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Rosewynde

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Latest Celiac Disease News & Research:

Everything posted by Rosewynde

  1. Rosewynde
    Do ALOT of online research. I googled on restaurants, gluten, and Celiac and came up with all sorts of interesting tidbits of info. 1) Having some sort of cards to hand a server to give to a chef can help, as long as it's in their language ; D Don't trust just telling them your needs as it can be miscommunicated. 2) Calling a restaurant ahead...
  2. Rosewynde
    GFHopeful, * HUGS * hang in there it should get better if you give it time and stick to the diet. It can take as long as 6 months to recover, from what I've read here and mistakes are very easy to make with this diet. Please keep an eye on it and involve the doctors, they may see things the rest of us don't. None of us here are experts, we just know...
  3. Rosewynde
    I'm not sure about jail, but I had problems with Lactose free diet in the hospital. When I was pregnant with my youngest I had all sorts of problems that docs thought were related to a really high lactose intolerance and an imbalance of the stomach due to a nasty flu bug. We think now it was the begining of Celiac Disease. When I gave birth, I told the...
  4. Rosewynde
    Hello there, sorry your still having relapses. It's definitely not an easy diet but better than feeling awful 100% of the time. I think I prefer having to be on a diet than medicine for life ; D I read somewhere that all Pepsi and Coke products are ok. Do a forum search on Coke.
  5. Rosewynde
    I've been told by a Entertainment Park before that if I had a note from a docter stating that I had to bring my own things then I could do so. If not then I had to do without or eat/drink what they had. Be worth asking your doctor about that. I've not done it yet myself.
  6. Rosewynde
    I had Polycystic Ovarian Disease (which I assume is the same thing) after coming off of birth control at 24. It caused very high male hormones to run rampant through my system and stopped my period for several months. I was sent to an endocrinologist's who tried something new he'd heard about from other doctors. He put me on a Diabetic med that had a side...
  7. Rosewynde
    I was reading up on this the other day due to it being a point of contention between many people. Some react to vinegar's some don't. Supposedly distilled vinegars are safe because they are distilled (even if made of wheat which most aren't) but malt vinegar (in fact all malt) is not safe as it's not distilled and it's made from barley. Someone said they...
  8. Rosewynde
    First off, don't stress! Sounds like the doctor's have eliminated the REALLY bad problems. Take a few breaths of releif and move on ; D I'd be tempted to say lactose as it sounds VERY familiar to my problems initially. Also some of your worst reactions seem to be with milk products. No matter what it is, don't believe IBS, according to my RN mom it...
  9. Rosewynde
    Lemon Lime soda or Ginger ale is very good for nausea, though I usually make sure it's de-fizzed first. I'd say eat some bread or crackers before you get out of bed but that' doesn't work well unless you have a gluten free source. Not sure what would be causing it though, if not pregnancy. If you were pregnant I'd suggest Sea Bands (acupressure bands...
  10. Rosewynde
    Maybe your intestinal bugs are out of balance because of the viral flu? I've been told that before but was before i was diagnosed with Celiac's ; D They had me take acidophilus (sp?) for it.
  11. Rosewynde
    My favorite chocolate to work with is Scharffenberger. My mom, who's always been lactose intolerant, found it and shared it with me when I started having stomach problems that we thought were extreme sensitivity to lactose. It was one of the first things I looked at when I found out that my problems were due to gluten. The only thing they don't guarantee...
  12. Rosewynde
    I found my brain fog goes along with a general feeling of fatigue and seems to be related to being dehydrated or short on some vitamin or mineral. If I'm feeling dry mouth and throat along with the brain fog O start drinking a lot of Gatorade or water with a thermo tab and that seems to help. If I'm not feeling dehydrated then I've had good success with...
  13. Rosewynde
    There are two things I try. If I'm also feeling dehydrated I try Gatorade, or Water and a Thermo Tab. If I'm not dehydrated then then I take a multivitamin. I kind of figured it means your brain or body isn't getting something it has to have.
  14. Rosewynde
    Thanks I'll try that. OH and another thing I saw was someone saying they had reactions with Beef. I've had Ground Beef and Tri Tip with no problems. I'm wondering if it has more to do with the seasonings or sauces or if there's something else I don't know ; D I'll try doing a search to figure it out though, but I appreciate any advice.
  15. Rosewynde
    I'm a bit confused over some of what I've read in posts here so I thought I'd ask as I just got a positive test for the antibodies related to Celiac's. I don't wear makeups so not worried about that, but soaps, shampoos, and cleaning supplies are a problem for Celiac's? Why? You don't swallow them do you? I've also been lactose intolerant for years...
  16. Rosewynde
    Thanks Everyone, I guess I trust the original blood test and my own dietary responses then. I'm just afraid of getting told it's IBS caused by stress again, which makes no sence as I wasn't feeling stressed when this happened again. I know i shouldn't worry about the kids, it's just hard not too. I don't want to see them go through what I've been...
  17. Rosewynde
    Have you tried some bed time routine to get you relaxed? I've always read some before sleeping. I frequently fall asleep with it still in my hands ; D If i try to go to sleep without reading it usually takes me a long while because my mind wanders over things I've done that day repeatedly. Maybe taking a brisk walk, hot shower, or hot cup of tea might...
  18. Rosewynde
    I came up with these two sites when doing a google search for this because we do regular trips and I needed to know what was safe Open Original Shared Link Open Original Shared Link You can also buy books that have restaurant guides from Clan Thompson and The Essential Gluten Free Restaurant Guide. I've not tried either so can't claim they work. ...
  19. Rosewynde

    ARCHIVED Melt Down

    Rosewynde replied to jaten's topic in Coping with Celiac Disease

    I'm fairly new to this as I've only just started the gluten free diet. But I understand how you feel. Our once a week adventures eating out with family have always been my favorite times. I miss being able to pick what I want, but I don't miss feeling like I've been poisoned the next day. Thats what I remind myself every time I start feeling bad. Also...
  20. Rosewynde
    I'm in the experimenting stage and trying to avoid the expense too ;D Thought I'd give you some sites my mom found and what I've discovered so far. 1) Open Original Shared Link and Open Original Shared Link both had some great information of flours and substitutions. 2) Sweet (glutinous) rice flour is NOT the same as Rice Flour. If you put that...
  21. Rosewynde
    I don't know about gluten free or not but I've used the Black Paste from Wilton's before to get a black frosting instead of an odd grey green or grey purple that you can achieve with food color. To much paste WILL flavor the frosting funky though cause I've had that happen. Maybe a combination of food color and the paste would work, that's what i did my...
  22. Rosewynde
    I've had flu like symptoms (gas pains, diareah, fatigue, dehydration) for the last few months. My doctor checked a few things and sent me to a specialist who checked a few more. I started avoiding gluten on my own when the doctor told me that was the next set of tests (the doctor said it wouldn't affect the tests). The most recent results were a blood...
  23. Rosewynde
    I'd been wondering if there was a connection too. My flu like problems seem to get worse the week before I start my period and only start getting better a day or two after. Supposedly from what I've read, when Celiac's Disease shows up latter in your life it's usually triggered by pregnancy, a flu virus, or some other major stress. Maybe the hormone swing...
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