Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    There are a few places you can call to see if they can help with this. In most cases the person who brings you is not allowed to leave during the procedure and they will not let you go in a taxi etc. Call your local hospital and see if they have voluteers, Red Cross may know of someplace or someone, Catholic Charities or another local church may also have...
  2. ravenwoodglass
    And some have celiac and don't have one of the two most commonly looked for celiac associated genes. A complete celiac panel and biopsy if you choose to have one are the best way to go if you are looking for a diagnosis. After all testing is done no matter what the results you should give the diet a try if your symptoms seem to be celiac related as false...
  3. ravenwoodglass
    I use Garnier and don't find it too heavy. They make a number of different formulas and at present I am using one for fine hair that adds body. If your happy with what you are now using and it works well for you and you just want a change once in a while try and find travel or trial size bottles to see if you like it.
  4. ravenwoodglass
    I have a hypermobility syndrome and when on gluten I was constantly dislocating. My ankles were the worst and I had braces to wear when I slept. My knees were also a problem. I now rarely dislocate anymore. My drawer of ankle, knee and wrist supports is really getting very dusty. My joints don't snap, crackle and pop anymore either. I don't know for sure...
  5. ravenwoodglass
    If they were someone else's script and that person is a gluten eater then they could have been CC'd. Just another reason not to take someone else's script. I know that pain well. It is excruciating. Don't know if it will be the case for you but for me soy is more of a culprit in that pain than gluten is. For some folks it is nightshades that are contributing...
  6. ravenwoodglass
    People that don't have celiac don't understand the impact it can have on our brains. And when we are 'under the influence' sometimes we don't realize how severe that impact is. So sorry this happened to you and ruined what could have been a good outing. I wouldn't give up on those freinds just yet though. Although what was said was rude you may have been...
  7. ravenwoodglass
    Celiac damage can be patchy and they need to take at least 6 to 8 biopsies of different areas. Did you have a celiac panel done? If so what were the results? Keep in mind that even a short time gluten free or gluten light can cause an increase in false negatives and some of us even on a full gluten diet can still show negative on testing. When you have finished...
  8. ravenwoodglass
    You mentioned vodka, there are a very few of us that react to distilled gluten grains. One gluten grain derived drink and I am not only so drunk I can remember little of the rest of the night I also awaken with a severe hangover. However I can have 2 or 3 potato vodka drinks over the course of a night and not get drunk and have no hangover the next day....
  9. ravenwoodglass
    You might want to add a sublingual B12 into your vitamins if you are not already. If you take a multi with folate that can make your B12 levels look higher on testing than it really is. B12 is water soluable so it is hard to take too much and it is important that it be a sublingual not a swallowed tablet. Is your home gluten free? You may be getting enough...
  10. ravenwoodglass
    I use Garneir products for hair and skin. They will label gluten ingredients and I have had no problems with any of their products. Sometimes I will try a different shampoo or conditioner but usually I end up donating them after one or two uses. If you have favorite products ask about them here. As far as buying a book keep in mind that they are out of date...
  11. ravenwoodglass
    Some of us find it works best to not try the gluten free replacement foods right away. Maybe try and go with more naturally gluten free food that he was eating before diagnosis like potatoes, rice, chicken and beef, eggs, veggies and fruit etc. There are a few mainstream cereals that are gluten free like Chex, Fruity and Chocolate Pebbles and the gluten free...
  12. ravenwoodglass
    Congrats on the wedding and glad to hear that all went well with it and the honeymoon. It sounds like you have a very supportive spouse which does help a lot. You mention feeling like you are 'doomed' if you get glutened or think you might be. Can you keep in mind that even if you do get glutened it will be a temporary thing that will pass? I get horrible...
  13. ravenwoodglass
    I will keep my fingers crossed for you and your family. I was close to death when I was diagnosed. My amazing recovery convinced the rest of my family to get tested about 6 months after I was diagnosed. In the end though all we can do is give them the information and hope they will do what is needed. I hope you are feeling much better soon. For now you need...
  14. ravenwoodglass
    Upstate NY is pretty gluten freindly. Rochester is good midsized city and there are smaller cities that as long as they have a Wegmans you would be able to shop with ease. The owners of Wegmans have celiac in the family and they are very good at labeling their store brand items. The Finger Lakes area is really pretty and has a pretty low cost of living if...
  15. ravenwoodglass
    Your doctor should have never told you to go gluten free before testing. Did he do any celiac panel tests on you before you went gluten free? Being gluten free or gluten light can make the tests come back a false negative. As to the headaches, they could be part of the gluten withdrawl we can go through or for some of us, myself included, they might mean...
  16. ravenwoodglass
    You have gotten some replies to that post. It is under "Doctors". If you need to find a post if you click on the little 'thingy' next to your screen name it will take you to your profile page. Then you look under topics you will see the two threads you have started.
  17. ravenwoodglass
    Here is a link that will give you the number to call them and info on their products. Open Original Shared Link "Our fresh natural chicken, turkey and individually frozen chicken are gluten-free. Our ground chicken and turkey with natural flavors contain only spice extractives and are also gluten-free. For our other products, please check the...
  18. ravenwoodglass
    When I did an elimination I was told to drop everything I might be reacting to and then add things back in one at a time, eating the suspect item 3 times a day for a week or until I reacted. Go with as much whole food as you can so you don't have to worry about reading labels. With something like corn I think I would do a week with fresh corn, keeping in...
  19. ravenwoodglass
    The worst part of the procedure for me was waiting for it to be done. I think you may have the same feeling when it is over. The test itself is something you won't even remember. You will simply 'take a nap' and wake up and go home and start your gluten free life. With positive blood tests you know you need the diet no matter what the biopsy results are...
  20. ravenwoodglass
    I think Debole's is okay. I found it a bit 'corny' for my taste but an okay texture. My favorite is the Thai Kitchen Rice Noodles. Usually they can be found in the Oriental food section. My store carries the real thin angel hair size and a linguine. I like the angel hair because it cooks in just a minute or so. I just toss it into veggies that are done cooking...
  21. ravenwoodglass
    What are the ingredients? They used to have malt in them which would make them unsafe for us as it comes from barley. They do make a gluten free variety of Rice Crispies that are safe for us. I use those to make my own treats so I haven't looked at the ready made ones. Plain rice is gluten free and many marshmellows are also.
  22. ravenwoodglass
    Poor little guy. Hope he is up and about and crunching on treats soon.
  23. ravenwoodglass
    Gluten Free Pantry also makes good cake mixes. I really like the chocolate. If you want to have a good homemade pizza that all will like their French Bread Mix makes a really good crust. It is a sticky dough so it has to be spread but even the gluten eaters I have given it to like it.
  24. ravenwoodglass
    If your hubby doesn't need to be gluten free maybe let him get a box of whatever he wants as long as he doesn't sprinkle it all over the house. If you have a youngster that would feel deprived maybe hubs could 'sneak eat' it.
  25. ravenwoodglass
    Pepto did help my stomach pain and I still use it when I get soyed. The only thing that helped the D was Immodium and I kept that company in business for 15 years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.