
buffettbride
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by buffettbride
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My DD had awful leg pain before Celiac dx and going gluten-free. Now it only flares up if she has been glutened. She is 10 and will have a DEXA scan in March of next year as part of her routine GI checkups. I think the DEXA scan is a good preventative measure and is completely non-invasive (so I've heard). I wouldn't even sweat it!
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ARCHIVED Hailing From Asia - Would Like Some Advice
buffettbride replied to Alvin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your "odd" symptoms sound very much like my daughter's before she was diagnosed. Regardless of your ethnic origin, I wouldn't rule-out Celiac just because of that. Perhaps you could try eating gluten-free for a while to see if that improves your situation. A colonoscopy wouldn't reveal Celiac, but an endoscopy (tube in throat) would. -
Sounds like you still might be getting some gluten or have issues with other foods like dairy or soy. I know gluten-free diet works because 6 months ago my daughter was sick with no hope in sight and after 4+ months gluten free, I have a new child who is healthy and bright. Celiac is much more, though, than just gluten-free. It's a constant process of...
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ARCHIVED Am I Being Too Controlling?
buffettbride replied to megsbaby's topic in Parents, Friends and Loved Ones of Celiacs
well gosh! if i could, i would!! -
ARCHIVED Another Interesting Day At The Doctor's Office
buffettbride replied to Ridgewalker's topic in Parents, Friends and Loved Ones of Celiacs
I'm glad little Ezra finally got some rest! Hopefully you can now too. I hope he gets to feeling much better soon! -
I don't blame you for being confused! Just reading your post was confusing. The gene test wouldn't hurt, because then you could see if you're predisposed to be Celiac or not. If you don't have a Celiac gene, then maybe continue persuing other possible diagnosis (I firmly believe IBS is BS...). Perhaps you could try the BRAT diet (bananas, rice, applesauce...
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ARCHIVED Help! Always Bloated
buffettbride replied to JessieFree's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It was so nice to see this thread today. DD has been complaining of feeling bloated but not "glutened." Unless she picked up some gluten from surface contact at school (which in the past has triggered a full-on glutenining) the only other culprit in her case at least would be the milk she is drinking so I'm thinking about removing dairy or having her go dairy... -
ARCHIVED Am I Being Too Controlling?
buffettbride replied to megsbaby's topic in Parents, Friends and Loved Ones of Celiacs
I feel the same way sometimes when family members are cooking for her. I don't quite trust that they know was gluten-free really means and I usually do check labels on the bottles and such things when other people have cooked for us. Sometimes hubby will call me the gluten-Nazi but I don't care. It's just not worth it if my daughter gets sick. Part of... -
ARCHIVED Tests? Help! Confused!
buffettbride replied to mom2matt's topic in Parents, Friends and Loved Ones of Celiacs
The diet is essentially easy. No gluten means no wheat, no rye, no barley, no oats in any form or in any ingestible product (like Chapstick, etc.). The hardest part is not ingesting gluten when you're someplace away from home. The easiest way to start would be with basic foods like meat (make sure they are not marinated), fresh or frozen veggies, fruits... -
ARCHIVED We Feel Trapped In Our House! She's Soooo Sensitive!
buffettbride replied to Momof2cuties's topic in Parents, Friends and Loved Ones of Celiacs
18 months old--that's tough. At that age there is still so much hand/mouth contact, she could be getting glutened from just about anywhere. Is anyone kissing her on the mouth who might be wearing gluteny lipstick or something like that? Could anyone be sneaking her gluten thinking it's OK if it's just a little? Is there someone who could babysit the kids... -
ARCHIVED Tests? Help! Confused!
buffettbride replied to mom2matt's topic in Parents, Friends and Loved Ones of Celiacs
My daughter had both the endoscopy (first) and the blood tests (second). Her endoscopy showed signs of villous blunting so they decided to follow up with blood tests. It was actually surprising to the doctor's to find evidence of Celiacs on her biopsy since her symptoms were so mild and somewhat atypical. The blood tests are important if the endoscopy... -
ARCHIVED Always Feels/looks Tired
buffettbride replied to buffettbride's topic in Parents, Friends and Loved Ones of Celiacs
I'm glad to know I'm not alone. It seems I could come up with a reason every week to take her to the doctor. We've been diligent about the daily vitamins. I suspect her deficindies might be iron related, but probably more B-vitamin related. School is definitely a factor too--it really is hard work and obviously more tiring than summer vacation. -
ARCHIVED It Was Solid... And It Sank!
