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Latest Celiac Disease News & Research:
Everything posted by ravenwoodglass
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ARCHIVED Am I Inhaling Gluten?
ravenwoodglass replied to misdiagnosed6yrs's topic in Coping with Celiac Disease
The answer as to whether this stuff is getting you is yes. The NIH has a listing of nonfood sources of gluten containing substances. I will see if I can find it, it has drywall and the compound (the danger with the drywall is not when it is up but when you are cutting it), it was how I finally figured out why I was so sick when I remodeled my store. It... -
ARCHIVED Crohn's And Celiac's?
ravenwoodglass replied to Chiron's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
After living with an IBS diagnosis for 15 years after I was finally diagnosed celiac my GI actually LISTENED to my symptoms and gave the very telling remark 'Those symptms were not IBS symtpoms they were chrons, why didn't you tell me how bad it was' I did, repeatedly and they didn't listen. I would awaken from sleep every night for 5 years with gut wrenching... -
ARCHIVED Elimination Diet Gone Wrong?
ravenwoodglass replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It makes perfet sense if you are celiac. Oats would be a delayed reaction that may have lead to your symptoms after you ate the next day. The number of folks who can tolerate oats is not real high you should drop those until you are symptom free. Also the mayo and the salsa, did you make sure that they are derived from non gluten grains? Not all celiacs... -
ARCHIVED Gas Pains? What Could It Be
ravenwoodglass replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, you do need to list symptoms on the food diary. Intolerances cause delayed reactions so you need to list the way you are feeling (be sure to note all symptoms and not just physical ones) and I would also list the times and quality of your bowel movements. I used a little note pad and made rows to note the effects when they occured. The top of the... -
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ARCHIVED Elimination Diet Gone Wrong?
ravenwoodglass replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hang in there, we all feel like this at times. It is so frustrating to feel so bad and not be able to figure out the cause. ((((((((((((HUGS))))))))))) -
ARCHIVED Gas Pains? What Could It Be
ravenwoodglass replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are you taking any OTC drugs to help with the gas? Not all are safe and while they can relieve the symptoms they can cause them to come back. A for sure safe one that helps many of us a lot is name brand Pepto Bismal. You should start out with an internist. Hopefully you have been keeping a food diary that may help. He will start out with the routine... -
ARCHIVED Restaurant Frustration
ravenwoodglass replied to horsegirl's topic in Coping with Celiac Disease
This is such a dangerous assumption that I have to comment. Drug companies do need to be aware of what goes into what they make, they however in the US have NO labeling regulations as to the binders in the drugs. They do NOT have to disclose gluten ingredients in them, whether they are OTC or script and they can add and delete them at will after the patent... -
You need to up your intake of vitamin B. The cracks in the corner of your mouth are one of the signs that you may be deficint in it. If you are not taking a good gluten-free vitamin with the B's you should add one in.
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ARCHIVED Plaquenil For Celiac?
ravenwoodglass replied to newgirl88's topic in Coping with Celiac Disease
It sure can if he consumes gluten food. Dogs lick themselves a lot, after he has eaten he is going to be spreading any residue he may have in his mouth all over his fur. You have nothing to lose by switching him to a gluten free food to see if that helps. We use Ennova Evo, it is completely grain free, but there are a few, too few IMHO, mainstream brands... -
ARCHIVED Liver And Gallbladder Stones
ravenwoodglass replied to ricardo29's topic in Related Issues & Disorders
Gallstones tend to be a result of too much fat in the diet combined with other factors. I personally would not chance a cleanse, too many of us have been made very ill by them. If you are still in pain from what you think may be stones they are not hard for a doctor to find with an ultrasound and there are safe ways to get them broken up and out of the... -
You sound very much like the dietician made the right call. The reason why you haven't seen an improvement in the iron levels is really simple and it is right here- "I don't think my diet is 100% gluten-free since its so hard to avoid wheat and gluten products; for example, I know for certain that my shampoo, skin care products, etc. have wheat listed...
