Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Gosh, it always amazes me how much knowledge we have on this board. Thanks for a very interesting discussion.
  2. ravenwoodglass
    I would agree that you need to check more into the celiac possibility. You sound like a lot of us. An abbreviated list of my prediagnosis problems is in my signature. You have come to a great place for info, read, read, read and ask any questions you need to. Welcome.
  3. ravenwoodglass
    My gosh I thought I was the only one as I never had any one else mention this. If I come into skin contact with gluten the lines in my finger prints and my palms turn white. It is a good indicator for me when I am working with some of my glass and paint supplies. I will also have this effect for a day or two if I happen to use a powdered glove that is...
  4. ravenwoodglass
    I don't know if this will apply for you but thought I would mention it. I have had a horrible time with fallout since I had diverticulitis followed by antibiotic allergy induced pancreatitis last spring. I know being really sick can effect the hair but usually it would start to grow back after a couple months. Mine just kept falling out. I also started...
  5. ravenwoodglass
    I was diagnosed with both. However after reviewing my A1C for a year and a half along with my regular post meal testing it seems my glucose is usually under really good control.....unless I get glutened. Then my morning readings will be high. This is what happened when I was diagnosed. I had a severe glutening and went to the doctor, he based his diagnosis...
  6. ravenwoodglass
    Well in my family gluten = zits. No gluten - No pimples. My skin was clear at 45 for the first time I could ever remember. Even when I gorge on chocolate. Both my teens also saw theirs clear up. Hopefully you will go back to gluten free after the endo no matter what the results. If you get extremely ill please let your doctor know.
  7. ravenwoodglass
    Oh yea. That stopped after about a year, when I had been in remission from almost everything for a few months. Even the doctors couldn't deny my return from deaths door, and don't even get me started on what the doctors did to myself and my kids in the name of treating 'depression'. Depression that does not exist at all gluten free. One of my kids will...
  8. ravenwoodglass
    I hope they figure it out soon, you are in my prayers and please let us know how you are doing. (((((((((((((HUGS)))))))))))) Krista
  9. ravenwoodglass
    Not a good practice. Not only could there be gluten inside the capsules but some capsules and tablets are formulated to disolve in a certain area of the stomach or the intestines. Enteric coatings are a great example, these coating prevent the tablet from disolving in the stomach which would cause irritation. To remove the coating allows them to start...
  10. ravenwoodglass
    I am so sorry you are going through this. I have had pancreatitis and it is miserable. I would keep to the gluten-free diet for a while, avoid alcohol completely (that's important), stick to fairly bland gluten free food for a little while and you may want to consider dropping dairy for a bit. Some folks, myself included, have gotten a lot of help from...
  11. ravenwoodglass
    You need to get a celiac panel done and if your doctors won't order the tests you could order antibody testing from Enterolab. They will check for antibodies to gluten, they don't 'diagnose' but they can tell you if your body is reacting to gluten, IMHO the same thing. There is a strong corelation between lymphoma and undiagnosed celiac. It is one of...
  12. ravenwoodglass
    Have you all tried the diet? A postive celiac panel is a positive celiac panel even if only a degree or two into it. Some doctors will call a low positive a negative, until you get sick enough for those numbers to go up. Celiac is the only disease that I know of that doctors will tell you to keep harming yourself just to try and get a higher positive on...
  13. ravenwoodglass
    I also haven't had a migraine since I went gluten free, 5 years now. I use good old pepto bismal for the stomach pain if I happen to get CC'd. It helps almost instantly and has no nasty side effects or adverse reactions other than making the stool dark for a day or two. I never even have to take a second dose. One word of caution, the script your doctor...
  14. ravenwoodglass
    I have been on the diet for over 5 years now. I was close to death before I was diagnosed and even a bit of CC will bring back my arthritis, my migraines, my muscle pain, take away my ability to think and walk and leave me depressed for a couple days and anxious for a couple weeks. At times I am a bit jealous of those who can even consider 'cheating just...
  15. ravenwoodglass
    This will be brief, , almost any autoimmune disease can be related to having undiagnosed celiac. The immune mediated response of the body to gluten injestion can cause a multitude of ill effects as it tries to rid the system of the toxin. Since the toxin permeates all tissues the body can and will turn on itself in a vain attempt to protect you from it...
  16. ravenwoodglass
    I have ataxia and neuro issues and for me those hit really fast, the ataxia within an hour of injestion and the depression hits for 24 hours the next day. The GI effects usually don't hit until, like you, three to four days afterwards, although my tummy will start to growl within hours and gas will start to build up but the horrendous D takes time.
  17. ravenwoodglass
    I am glad you are researching a bit before you do this. It is not something I would reccommend for us. If you feel strongly that you need to detox how about doing a one day fast with fresh juices and lots of water. Then the next day or two eat only unprocessed naturally gluten free food, (that is how I eat every day but many can't live without their premade...
  18. ravenwoodglass
    One of the best heavy duty ones I have used is Norweigan Formula in a small white tube with a blue band. It is very thick and works well, we even use it as a 'chapstick' on the lips when they get really chapped. Suave makes a number of gluten-free products, shampoos and lotions, and they will clearly label wheat and oat ingredients. I really like the...
  19. ravenwoodglass
    I think you found the culprits. I used to eat the Puffins all the time, the last time I looked at the boxes I couldn't find the one of all of them that they had labeled gluten free. The gluten-free labels were gone but they still had wheat free on them so I wonder if they changed the formulas. I only tried the Rice Crunch Ems once, I am very sensitive...
  20. ravenwoodglass
    I am someone who was in full blown end stage celiac----and never showed postive on a panel. I agree strongly that you need to get her on the diet as soon as possible. For one thing the stomach problems she is experiencing could be a direct result of gluten and the prilosec may well be totally unneeded once she is on the diet. The biopsy was definative...
  21. ravenwoodglass
    Also if you haven't already make sure you check your personal care products, shampoos and conditioners, lotions and makeup. Also be sure to check any meds or supplements you take. Check with the company that makes them, not the prescriber. Even small amounts of gluten in supplements,homeopatics and OTC and script drugs can keep us reactive. It can take...
  22. ravenwoodglass
    I get a DH reaction from Bandaid brand strips. Makes the boo-boo seem like nothing compared to the rash and discomfort from the bandage. I now use Wegmans strips, nonlatex and have no issue at all with them. If you live in an area that has a Wegmans you may want to check them out. Before I discovered those were okay I used copious amounts of gauze and...
  23. ravenwoodglass
    I think you have a good plan, as long as you keep your appointments to check those levels are not getting out of line. You may want to add olive oil, garlic and if you like it hummus to your daily diet. All will help with keeping those levels down. Remember to excercise on a regular basis also.
  24. ravenwoodglass
    The previous post almost brought me to tears. It is so telling of my story. I was tested over and over and over for years and never told to try the diet, because I am not technically genetically defined celiac. I am a double DQ3 and I was almost dead before an allergist finally did an elimination diet and found the celiac. And yes by the time I was...
  25. ravenwoodglass
    Not for anything. Even when it is approved I will wait for at least 7 years before I try it for crosscontamination issues. I have already had enough maintance drugs that I was on pulled off the market. Nope, no thanks. I think the only thing this drug will really do for us is to get more of us diagnosed. Once there is a pill for the drug companies to...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.