buffettbride replied to mommyagain's topic in Coping with Celiac Disease
Sinking, solid poop is definitely reason for celebration. -
ARCHIVED Always Feels/looks Tired
buffettbride posted a topic in Parents, Friends and Loved Ones of Celiacs
DD always seems tired. I have a heck of a time getting her out of bed in the morning. She is 10. She goes to bed about 8:30 or 9pm and wakes up around 6am. I could adjust her bedtime by about a half hour and get her to bed shortly after 8, but not much earlier as we're usually just finishing up with dinner around 7 or 7:30 and she needs to shower, do chores... -
ARCHIVED Low Income, How To Aford gluten-free Food For Family Of 4?
buffettbride replied to grovermummyC4's topic in Coping with Celiac Disease
I'm so sorry you are having such a tough time. Sticking to the basics is what is going to get you by. Fruits, meats, veggies, and rice. For lunches it can be lunch meat and cheese and some carrot/celery sticks maybe. Progresso Chicken w/ Vegetables and Rice is gluten-free as well and can make a good lunch. Applesauce, fruit snacks. Pudding cups. All make... -
ARCHIVED Testing Baby Gluten
buffettbride replied to KHumphrey's topic in Parents, Friends and Loved Ones of Celiacs
In order for the blood tests to be indicative of Celiac disease, your child would need to eat gluten. Your child will get some gluten if you are eating gluten and breastfeeding. Celiac needs a trigger, so it's possible your child will have at least one of the Celiac genes, but never develop the disease. I don't know what I would do in that situation, but... -
ARCHIVED How Can This Be?
buffettbride replied to 2boysmama's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow. That is scary! Thankfully your label-reading persona kicked in to double check the label (what a shame we have to do that anyway). There's no way I'd buy something with oat flour, contaminated oats or not. Just too risky. -
ARCHIVED Do I Have The Highest Antibody Level On This Forum?
buffettbride replied to JustJust's topic in Coping with Celiac Disease
When my daughter was diagnosed in May, she tested at just under 100. When she was retested after 3 months gluten-free, she was at 7.6. -
ARCHIVED Packing Lunch For A Picky 5 Yr Old
buffettbride replied to mama2two's topic in Parents, Friends and Loved Ones of Celiacs
I do the homemade lunchables a bit. Glutino round crackers and then I cut the turkey the size of the cracker and send in the Kraft cracker-stacker cheese. 5 might be too young to enjoy salad, but DD also eats a spring mix salad with walnuts, fresh shredded parmesan, and Annie's gluten-free raspberry vinegarette dressing. We do leftover taco/taco salad... -
ARCHIVED Just Found Out About This After 10 Years Of Pain
buffettbride replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome. I'm glad you found this site. It is soooooo helpful. Based on your symptoms, it definitely sounds like you could have Celiac Disease. Have you talked about it with your doctor? I certainly hope you find a way to feel better soon! -
ARCHIVED Halloween Candy List
buffettbride replied to Dandelion's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow. Thanks for doing that research! We live just a stone's throw from Target so I think I know what I'll be doing tonight! Normally we haven't had any luck with food purchases from Target re: gluten-free so this is awesome news! -
ARCHIVED Cheba Brand Calzone
buffettbride replied to Mountaineer Josh's topic in Gluten-Free Recipes & Cooking Tips
I'll have to try that next. I miss pizza! I feel so bad having regular pizza when I know my DD can't. There's a gluten-free bakery who makes the most delightful gluten-free crust (sells it to local restaurants too) but it is WAY across town from me. I might just have to make the trek! 4 7" premade pizza crusts for $6.00!! Can't beat that! But it takes... -
ARCHIVED Halloween Candy List
buffettbride replied to Dandelion's topic in Gluten-Free Foods, Products, Shopping & Medications
Pencils and stickers are a good idea, too. -
ARCHIVED Cheba Brand Calzone
buffettbride replied to Mountaineer Josh's topic in Gluten-Free Recipes & Cooking Tips
We tried the Chebe pizza mix. Not so much. Although, I need to add the differential that my cooking skills aren't the greatest.