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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    As a person who was seriously damaged by doctor's relying on blood tests for diagnosis I do tend to get a bit emotional about the issue, I apoligize if it seemed that way. There are up to 30% of celiacs who do not show up on conventional blood testing. Also in children even those who will show up later in life are often a false negative. This is one...
  2. ravenwoodglass
    Lisa I hope you are feeling better and I hope you got yourself to the ER. With asthma you should use some common sense and if you can't breathe the hospital is the place to go. I hope you went.
  3. ravenwoodglass
    If your childs symptoms have returned you have a positive result on the challenge. You do need to contact that doctor immediately and let him know how violent her reaction was. A doctor that is interested in more than the money from the scope will likely give her the diagnosis based on the result of the challenge, and then stop the challenge. If he doesn...
  4. ravenwoodglass
    I recently tried and love Marc Anthonys line. They are made in Canada but I found them at Rite Aid. They don't contain either gluten or soy ingredients, at least not the moisterizing Aromatherapy shampoo and conditioner, I didn't check all of them. Another real good one is Giovanni, if you like organics. They do have soy protein though so it is out for...
  5. ravenwoodglass
    An allergist who will assist you in an elimination diet would be the way to go, make sure the allergist will do that, many just deal with histamine reactions and not intolerance. Histamine means a pill they can prescribe then bye bye, with an intolerance issue the elimination process is a bit drawn out and not all are willing to help with them. Call and...
  6. ravenwoodglass
    Some, not all of us, react to gluten grain alcohols regardless of the fact that they are 'supposed' to be gluten free. If the martini had a gluten grain vodka it could very well have gotten you, but so could eating out. If you want to know for sure get some potato vodka and a small bottle of regular gluten grain vodka. Wait until you are symptom free and...
  7. ravenwoodglass
    I haven't had a migraine or even an aura since I went gluten-free 5 years ago. Unless I get glutened. I 'lived' with them for years and can't say I miss them.
  8. ravenwoodglass
    I'm jealous. My DS gets his motor head from me, he has taken it much farther though. What is the car and have you raced her yet? Hope you win when you do. Looks like it was a lot of work and you must be so happy to have her race ready.
  9. ravenwoodglass
    I think that may be a strong possibility. You need to get your hands on the fact sheet from that drug, you may be able to get it at the NIH website or from your pharmacist. You need to see what adverse actions it is possible for this drug to have, and also what organs the drug may impact, many doctors don't know them. The drug if not gluten-free could...
  10. ravenwoodglass
    I just got some of those to try. I haven't tried oats since I was diagnosed. For some of us the issue is not just CC but that our guts can't handle the protein in the oats. It is similar to the gluten. Many of us can eat them safely but the only way to know for sure is to challenge them when we are feeling good. They shouldn't be used early in the diet...
  11. ravenwoodglass
    I have an older kitty that was taken from her mom too soon. She sucks on my hands when she gets the chance, like when I am at the computer. Within minutes my eyes start to water and my nose fills up. That's enough of a test for me. If she just sits there quietly I am fine. I had another stray we fostered that did the same thing, and I would react the...
  12. ravenwoodglass
    I would try the diet strictly for a couple of months. Simply put if I had kept relying on blood testing I would be dead by now. I was tested over and over and over and each time only heard that I should be happy the tests were negative. It took an allergist and a strict elimination diet lead by the doctor to finally diagnose me. I was then confirmed by...
  13. ravenwoodglass
    Perhaps she is starting to realize she may be one of the one in four, I think lots of folks zone out on celiac and gluten intolerance because they are afraid it hits to close to home. Can we all say denial
  14. ravenwoodglass
    First are you avoiding all gluten, wheat, rye, barley and oats? Celiac is more than a wheat allergy, in fact it is a different horse althougher. Celiac is an autoimmune respone not an allergy response. It often does not show up at all on allergy testing. Have you had a celiac panel? This test looks for the antibody response in the blood. This however...
  15. ravenwoodglass
    Just to set you at ease a bit.... Leukemia is one disease that shows up very well in blood tests, they would have most likely found it by now if that was a possibility. It would show up even in routine tests on your blood through results in your red and white blood cell count. The loss of kidney function could be due to any number of different things...
  16. ravenwoodglass
    I am so sorry to hear this. I have endured a lot of loss in my life. I have come to believe that we are all here to teach something in our time here. Once that is accomplished we move on. Often that move comes much sooner than those who love us would prefer. ((((((((((((HUGS)))))))))))))))
  17. ravenwoodglass
    The 'we will call you back' isn't always a runaround from the folks you get on the phone. Often the folks on the phone can't tell you much, because they really don't know. I make a lot of calls on products before I use them. Usually I will get a response back from them on the safely but first they do need to contact the folks that handle the actual manufacture...
  18. ravenwoodglass
    I agree with this completely. IMHO it is best to remove ALL sources of problems at the beginning. Then when folks are feeling well they can add in stuff that is possibly okay and watch for a reaction. To do it backwards can lead to folks thinking they are refractory or that they need to continue searching for other problems that are not really there, because...
  19. ravenwoodglass
  20. ravenwoodglass
    Do they have a clinic or a nurses office at your school? Showing your hand to them would be the way to go. If you have a sprain or have broken a bone we can't really do anything for you. I hope it was just a bruise and is feeling better today.
  21. ravenwoodglass
    You can also be in total end stage celiac and still show up negative on the blood tests. Waving both arms in the air vigorously here Do not base your need for the diet solely on blood or even endo. Judge by your response to the diet followed strictly. As mentioned the time for the antibodies to leave the body varies greatly. Are you getting any relief...
  22. ravenwoodglass
    First the guy who wouldn't tell you what it was is IMHO a jerk. If you can't find that bread, or figure out which one it was, you may want to try Kinnickinnick. The make some very good products. My favorite is their Italian white bread and their hamburger buns. The pizza crust is also really good for a premade one. Also if you are new to the diet...
  23. ravenwoodglass
    Have you gone to the medic? Do they know you have celiac, have you been diagnosed? If the answer is no then you need to bring this to the attention of your command. Stress like what you are undoubtedly under is likely to make your problems worse. It is going to be very, very hard if not impossible for you to eat gluten free in the field. Do NOT make...
  24. ravenwoodglass
    Whether you are technically celiac or not is kind of a moot point. You still need to avoid gluten. If it will make it easier to get what is needed for your DD when she begins school to have you have the label 'celiac' then I would let him just put celiac in your file. If you are afraid of future impact on getting insurance the I would just let him put...
  25. ravenwoodglass
    You could try a bit of extra virgin olive oil on the rice, just a small amount. You could also add just a touch of gluten-free cinnamon and a sprinkle of sugar, just a little bit, to make it a bit sweet if you absolutely can't stomach it plain. I am giving you a link to the NIH website. You can do a search there for the exact brand of drywall compound...
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