after a couple of years gluten-free it now takes me about 3 to...
  22. ravenwoodglass
    Bacardi has rum that is just rum. My DS and I drink the clear one.
  23. ravenwoodglass
    Sure have, myself and both my kids. I would give her a good try on the diet no matter what the testing reveals. You may find yourself with a completely different kid in a relatively short time.
  24. ravenwoodglass
    I would be quite annoyed at this doctor. He appears to be clueless and really did you a disservice. If he was going to put you through an endo the least he could have done was take proper samples and of course a full celiac panel would have been nice. Kind of makes you want to slap them upside the head, hard. Are you on the diet yet? It may be the...
  25. ravenwoodglass
    You don't need a doctors permission to go gluten free. If I was you I would stop the doctor search and just do the diet and see if it helps. I was finally diagnosed by an allergist, a very elderly one who guided me through an elimination diet. I was close to death and only went because my PT nagged me for a couple of months. I had been to doctors to the...
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