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ARCHIVED Elimination Diet Gone Wrong?
ravenwoodglass replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What brand of puffed rice was that? I use the Pacific Rice Milk and that seems to be okay but I am wondering about the cereal and it's chance of CC. Are you drinking any teas? Any alcohol? Any soda pops? All may be a problem with ingredients and/or CC. I also have to agree with your need to see a doctor. We do of course concentrate on intolerances... -
ARCHIVED Plaquenil For Celiac?
ravenwoodglass replied to newgirl88's topic in Coping with Celiac Disease
Sounds like you are fairly well on top of the CC issue. One last thing, do you have pets? Are they on a gluten free food? Also are you into arts and crafts or home remodeling? Many home repair and refurbishing items are not safe. I made myself real ill with both drywall hanging and with the nice nontoxic gluten based glue I use in my glass work. It... -
ARCHIVED Positive Ttg, Normal Biopsy- What Does This Mean?
ravenwoodglass replied to ladhowar's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You have a good doctor who doesn't want to see you half dead before diagnosing you. I hope you listen to her. I would continue with the diet as she has requested you do. -
ARCHIVED Reaction To Beer
ravenwoodglass replied to sarah30's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The lightbulbs should have gone off when I started joking with my doctor that I got drunk and wicked hangovers from nonalcoholic beer. They didn't. -
ARCHIVED Plaquenil For Celiac?
ravenwoodglass replied to newgirl88's topic in Coping with Celiac Disease
It appears your doctor was on top of this. We both posted at the same time. I agree become a bear when it comes to CC and be sure to check non-food sources of gluten also. The final link for me as far as the arthritis was concerned was my shampoos and conditioner. I hope you get some relief soon. -
ARCHIVED Plaquenil For Celiac?
ravenwoodglass replied to newgirl88's topic in Coping with Celiac Disease
I would bring up this with your doctor as soon as possible. Although it is rare since you are having problems with your eyes you need to make sure that this adverse effect is not an issue. This drug is not a drug for celiac, there are no drugs 'for celiac' although some are around that will provide symptom relief the only real way to stop glutens effects... -
ARCHIVED Kidney Stone Or Gluten ?
ravenwoodglass replied to JustJust's topic in Coping with Celiac Disease
I do get back pain when glutened but it is nothing compared to a kidney stone. That will generally be so severe you can hardly move, many who have had one say it is worse than childbirth. I passed a small one with a bit of 'sand' early this week and when it woke me I thought I might be having a heart attack. It resolved until it got further down the... -
ARCHIVED Please Help With Endoscopy Biopsy Results
ravenwoodglass replied to wannaBAmama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Personally I would give the diet a couple of months before going with the antibiotic. That is my personal opinion, others may feel differently. One word of caution is about the drug she may be thinking of giving you. A newer, more powerful drug called Levaquin is on the market. It is considered an upgrade to cipro. If this is the drug that she is planning... -
ARCHIVED Gluten Challenge
ravenwoodglass replied to wozzy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gluten is an intolerance. It will take many of us a few days to react. When I did my gluten challenge after 2 months gluten-free for my allergist it took 3 days for the reaction to hit. He told me it could take up to 5 or 6 days for the reaction to appear. I was then gluten-free for another month before the GI I was referred to ordered me to challenge... -
I don't think this is the case for you but since it happened with me I figured I would mention. Chili is the only thing that I use a can opener for other than my pets food. Every time I made chili when my son was home I would gluten us both, makes for not a happy visit. It took 2 years for a light bulb to go off about the can opener. I got a new one for...
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ARCHIVED At The Start Of A Long Road
ravenwoodglass replied to writerscramp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome. I am so glad you are feeling better. All your doctor really will need to do is to check your vitamin and mineral levels so you have a baseline. Then you can recheck in 6 months or a year to see how well you are absorbing. He may want to send you to a GI doctor for an endoscopy. If you want to go that route you will need to go back to eating... -
ARCHIVED At The Start Of A Long Road
ravenwoodglass replied to writerscramp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You could bury an eggroll in your back yard and put a rock with a sheaf of wheat with a red slash through it as a marker. Then plant your favorite flower or bush in the same place to celebrate your return to health. -
ARCHIVED Digestion Of Protein --may Be Bigger Deal Than Gluten
ravenwoodglass replied to UCDSurvivor's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for your info and time. I had a horrible reaction from versed. Not only did it not sedate me until they had pumped a whole lot into me, every time I told the doctor what he was doing hurt he said give more versed. I also became combative as I finally going under. I had bruises from them holding me down. He didn't believe me when I...